Update – we’re calling it.
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Update – we’re calling it.

› Forums › General Melanoma Community › Update – we’re calling it.

  • Post
    • January 8, 2012 at 6:24 pm
    emilypen
    Participant

    Hi All,

    After  over 3 years of fighting this dreadful disease it's finally won the battle.

    Last Saturday Jason lost any feeling in his legs suddenly and after being rushed to the ER we discovered through MRI that a tumour in his spine has compressed his cord beyond repair. With all the previous surgery and radiation there is nothing more they can do.

    4 clinical trials, 2 rounds of chemo cocktails and a lot of radiation to his spine and brain and we're done.

    Strangely he said, it's a relief to finally know what comes next.

    Hi All,

    After  over 3 years of fighting this dreadful disease it's finally won the battle.

    Last Saturday Jason lost any feeling in his legs suddenly and after being rushed to the ER we discovered through MRI that a tumour in his spine has compressed his cord beyond repair. With all the previous surgery and radiation there is nothing more they can do.

    4 clinical trials, 2 rounds of chemo cocktails and a lot of radiation to his spine and brain and we're done.

    Strangely he said, it's a relief to finally know what comes next.

    My doctors are going to try and deliver our baby 3 weeks early ( first week of Feb) so he will hopefully have some time with him before he dies.

    We're home now with great hospice care and spending some time together.

    thanks for al your support over the last few years, keep up the fight. I truly believe that this disease will be cured sooner than we think.

     

    Emily

Viewing 32 reply threads
  • Replies
      • January 8, 2012 at 7:10 pm
      washoegal
      Participant

      Emily,

      My heart goes out to you and Jason and hopefully soon your new baby.  So much to deal with.  Take care of yourself and may Jason have a relative pain free passage.

      Mary

      Stage 3

      • January 8, 2012 at 7:10 pm
      washoegal
      Participant

      Emily,

      My heart goes out to you and Jason and hopefully soon your new baby.  So much to deal with.  Take care of yourself and may Jason have a relative pain free passage.

      Mary

      Stage 3

      • January 8, 2012 at 7:10 pm
      washoegal
      Participant

      Emily,

      My heart goes out to you and Jason and hopefully soon your new baby.  So much to deal with.  Take care of yourself and may Jason have a relative pain free passage.

      Mary

      Stage 3

      • January 8, 2012 at 7:22 pm
      lhaley
      Participant

      Emily,

      I'm sorry it has come to this point but I do understand how much Mike has gone through.  I do hope that he is out of pain and gets to spend some time with the baby.  You have so many emotional issues to deal right now. Take care of yourself also.

      Let hospice as much as you can.

      Linda

      • January 8, 2012 at 7:22 pm
      lhaley
      Participant

      Emily,

      I'm sorry it has come to this point but I do understand how much Mike has gone through.  I do hope that he is out of pain and gets to spend some time with the baby.  You have so many emotional issues to deal right now. Take care of yourself also.

      Let hospice as much as you can.

      Linda

      • January 8, 2012 at 7:22 pm
      lhaley
      Participant

      Emily,

      I'm sorry it has come to this point but I do understand how much Mike has gone through.  I do hope that he is out of pain and gets to spend some time with the baby.  You have so many emotional issues to deal right now. Take care of yourself also.

      Let hospice as much as you can.

      Linda

        • January 8, 2012 at 7:31 pm
        lhaley
        Participant

        After I sent this message I realized I put down the wrong name, I'm sorry of not using Jason's name.  Then it sent several message and have had a difficult time for this to go through.  Dealing with my brain edema has made a few things more difficult.

        Linda

        • January 8, 2012 at 7:31 pm
        lhaley
        Participant

        After I sent this message I realized I put down the wrong name, I'm sorry of not using Jason's name.  Then it sent several message and have had a difficult time for this to go through.  Dealing with my brain edema has made a few things more difficult.

        Linda

        • January 8, 2012 at 7:31 pm
        lhaley
        Participant

        After I sent this message I realized I put down the wrong name, I'm sorry of not using Jason's name.  Then it sent several message and have had a difficult time for this to go through.  Dealing with my brain edema has made a few things more difficult.

