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SEVERE fatigue
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SEVERE fatigue

› Forums › General Melanoma Community › SEVERE fatigue

  • Post
    • May 13, 2013 at 12:22 am
    randallgford
    Participant

      My husband had 15 days of WBR and after a week had 3 SRS treatments for 2 lesions

      near spine/lower back. He lost alot of weight. He also just completed 4 weeks of Zelboraf

      and his blood work has improved dramatically and he had a node sticking out on his neck that

      disappeared. He has tumors on lungs, liver, and abdomen- the doc wants to wait til 8 weeks

      on Zel so he will be scanned again in 4 weeks.

      They have just started weaning him off steriods- he was doing 3 a day, now 2 a day for

      My husband had 15 days of WBR and after a week had 3 SRS treatments for 2 lesions

      near spine/lower back. He lost alot of weight. He also just completed 4 weeks of Zelboraf

      and his blood work has improved dramatically and he had a node sticking out on his neck that

      disappeared. He has tumors on lungs, liver, and abdomen- the doc wants to wait til 8 weeks

      on Zel so he will be scanned again in 4 weeks.

      They have just started weaning him off steriods- he was doing 3 a day, now 2 a day for

      a week, then 1 a day, then 1 every other day then off. The Doc said it is a difficult

      weaning process, fatigue and dizziness, possibly headaches. But he is more fatigued than

      he even was during/after the WBR. He can hardly stand up, but he is not in pain.

      Can the steroid withdrawal really do this? He sleeps constantly and is so weak. Any similar experiences?

      . He has been on the steroids about 2 1/2 mos. Thanks, Vicki

    Viewing 2 reply threads
    • Replies
        • May 13, 2013 at 2:22 am
        NYKaren
        Participant
          That terrible fatigue was exactly what I experienced due to adrenal insufficiency caused by steroids. I was diagnosed by an endocrinologist at Sloan. They do very specific blood testing early in the a.m. that I could barely drag myself to, but it was well worth it.
          I had developed colitis from Yervoy and also was on prednisone for a couple of months. Interestingly, the treatment for adrenal insufficiency was hydrocortisone! But it was a fairly short course that immediately tapered.
          Good luck,
          Karen
            • May 13, 2013 at 10:58 am
            randallgford
            Participant

              Thanks much for responding, expecilly on Mothers day, hope you had a happy one.

              That reply was a comfort, did they do anything else or just wait it out?  Thanks and continued good luck

              to you my dear .  Its funndy i usually get irriated because i feel side effects are downplayed but he warned

              us  Thanks, Vicki   oh neverind i see you said hydrocortisone was used. Its early I am not awake yet lol. 

              • May 13, 2013 at 10:58 am
              randallgford
              Participant

                Thanks much for responding, expecilly on Mothers day, hope you had a happy one.

                That reply was a comfort, did they do anything else or just wait it out?  Thanks and continued good luck

                to you my dear .  Its funndy i usually get irriated because i feel side effects are downplayed but he warned

                us  Thanks, Vicki   oh neverind i see you said hydrocortisone was used. Its early I am not awake yet lol. 

                • May 13, 2013 at 10:58 am
                randallgford
                Participant

                  Thanks much for responding, expecilly on Mothers day, hope you had a happy one.

                  That reply was a comfort, did they do anything else or just wait it out?  Thanks and continued good luck

                  to you my dear .  Its funndy i usually get irriated because i feel side effects are downplayed but he warned

                  us  Thanks, Vicki   oh neverind i see you said hydrocortisone was used. Its early I am not awake yet lol. 

                • May 13, 2013 at 2:22 am
                NYKaren
                Participant
                  That terrible fatigue was exactly what I experienced due to adrenal insufficiency caused by steroids. I was diagnosed by an endocrinologist at Sloan. They do very specific blood testing early in the a.m. that I could barely drag myself to, but it was well worth it.
                  I had developed colitis from Yervoy and also was on prednisone for a couple of months. Interestingly, the treatment for adrenal insufficiency was hydrocortisone! But it was a fairly short course that immediately tapered.
                  Good luck,
                  Karen
                  • May 13, 2013 at 2:22 am
                  NYKaren
                  Participant
                    That terrible fatigue was exactly what I experienced due to adrenal insufficiency caused by steroids. I was diagnosed by an endocrinologist at Sloan. They do very specific blood testing early in the a.m. that I could barely drag myself to, but it was well worth it.
                    I had developed colitis from Yervoy and also was on prednisone for a couple of months. Interestingly, the treatment for adrenal insufficiency was hydrocortisone! But it was a fairly short course that immediately tapered.
                    Good luck,
                    Karen
                Viewing 2 reply threads
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