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IPI/Yervoy Saved my Life – Clear scans for 3.5 years !!!

Forums General Melanoma Community IPI/Yervoy Saved my Life – Clear scans for 3.5 years !!!

  • Post
    trojansurvivor
    Participant

    I was originally diagnosed with stage 4 about 8.5 years ago, with tumors in my liver, spine, liver and spleen.  I went through biochemo and miraculously went into remission for a year, but had a maintenance program for a year of high dose interleukin-2 once a month.

    I was originally diagnosed with stage 4 about 8.5 years ago, with tumors in my liver, spine, liver and spleen.  I went through biochemo and miraculously went into remission for a year, but had a maintenance program for a year of high dose interleukin-2 once a month. After about a year in remission, I started to get tumors in my soft tissue in my groin and leg.  After about 4 or 5 surgeries to remove the tumors, over the next year, I had six tumors in my thigh and groin area appear.   I was one of the early ipi trial participants over 6 years ago.  I had 4 infusions 6.5 years ago and then another 4 two years later.  My side effects were primarily a rash on my abdomen and the back of my legs, and some fatique. 

    4 of my tumors shrank fairly quickly, and then disappeared within a year but one started growing a year after my second infusion and had to be surgically removed.  My last tumor then disappeared shortly after my surgery, and I have had clear scans for the last 3.5 years. I have also not had any new tumors appear since I started the IPI trial.

    IPI has saved my life !!!! 

Viewing 11 reply threads
  • Replies
      triciad
      Participant

      Congratulations!  It's wonderful to hear good news.  May you have continued success and happiness!!!!

      Tricia

      triciad
      Participant

      Congratulations!  It's wonderful to hear good news.  May you have continued success and happiness!!!!

      Tricia

      Donna M.
      Participant

      Congratulations!  Awesome news.

      Donna M.
      Participant

      Congratulations!  Awesome news.

        Lisa13
        Participant

        Congrats!  I'm so very happy for you.  It's great to hear of success stories with this drug – especially a Stage 4. I'm on my 3rd ipi treatment next week and hope I can have the same luck as you.

        You give us all hope.

        Lisa – Stage 4 lung mets

        Lisa13
        Participant

        Congrats!  I'm so very happy for you.  It's great to hear of success stories with this drug – especially a Stage 4. I'm on my 3rd ipi treatment next week and hope I can have the same luck as you.

        You give us all hope.

        Lisa – Stage 4 lung mets

      JuleFL
      Participant
      Wow! That is fantastic news. You have been through so much, enjoy your NED life.

      Jule

      JuleFL
      Participant
      Wow! That is fantastic news. You have been through so much, enjoy your NED life.

      Jule

      JerryfromFauq
      Participant

      Hope to hear a yearly repeat of this for many more years!

      JerryfromFauq
      Participant

      Hope to hear a yearly repeat of this for many more years!

      washoegal
      Participant

      Congratulations, I agree please keep these posts up.  We get enough-such and such failed now what- success of others is really good medicine.

      washoegal
      Participant

      Congratulations, I agree please keep these posts up.  We get enough-such and such failed now what- success of others is really good medicine.

      mclaus23
      Participant

      This is so great to hear! I will be praying for your scans to continue to be clear!

       

      Maggie

      mclaus23
      Participant

      This is so great to hear! I will be praying for your scans to continue to be clear!

       

      Maggie

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