        Linda

      • January 8, 2012 at 8:07 pm
      Phil S
      Participant
      Emily, I hope that Jason is without pain and that hospice helps you keep him comfortable along the way. Please take care of yourself, you have to be tired after all these months of battle. I hope the baby comes soon, and is happy and healthy, and fills your time with joyous moments. Jason will truly live on in your son! May Jason have a peaceful next step in his battle, God Bless You Both, Valerie (Phil’s wife)
      • January 8, 2012 at 8:07 pm
      Phil S
      Participant
      Emily, I hope that Jason is without pain and that hospice helps you keep him comfortable along the way. Please take care of yourself, you have to be tired after all these months of battle. I hope the baby comes soon, and is happy and healthy, and fills your time with joyous moments. Jason will truly live on in your son! May Jason have a peaceful next step in his battle, God Bless You Both, Valerie (Phil’s wife)
      • January 8, 2012 at 8:07 pm
      Phil S
      Participant
      Emily, I hope that Jason is without pain and that hospice helps you keep him comfortable along the way. Please take care of yourself, you have to be tired after all these months of battle. I hope the baby comes soon, and is happy and healthy, and fills your time with joyous moments. Jason will truly live on in your son! May Jason have a peaceful next step in his battle, God Bless You Both, Valerie (Phil’s wife)
      • January 8, 2012 at 8:25 pm
      hope4cure1
      Participant

      Emily, I admire your and Jason's strength and love for each other. Your baby will be the most wonderful gift to you both, as you are to your baby. It sounds like hospice is providing you with good supportive care.  I will hold you in my thoughts and prayers as you spend some very special time together.

      Hope

        • January 8, 2012 at 11:23 pm
        NYKaren
        Participant

        Emily, please know that my thoughts are with you and Jason.

        karen

        • January 8, 2012 at 11:23 pm
        NYKaren
        Participant

        Emily, please know that my thoughts are with you and Jason.

        karen

        • January 8, 2012 at 11:23 pm
        NYKaren
        Participant

        Emily, please know that my thoughts are with you and Jason.

        karen

      • January 8, 2012 at 8:25 pm
      hope4cure1
      Participant

      Emily, I admire your and Jason's strength and love for each other. Your baby will be the most wonderful gift to you both, as you are to your baby. It sounds like hospice is providing you with good supportive care.  I will hold you in my thoughts and prayers as you spend some very special time together.

      Hope

      • January 8, 2012 at 8:25 pm
      hope4cure1
      Participant

      Emily, I admire your and Jason's strength and love for each other. Your baby will be the most wonderful gift to you both, as you are to your baby. It sounds like hospice is providing you with good supportive care.  I will hold you in my thoughts and prayers as you spend some very special time together.

      Hope

      • January 8, 2012 at 11:57 pm
      justlittleoleme
      Participant
      Emily, may God be with you and Jason during this difficult journey. I pray for a beautiful birth and that Jason is with you for all of this. You will be in my prayers.
      • January 8, 2012 at 11:57 pm
      justlittleoleme
      Participant
      Emily, may God be with you and Jason during this difficult journey. I pray for a beautiful birth and that Jason is with you for all of this. You will be in my prayers.
      • January 8, 2012 at 11:57 pm
      justlittleoleme
      Participant
      Emily, may God be with you and Jason during this difficult journey. I pray for a beautiful birth and that Jason is with you for all of this. You will be in my prayers.
      • January 9, 2012 at 12:37 am
      Lori C
      Participant

      Emily, it's an extraordinarily difficult thing and you have both fought a tremendous fight.  Prayers to all your family for comfort, peace, and strength.

       

      Lori

      • January 9, 2012 at 12:37 am
      Lori C
      Participant

      Emily, it's an extraordinarily difficult thing and you have both fought a tremendous fight.  Prayers to all your family for comfort, peace, and strength.

       

      Lori

      • January 9, 2012 at 12:37 am
      Lori C
      Participant

      Emily, it's an extraordinarily difficult thing and you have both fought a tremendous fight.  Prayers to all your family for comfort, peace, and strength.

       

      Lori

      • January 9, 2012 at 1:22 am
      glewis923
      Participant

      Dear Emily & Jason-  Our thoughts and prayers are with you…..and Congradulations in advance on your upcoming Baby !!!

