Just a few words before my news tomorrow
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Just a few words before my news tomorrow

› Forums › General Melanoma Community › Just a few words before my news tomorrow

  • Post
    • November 1, 2011 at 12:58 pm
    Lisa13
    Participant

    My scans were yesterday and results tomorrow after Yervoy treatment.  I'm incredibly nervous, but I also remain quite hopeful.  I've had a great few days – celebrated my daughter's 2nd birthday, went trick or treating with her and also went for a jog and felt wonderful. I was diagnosed 6 months with Stage 4 in my lungs and here I am jogging without feeling anything.

    The fact that I feel pretty darn good has to say something, so I truly hope that all my wishes and prayers get me some good news tomorrow.

    Lisa

    My scans were yesterday and results tomorrow after Yervoy treatment.  I'm incredibly nervous, but I also remain quite hopeful.  I've had a great few days – celebrated my daughter's 2nd birthday, went trick or treating with her and also went for a jog and felt wonderful. I was diagnosed 6 months with Stage 4 in my lungs and here I am jogging without feeling anything.

    The fact that I feel pretty darn good has to say something, so I truly hope that all my wishes and prayers get me some good news tomorrow.

    Lisa

Viewing 23 reply threads
  • Replies
      • November 1, 2011 at 1:50 pm
      fenny
      Participant

      Wow, my sister is also in Stage IV with pulmonary metastasis, dianosed this August.  Really wanna know how IPI is going on with you. And did you ever hear of Anti-Pd1 or the clinical trila "pazaponib"? We're Chinese and too bad that very few doctors in China specialize in Melanoma. Really wanna keep up with the latest development in melanoma drugs in USA. Keep us informed. Thanks.

      • November 1, 2011 at 1:50 pm
      fenny
      Participant

      Wow, my sister is also in Stage IV with pulmonary metastasis, dianosed this August.  Really wanna know how IPI is going on with you. And did you ever hear of Anti-Pd1 or the clinical trila "pazaponib"? We're Chinese and too bad that very few doctors in China specialize in Melanoma. Really wanna keep up with the latest development in melanoma drugs in USA. Keep us informed. Thanks.

      • November 1, 2011 at 1:50 pm
      fenny
      Participant

      Wow, my sister is also in Stage IV with pulmonary metastasis, dianosed this August.  Really wanna know how IPI is going on with you. And did you ever hear of Anti-Pd1 or the clinical trila "pazaponib"? We're Chinese and too bad that very few doctors in China specialize in Melanoma. Really wanna keep up with the latest development in melanoma drugs in USA. Keep us informed. Thanks.

      • November 1, 2011 at 1:50 pm
      fenny
      Participant

      Wow, my sister is also in Stage IV with pulmonary metastasis, dianosed this August.  Really wanna know how IPI is going on with you. And did you ever hear of Anti-Pd1 or the clinical trila "pazaponib"? We're Chinese and too bad that very few doctors in China specialize in Melanoma. Really wanna keep up with the latest development in melanoma drugs in USA. Keep us informed. Thanks.

      • November 1, 2011 at 1:50 pm
      fenny
      Participant

      Wow, my sister is also in Stage IV with pulmonary metastasis, dianosed this August.  Really wanna know how IPI is going on with you. And did you ever hear of Anti-Pd1 or the clinical trila "pazaponib"? We're Chinese and too bad that very few doctors in China specialize in Melanoma. Really wanna keep up with the latest development in melanoma drugs in USA. Keep us informed. Thanks.

      • November 1, 2011 at 1:50 pm
      fenny
      Participant

      Wow, my sister is also in Stage IV with pulmonary metastasis, dianosed this August.  Really wanna know how IPI is going on with you. And did you ever hear of Anti-Pd1 or the clinical trila "pazaponib"? We're Chinese and too bad that very few doctors in China specialize in Melanoma. Really wanna keep up with the latest development in melanoma drugs in USA. Keep us informed. Thanks.

      • November 1, 2011 at 1:50 pm
      fenny
      Participant

      Wow, my sister is also in Stage IV with pulmonary metastasis, dianosed this August.  Really wanna know how IPI is going on with you. And did you ever hear of Anti-Pd1 or the clinical trila "pazaponib"? We're Chinese and too bad that very few doctors in China specialize in Melanoma. Really wanna keep up with the latest development in melanoma drugs in USA. Keep us informed. Thanks.

