clinical trial GM-CSF/Yervoy
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clinical trial GM-CSF/Yervoy

› Forums › General Melanoma Community › clinical trial GM-CSF/Yervoy

  • Post
    • July 30, 2013 at 8:41 pm
    Lori Stoen
    Participant

    Wondering if anyone is in the trial GM-CSF / Yervoy ?? My dad was givin this as an option or to use the regulated dose of Yervoy… Wondering how the side effects are… Or  just anyone with the Yervoy side effects would be helpful.. We are so undecided … Dad feels good now and is active doing many things at the age of 80 and he does not want to give in….. And I am in total agreeance with him. I just dont want to see him sick and I dont know if that triple the dose of the trial would be to much… Any suggestions from ppl that have been on either ?

    Wondering if anyone is in the trial GM-CSF / Yervoy ?? My dad was givin this as an option or to use the regulated dose of Yervoy… Wondering how the side effects are… Or  just anyone with the Yervoy side effects would be helpful.. We are so undecided … Dad feels good now and is active doing many things at the age of 80 and he does not want to give in….. And I am in total agreeance with him. I just dont want to see him sick and I dont know if that triple the dose of the trial would be to much… Any suggestions from ppl that have been on either ?

Viewing 7 reply threads
  • Replies
      • July 31, 2013 at 6:19 am
      DEK
      Participant

      Hi

      I have just finished my treatment on Yervoy,(ipilimumab)

      Infusion over 90 mins,every 3 weeks for 4 sessions

      I sailed through it

      But unfortunately ended up having chronic diarrhea,had  to go into hospital since twice

      since for rehydration and a course of steroids

      I am still on steroids , reducing  slowly

      Have been told this is the biggest problem

      But we are not all the same,hope this helps

      X

      • July 31, 2013 at 6:19 am
      DEK
      Participant

      Hi

      I have just finished my treatment on Yervoy,(ipilimumab)

      Infusion over 90 mins,every 3 weeks for 4 sessions

      I sailed through it

      But unfortunately ended up having chronic diarrhea,had  to go into hospital since twice

      since for rehydration and a course of steroids

      I am still on steroids , reducing  slowly

      Have been told this is the biggest problem

      But we are not all the same,hope this helps

      X

      • July 31, 2013 at 6:19 am
      DEK
      Participant

      Hi

      I have just finished my treatment on Yervoy,(ipilimumab)

      Infusion over 90 mins,every 3 weeks for 4 sessions

      I sailed through it

      But unfortunately ended up having chronic diarrhea,had  to go into hospital since twice

      since for rehydration and a course of steroids

      I am still on steroids , reducing  slowly

      Have been told this is the biggest problem

      But we are not all the same,hope this helps

      X

      • July 31, 2013 at 6:21 am
      DEK
      Participant

      Hi

      I have just finished my treatment on Yervoy,(ipilimumab)

      Infusion over 90 mins,every 3 weeks for 4 sessions

      I sailed through it

      But unfortunately ended up having chronic diarrhea,had  to go into hospital since twice

      since for rehydration and a course of steroids

      I am still on steroids , reducing  slowly

      Have been told this is the biggest problem

      But we are not all the same,hope this helps

      X

      • July 31, 2013 at 6:21 am
      DEK
      Participant

      Hi

      I have just finished my treatment on Yervoy,(ipilimumab)

      Infusion over 90 mins,every 3 weeks for 4 sessions

      I sailed through it

      But unfortunately ended up having chronic diarrhea,had  to go into hospital since twice

      since for rehydration and a course of steroids

      I am still on steroids , reducing  slowly

      Have been told this is the biggest problem

      But we are not all the same,hope this helps

      X

      • July 31, 2013 at 6:21 am
      DEK
      Participant

      Hi

      I have just finished my treatment on Yervoy,(ipilimumab)

      Infusion over 90 mins,every 3 weeks for 4 sessions

      I sailed through it

      But unfortunately ended up having chronic diarrhea,had  to go into hospital since twice

      since for rehydration and a course of steroids

      I am still on steroids , reducing  slowly

      Have been told this is the biggest problem

      But we are not all the same,hope this helps

      X

      • August 1, 2013 at 2:07 am
      Lori Stoen
      Participant

      Thanks for the info, I am hoping dad can get by without the steriods… Did they use Prednisone ?? That drug made his kidney function drop way way down… And what dose of the Yervoy did you take ?

      • August 1, 2013 at 1:21 pm
      DEK
      Participant

      Yes on prednisolone

      Had to go onto steroids because of the diarrhea

      My bowel became very inflamed

      Can't help you on dose of Yervoy.I just don't know

      Perhaps I should be asking more questions

      But over the last months I have tolerated  it very well

      All my kidney and blood counts have been normal

      I would love to know when the bowel will get back to normal but that could take some time yet.

      My next scan will be end of August

      That ,I hope will let me know if it's been all with while

      But positive thinking, and good look! X

      • August 1, 2013 at 2:07 am
      Lori Stoen
      Participant

      Thanks for the info, I am hoping dad can get by without the steriods… Did they use Prednisone ?? That drug made his kidney function drop way way down… And what dose of the Yervoy did you take ?

      • August 1, 2013 at 2:07 am
      Lori Stoen
      Participant

      Thanks for the info, I am hoping dad can get by without the steriods… Did they use Prednisone ?? That drug made his kidney function drop way way down… And what dose of the Yervoy did you take ?

      • August 1, 2013 at 1:21 pm
      DEK
      Participant

      Yes on prednisolone

      Had to go onto steroids because of the diarrhea

      My bowel became very inflamed

      Can't help you on dose of Yervoy.I just don't know

      Perhaps I should be asking more questions

      But over the last months I have tolerated  it very well

      All my kidney and blood counts have been normal

      I would love to know when the bowel will get back to normal but that could take some time yet.

      My next scan will be end of August

      That ,I hope will let me know if it's been all with while

      But positive thinking, and good look! X

      • August 1, 2013 at 1:21 pm
      DEK
      Participant

      Yes on prednisolone

      Had to go onto steroids because of the diarrhea

      My bowel became very inflamed

      Can't help you on dose of Yervoy.I just don't know

      Perhaps I should be asking more questions

      But over the last months I have tolerated  it very well

      All my kidney and blood counts have been normal

      I would love to know when the bowel will get back to normal but that could take some time yet.

      My next scan will be end of August

      That ,I hope will let me know if it's been all with while

      But positive thinking, and good look! X

Viewing 7 reply threads
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