      • January 9, 2012 at 1:22 am
      glewis923
      Participant

      Dear Emily & Jason-  Our thoughts and prayers are with you…..and Congradulations in advance on your upcoming Baby !!!

      • January 9, 2012 at 1:22 am
      glewis923
      Participant

      Dear Emily & Jason-  Our thoughts and prayers are with you…..and Congradulations in advance on your upcoming Baby !!!

      • January 9, 2012 at 4:15 am
      MaryD
      Participant

      Emily,

      I will keep all of you in my prayers during this very difficult time.  I hope that you and Jason are able to have some precious and joyful time with your new baby and that  Jason experiences a peaceful and pain free journey.

      Mary

      • January 9, 2012 at 4:15 am
      MaryD
      Participant

      Emily,

      I will keep all of you in my prayers during this very difficult time.  I hope that you and Jason are able to have some precious and joyful time with your new baby and that  Jason experiences a peaceful and pain free journey.

      Mary

      • January 9, 2012 at 4:15 am
      MaryD
      Participant

      Emily,

      I will keep all of you in my prayers during this very difficult time.  I hope that you and Jason are able to have some precious and joyful time with your new baby and that  Jason experiences a peaceful and pain free journey.

      Mary

      • January 9, 2012 at 8:53 am
      FormerCaregiver
      Participant

      Emily, I am saddened to read this. I can truly understand what Jason means by what he has said re that it's a relief to finally know what comes next.

      Remember that you are not alone, so please let us know if there is anything that the people here can help you with.

      You are in my thoughts and prayers.

      Frank from Australia

      • January 9, 2012 at 8:53 am
      FormerCaregiver
      Participant

      Emily, I am saddened to read this. I can truly understand what Jason means by what he has said re that it's a relief to finally know what comes next.

      Remember that you are not alone, so please let us know if there is anything that the people here can help you with.

      You are in my thoughts and prayers.

      Frank from Australia

      • January 9, 2012 at 8:53 am
      FormerCaregiver
      Participant

      Emily, I am saddened to read this. I can truly understand what Jason means by what he has said re that it's a relief to finally know what comes next.

      Remember that you are not alone, so please let us know if there is anything that the people here can help you with.

      You are in my thoughts and prayers.

      Frank from Australia

      • January 9, 2012 at 12:24 pm
      Kelli100299
      Participant

      Emily…I am new to this forum and sadden to read this about Jason. Know that you both are an inspiration and best wishes to you new addition.

      • January 9, 2012 at 12:24 pm
      Kelli100299
      Participant

      Emily…I am new to this forum and sadden to read this about Jason. Know that you both are an inspiration and best wishes to you new addition.

      • January 9, 2012 at 12:24 pm
      Kelli100299
      Participant

      Emily…I am new to this forum and sadden to read this about Jason. Know that you both are an inspiration and best wishes to you new addition.

      • January 9, 2012 at 3:53 pm
      Lauri England
      Participant

      I am very saddened for you.  Prayers are going out to you now.  I do pray that Jason gets some time with your new family addition.  How precious that would be.  Stay strong and know you are not alone. 

      • January 9, 2012 at 3:53 pm
      Lauri England
      Participant

      I am very saddened for you.  Prayers are going out to you now.  I do pray that Jason gets some time with your new family addition.  How precious that would be.  Stay strong and know you are not alone. 

        • January 10, 2012 at 4:32 am
        deardad
        Participant

        Dear Emily,

        I'm so very sad to hear your news, I am thinking of you and Jason as you face this. 

        Nahmi from Melbourne

        • January 10, 2012 at 4:32 am
        deardad
        Participant

        Dear Emily,

        I'm so very sad to hear your news, I am thinking of you and Jason as you face this. 

        Nahmi from Melbourne

        • January 10, 2012 at 4:32 am
        deardad
        Participant

        Dear Emily,

        I'm so very sad to hear your news, I am thinking of you and Jason as you face this. 

        Nahmi from Melbourne

      • January 9, 2012 at 3:53 pm
      Lauri England
      Participant

      I am very saddened for you.  Prayers are going out to you now.  I do pray that Jason gets some time with your new family addition.  How precious that would be.  Stay strong and know you are not alone. 

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