      • November 1, 2011 at 1:50 pm
      fenny
      Participant

      Wow, my sister is also in Stage IV with pulmonary metastasis, dianosed this August.  Really wanna know how IPI is going on with you. And did you ever hear of Anti-Pd1 or the clinical trila "pazaponib"? We're Chinese and too bad that very few doctors in China specialize in Melanoma. Really wanna keep up with the latest development in melanoma drugs in USA. Keep us informed. Thanks.

      • November 1, 2011 at 1:50 pm
      fenny
      Participant

      Wow, my sister is also in Stage IV with pulmonary metastasis, dianosed this August.  Really wanna know how IPI is going on with you. And did you ever hear of Anti-Pd1 or the clinical trila "pazaponib"? We're Chinese and too bad that very few doctors in China specialize in Melanoma. Really wanna keep up with the latest development in melanoma drugs in USA. Keep us informed. Thanks.

      • November 1, 2011 at 1:52 pm
      Lauri England
      Participant

      My prayers are with you Lisa.  It is so good to hear you had some great times with your little one.  Best of luck to you!!

        • November 1, 2011 at 2:15 pm
        NYKaren
        Participant

        Hi Lisa,

        Here's hoping we both have good news this week–(I just had all my scans; Drs. appt is Thursday afternoon.)

        So glad you went trick or treat-ing!

        karen

        • November 1, 2011 at 2:19 pm
        Lisa13
        Participant

        Hi Karen,

        I'm sending all my wishes and prayers to you and hope IL-2 is working it's magic on you.

        Lisa

        • November 1, 2011 at 7:15 pm
        NYKaren
        Participant

        Good news for BOTH of us and all the great people on this board!

        • November 1, 2011 at 7:15 pm
        NYKaren
        Participant

        Good news for BOTH of us and all the great people on this board!

        • November 1, 2011 at 7:15 pm
        NYKaren
        Participant

        Good news for BOTH of us and all the great people on this board!

        • November 1, 2011 at 2:19 pm
        Lisa13
        Participant

        Hi Karen,

        I'm sending all my wishes and prayers to you and hope IL-2 is working it's magic on you.

        Lisa

        • November 1, 2011 at 2:19 pm
        Lisa13
        Participant

        Hi Karen,

        I'm sending all my wishes and prayers to you and hope IL-2 is working it's magic on you.

        Lisa

        • November 1, 2011 at 2:15 pm
        NYKaren
        Participant

        Hi Lisa,

        Here's hoping we both have good news this week–(I just had all my scans; Drs. appt is Thursday afternoon.)

        So glad you went trick or treat-ing!

        karen

        • November 1, 2011 at 2:15 pm
        NYKaren
        Participant

        Hi Lisa,

        Here's hoping we both have good news this week–(I just had all my scans; Drs. appt is Thursday afternoon.)

        So glad you went trick or treat-ing!

        karen

        • November 1, 2011 at 2:17 pm
        Lisa13
        Participant

        Hi Fenny,

        I'm really sorry to hear about your sister advancing to Stage 4.  I know your sister and your family are probably scared, but there are a few more options for melanoma now that wern't available even a year ago.

        I have heard good things about the Anit-PD1 clinical trial, but this trial is not available once you've done ipi (or not right away).   I chose ipi over IL-2 because my lung nodules were small (all under 1cm, except for one was 1.2cm). ipi needs time to work and I knew I had time to see if it did work. If this doesn't work for me (and I have to believe it will), then at least I'm healthy enough to do IL-2 or other trials. 

        I'm sure being Chinese, there arn't alot of melanoma Dr's – obviously because this may be rare in your Country. However, if your sister can enter a clinical trial for ipi or Anti-PD1, then it's great to start something right away. 

        Best of luck to your sister!

        Lisa

        • November 1, 2011 at 2:17 pm
        Lisa13
        Participant

        Hi Fenny,

        I'm really sorry to hear about your sister advancing to Stage 4.  I know your sister and your family are probably scared, but there are a few more options for melanoma now that wern't available even a year ago.

        I have heard good things about the Anit-PD1 clinical trial, but this trial is not available once you've done ipi (or not right away).   I chose ipi over IL-2 because my lung nodules were small (all under 1cm, except for one was 1.2cm). ipi needs time to work and I knew I had time to see if it did work. If this doesn't work for me (and I have to believe it will), then at least I'm healthy enough to do IL-2 or other trials. 

        I'm sure being Chinese, there arn't alot of melanoma Dr's – obviously because this may be rare in your Country. However, if your sister can enter a clinical trial for ipi or Anti-PD1, then it's great to start something right away. 

        Best of luck to your sister!

        Lisa

        • November 1, 2011 at 2:17 pm
        Lisa13
        Participant

        Hi Fenny,

        I'm really sorry to hear about your sister advancing to Stage 4.  I know your sister and your family are probably scared, but there are a few more options for melanoma now that wern't available even a year ago.

