I had my appointment today with my Dr and went over my CT scans. As mentioned before, I had the majority of my nodules shrink – by 50%!! He said this is incredibly successful and in his trial, I'm the first patient with the fastest decrease. I had 2 nodules that grew a little bit, so instead of waiting 12 weeks, he's going to scan me in another 4 weeks to see how they look.
I had my appointment today with my Dr and went over my CT scans. As mentioned before, I had the majority of my nodules shrink – by 50%!! He said this is incredibly successful and in his trial, I'm the first patient with the fastest decrease. I had 2 nodules that grew a little bit, so instead of waiting 12 weeks, he's going to scan me in another 4 weeks to see how they look.
Now for the brain lesion they found. It's 2cm, but I have absolutely no symptoms and my neurological tests were perfect. I have a bran MRI tomorrow so they can look more closey at it as they don't really know what it is. My dr. said it' doesn't look like a typical melanoma – it has no blood vessels and it's very clean looking. He said he suspects melanoma cause what else could it be, but they're double checking everything since it's very unique. It's deep in the left side of my brain and I'm a great candidate for gamma knife. I know this really sucks, but he's actually never seen anything like this before and has a group of people waiting for the MRI to review what's next. He said I could be lucky to have this 1 lesion removed next week and not have it come back anytime soon and hopefully the ipi will take care of any microscopic cells. Another good thing is that the cancer has not spread anywhere else, so even though it's probably in my brain, it's nowhere else and I'm a responder to ipi!
Getting the brain MRI is a little nervewracking as it looks more closely at things, but he's pretty confident there is just 1. He said he believes it's not very agressive because it has no bleeding, vessel and I have no symptoms. My hope is that this is a miracle and is benign or it's just 1 that comes out next week!
Lisa
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