Update on my husband
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Update on my husband

› Forums › General Melanoma Community › Update on my husband

  • Post
    • July 7, 2012 at 12:16 pm
    justlittleoleme
    Participant
    Well, because of the high steroids due to reaction to ipi, he is now dealing with aspergillious. He has fungal balls in the upper lobes of his lungs. He had a heimlich tube put in after the lung collapsed after his bronchoscopy. Week later, two chest tubes after a failed vats procedure. He currently still has two chest tubes. He is on IV anti fungal medicine voriconazole. I administer it at home. Oh yeah, forgot that at Tuesdays doctor appointment, picc line was put in.
    Infectious disease doctor said this treatment takes a year. I would love to be dealing with this in a year, not reality for us. I believe we are rounding third base heading for home.
    All in all, liver seems to have recovered from the ipi and we are still lowering the steroids. We started at 360mg of methylprednisolone. Now we are at 112mg!
    His pain is being managed by mscontin and dilaudid. He sleeps a lot during the day, not so much at night. Pain management doctor is adding a stimulant during the day to try and keep him up during the day so he sleeps at night.
    I am no longer working. He can’t really be alone. Medications have him pretty woozy.
    We seem to have moved from living to waiting to die. Not a good place to be.
Viewing 11 reply threads
  • Replies
      • July 7, 2012 at 9:10 pm
      awillett1991
      Participant
      My heart goes out to you. Mel got my father, then I was diagnosed a month later, currently stage 4. It is a horrible, horrible disease.. Try to take care of yourself and maybe someone can help out to give you a break. I will say a prayer for you both to have peace in your days.
      • July 7, 2012 at 9:10 pm
      awillett1991
      Participant
      My heart goes out to you. Mel got my father, then I was diagnosed a month later, currently stage 4. It is a horrible, horrible disease.. Try to take care of yourself and maybe someone can help out to give you a break. I will say a prayer for you both to have peace in your days.
      • July 7, 2012 at 9:10 pm
      awillett1991
      Participant
      My heart goes out to you. Mel got my father, then I was diagnosed a month later, currently stage 4. It is a horrible, horrible disease.. Try to take care of yourself and maybe someone can help out to give you a break. I will say a prayer for you both to have peace in your days.
      • July 7, 2012 at 10:18 pm
      s Mom
      Participant

      I am so sad to hear this – I HATE this disease.  

      Bridgette (Jeff's Mom)

      • July 7, 2012 at 10:18 pm
      s Mom
      Participant

      I am so sad to hear this – I HATE this disease.  

      Bridgette (Jeff's Mom)

      • July 7, 2012 at 10:18 pm
      s Mom
      Participant

      I am so sad to hear this – I HATE this disease.  

      Bridgette (Jeff's Mom)

      • July 8, 2012 at 1:19 pm
      susanr
      Participant

      I am so sorry…prayers to you and your husband.  Wish I could say or do something to help you.

      Please keep us posted and use this forum for help……..

      • July 8, 2012 at 1:19 pm
      susanr
      Participant

      I am so sorry…prayers to you and your husband.  Wish I could say or do something to help you.

      Please keep us posted and use this forum for help……..

      • July 8, 2012 at 1:19 pm
      susanr
      Participant

      I am so sorry…prayers to you and your husband.  Wish I could say or do something to help you.

      Please keep us posted and use this forum for help……..

      • July 8, 2012 at 6:32 pm
      H555
      Participant

      like all the others i'm so sorry to hear this. someone needs to find a cure for this ugly disease. i'll add you both to my prayers.

      • July 8, 2012 at 6:32 pm
      H555
      Participant

      like all the others i'm so sorry to hear this. someone needs to find a cure for this ugly disease. i'll add you both to my prayers.

        • July 13, 2012 at 4:04 pm
        Snickers60
        Participant

        Breaks my heart to read your post !   So very, very sorry !   Wish I could bring you a meal – give you a hug – 

        or just sit and weep with you.    WAITING may be one of the worst parts of this disease, no matter what you are 

        waiting for.    MY PRAYERS AND THOUGHTS ARE WITH YOU !    THE LORD STRENGTHEN YOU TO FACE 

        These CRUEL, CRUEL Days !     🙁    (((((((((HUGS)))))))))

         

        • July 13, 2012 at 4:04 pm
        Snickers60
        Participant

        Breaks my heart to read your post !   So very, very sorry !   Wish I could bring you a meal – give you a hug – 

        or just sit and weep with you.    WAITING may be one of the worst parts of this disease, no matter what you are 

        waiting for.    MY PRAYERS AND THOUGHTS ARE WITH YOU !    THE LORD STRENGTHEN YOU TO FACE 

        These CRUEL, CRUEL Days !     🙁    (((((((((HUGS)))))))))

         

        • July 13, 2012 at 4:04 pm
        Snickers60
        Participant

        Breaks my heart to read your post !   So very, very sorry !   Wish I could bring you a meal – give you a hug – 

        or just sit and weep with you.    WAITING may be one of the worst parts of this disease, no matter what you are 

        waiting for.    MY PRAYERS AND THOUGHTS ARE WITH YOU !    THE LORD STRENGTHEN YOU TO FACE 

        These CRUEL, CRUEL Days !     🙁    (((((((((HUGS)))))))))

         

      • July 8, 2012 at 6:32 pm
      H555
      Participant

      like all the others i'm so sorry to hear this. someone needs to find a cure for this ugly disease. i'll add you both to my prayers.

Viewing 11 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.