SEVERE fatigue
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SEVERE fatigue

› Forums › General Melanoma Community › SEVERE fatigue

  • Post
    • May 13, 2013 at 12:22 am
    randallgford
    Participant

    My husband had 15 days of WBR and after a week had 3 SRS treatments for 2 lesions

    near spine/lower back. He lost alot of weight. He also just completed 4 weeks of Zelboraf

    and his blood work has improved dramatically and he had a node sticking out on his neck that

    disappeared. He has tumors on lungs, liver, and abdomen- the doc wants to wait til 8 weeks

    on Zel so he will be scanned again in 4 weeks.

    They have just started weaning him off steriods- he was doing 3 a day, now 2 a day for

    My husband had 15 days of WBR and after a week had 3 SRS treatments for 2 lesions

    near spine/lower back. He lost alot of weight. He also just completed 4 weeks of Zelboraf

    and his blood work has improved dramatically and he had a node sticking out on his neck that

    disappeared. He has tumors on lungs, liver, and abdomen- the doc wants to wait til 8 weeks

    on Zel so he will be scanned again in 4 weeks.

    They have just started weaning him off steriods- he was doing 3 a day, now 2 a day for

    a week, then 1 a day, then 1 every other day then off. The Doc said it is a difficult

    weaning process, fatigue and dizziness, possibly headaches. But he is more fatigued than

    he even was during/after the WBR. He can hardly stand up, but he is not in pain.

    Can the steroid withdrawal really do this? He sleeps constantly and is so weak. Any similar experiences?

    . He has been on the steroids about 2 1/2 mos. Thanks, Vicki

Viewing 2 reply threads
  • Replies
      • May 13, 2013 at 2:22 am
      NYKaren
      Participant
      That terrible fatigue was exactly what I experienced due to adrenal insufficiency caused by steroids. I was diagnosed by an endocrinologist at Sloan. They do very specific blood testing early in the a.m. that I could barely drag myself to, but it was well worth it.
      I had developed colitis from Yervoy and also was on prednisone for a couple of months. Interestingly, the treatment for adrenal insufficiency was hydrocortisone! But it was a fairly short course that immediately tapered.
      Good luck,
      Karen
        • May 13, 2013 at 10:58 am
        randallgford
        Participant

        Thanks much for responding, expecilly on Mothers day, hope you had a happy one.

        That reply was a comfort, did they do anything else or just wait it out?  Thanks and continued good luck

        to you my dear .  Its funndy i usually get irriated because i feel side effects are downplayed but he warned

        us  Thanks, Vicki   oh neverind i see you said hydrocortisone was used. Its early I am not awake yet lol. 

        • May 13, 2013 at 10:58 am
        randallgford
        Participant

        Thanks much for responding, expecilly on Mothers day, hope you had a happy one.

        That reply was a comfort, did they do anything else or just wait it out?  Thanks and continued good luck

        to you my dear .  Its funndy i usually get irriated because i feel side effects are downplayed but he warned

        us  Thanks, Vicki   oh neverind i see you said hydrocortisone was used. Its early I am not awake yet lol. 

        • May 13, 2013 at 10:58 am
        randallgford
        Participant

        Thanks much for responding, expecilly on Mothers day, hope you had a happy one.

        That reply was a comfort, did they do anything else or just wait it out?  Thanks and continued good luck

        to you my dear .  Its funndy i usually get irriated because i feel side effects are downplayed but he warned

        us  Thanks, Vicki   oh neverind i see you said hydrocortisone was used. Its early I am not awake yet lol. 

      • May 13, 2013 at 2:22 am
      NYKaren
      Participant
      That terrible fatigue was exactly what I experienced due to adrenal insufficiency caused by steroids. I was diagnosed by an endocrinologist at Sloan. They do very specific blood testing early in the a.m. that I could barely drag myself to, but it was well worth it.
      I had developed colitis from Yervoy and also was on prednisone for a couple of months. Interestingly, the treatment for adrenal insufficiency was hydrocortisone! But it was a fairly short course that immediately tapered.
      Good luck,
      Karen
      • May 13, 2013 at 2:22 am
      NYKaren
      Participant
      That terrible fatigue was exactly what I experienced due to adrenal insufficiency caused by steroids. I was diagnosed by an endocrinologist at Sloan. They do very specific blood testing early in the a.m. that I could barely drag myself to, but it was well worth it.
      I had developed colitis from Yervoy and also was on prednisone for a couple of months. Interestingly, the treatment for adrenal insufficiency was hydrocortisone! But it was a fairly short course that immediately tapered.
      Good luck,
      Karen
Viewing 2 reply threads
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