        I have heard good things about the Anit-PD1 clinical trial, but this trial is not available once you've done ipi (or not right away).   I chose ipi over IL-2 because my lung nodules were small (all under 1cm, except for one was 1.2cm). ipi needs time to work and I knew I had time to see if it did work. If this doesn't work for me (and I have to believe it will), then at least I'm healthy enough to do IL-2 or other trials. 

        I'm sure being Chinese, there arn't alot of melanoma Dr's – obviously because this may be rare in your Country. However, if your sister can enter a clinical trial for ipi or Anti-PD1, then it's great to start something right away. 

        Best of luck to your sister!

        Lisa

      • November 1, 2011 at 1:52 pm
      Lauri England
      Participant

      My prayers are with you Lisa.  It is so good to hear you had some great times with your little one.  Best of luck to you!!

      • November 1, 2011 at 1:52 pm
      Lauri England
      Participant

      My prayers are with you Lisa.  It is so good to hear you had some great times with your little one.  Best of luck to you!!

      • November 1, 2011 at 5:58 pm
      mombase
      Participant

      Awesome, Lisa!! You make me want to go out and jog, too! (JK!!!) I pray that your scans show great progress. Aren't the lungs an amazing organ??

      Cristy, Stage IV

      • November 1, 2011 at 5:58 pm
      mombase
      Participant

      Awesome, Lisa!! You make me want to go out and jog, too! (JK!!!) I pray that your scans show great progress. Aren't the lungs an amazing organ??

      Cristy, Stage IV

      • November 1, 2011 at 5:58 pm
      mombase
      Participant

      Awesome, Lisa!! You make me want to go out and jog, too! (JK!!!) I pray that your scans show great progress. Aren't the lungs an amazing organ??

      Cristy, Stage IV

      • November 1, 2011 at 7:16 pm
      cwu
      Participant

      Hi Lisa,

      Keep your spirits and hopes up and hope you have positive news tomorrow!

      Chau

      • November 1, 2011 at 7:16 pm
      cwu
      Participant

      Hi Lisa,

      Keep your spirits and hopes up and hope you have positive news tomorrow!

      Chau

      • November 1, 2011 at 7:16 pm
      cwu
      Participant

      Hi Lisa,

      Keep your spirits and hopes up and hope you have positive news tomorrow!

      Chau

      • November 1, 2011 at 7:23 pm
      momof2kids
      Participant

      Good luck with the results Lisa, I really hope the first scans show good results.

       

      I'm extremely nervous about my last infusion this Friday, and then my scans 🙁

      • November 1, 2011 at 7:23 pm
      momof2kids
      Participant

      Good luck with the results Lisa, I really hope the first scans show good results.

       

      I'm extremely nervous about my last infusion this Friday, and then my scans 🙁

      • November 1, 2011 at 7:23 pm
      momof2kids
      Participant

      Good luck with the results Lisa, I really hope the first scans show good results.

       

      I'm extremely nervous about my last infusion this Friday, and then my scans 🙁

      • November 1, 2011 at 7:42 pm
      willtolive
      Participant

      Good luck tomorrow Lisa, we all know the feeling of deep anxiety from the scans is taken to the results is told. To get you cheered up a little bit mayby: My wife, aged 39, had about 15 mets in her lungs, the biggest 36 mm and active. Ipilimumab took care of most of them. Now only 4-5 remaining, not active, all of them most likely necrotic tissue according to our doctor. Ipilimumab is a miracle, I hope for you too 🙂

       

      • November 1, 2011 at 7:42 pm
      willtolive
      Participant

      Good luck tomorrow Lisa, we all know the feeling of deep anxiety from the scans is taken to the results is told. To get you cheered up a little bit mayby: My wife, aged 39, had about 15 mets in her lungs, the biggest 36 mm and active. Ipilimumab took care of most of them. Now only 4-5 remaining, not active, all of them most likely necrotic tissue according to our doctor. Ipilimumab is a miracle, I hope for you too 🙂

       

      • November 1, 2011 at 7:42 pm
      willtolive
      Participant

      Good luck tomorrow Lisa, we all know the feeling of deep anxiety from the scans is taken to the results is told. To get you cheered up a little bit mayby: My wife, aged 39, had about 15 mets in her lungs, the biggest 36 mm and active. Ipilimumab took care of most of them. Now only 4-5 remaining, not active, all of them most likely necrotic tissue according to our doctor. Ipilimumab is a miracle, I hope for you too 🙂

       

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