Very thankful-now hopeful.
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Very thankful-now hopeful.

› Forums › General Melanoma Community › Very thankful-now hopeful.

  • Post
    • August 25, 2011 at 12:38 am
    glewis923
    Participant

    After i completed 7 SRS (Novalis TS) and WBR  4 mths. ago, then Yervoy i finished in mid-May;  I'M ALIVE !    still no telling which brain tumors are completely dead or what, but no "meaningful" new ones.  My speech sounds like Donald Duck – Drs. don't really know why except possible brain stem pressure or something…….BUT….my lung tumors have all shrunk a tad and definately seem to be stable- as brain too.

    After i completed 7 SRS (Novalis TS) and WBR  4 mths. ago, then Yervoy i finished in mid-May;  I'M ALIVE !    still no telling which brain tumors are completely dead or what, but no "meaningful" new ones.  My speech sounds like Donald Duck – Drs. don't really know why except possible brain stem pressure or something…….BUT….my lung tumors have all shrunk a tad and definately seem to be stable- as brain too.

    Next week I start the Roche Vermufumib (now whatever it's called-raf)  still PLX 4032.  I cannot praise my local small-town oncologist enough for helping me weed through things- ie.:  the "big" know-it-all hospitals/ Drs. who know /control all but tell you very little at times, but  control your destiny!   

    Anyway, Very HOPEFUL and grateful that I've been given a 3rd or 4th chance (lost count).   Wishing ALL of you the best.

    Love from Grady Lewis Family.

Viewing 13 reply threads
  • Replies
      • August 25, 2011 at 1:16 am
      Jamietk
      Participant

      Glad to hear the good news. Congratulations. Thanks for sharing.

      • August 25, 2011 at 1:16 am
      Jamietk
      Participant

      Glad to hear the good news. Congratulations. Thanks for sharing.

      • August 25, 2011 at 1:24 am
      MariaH
      Participant

      So very very happy for you!  Hope you continue to keep posting good news!

      Maria

      • August 25, 2011 at 1:24 am
      MariaH
      Participant

      So very very happy for you!  Hope you continue to keep posting good news!

      Maria

      • August 25, 2011 at 2:21 am
      JuleFL
      Participant
      Best wishes on your trial, Grady. My husband and I really liked his “small town oncologist”. A good doctor is good no matter where he or she is. Glad you found one.

      Jule

      • August 25, 2011 at 2:21 am
      JuleFL
      Participant
      Best wishes on your trial, Grady. My husband and I really liked his “small town oncologist”. A good doctor is good no matter where he or she is. Glad you found one.

      Jule

      • August 25, 2011 at 3:07 am
      washoegal
      Participant

      IPI and BRAF is a dynamite combo!  Hope it works for you.

       

      Mary

      Stage 3

      • August 25, 2011 at 3:07 am
      washoegal
      Participant

      IPI and BRAF is a dynamite combo!  Hope it works for you.

       

      Mary

      Stage 3

      • August 25, 2011 at 3:26 am
      jag
      Participant

      glad to hear you are still around low swamps, I always enjoy your posts.

      God Bless,

      John

      • August 25, 2011 at 3:26 am
      jag
      Participant

      glad to hear you are still around low swamps, I always enjoy your posts.

      God Bless,

      John

      • August 25, 2011 at 4:46 am
      JerryfromFauq
      Participant

      Sounds good.  Keep it goimg.

      • August 25, 2011 at 4:46 am
      JerryfromFauq
      Participant

      Sounds good.  Keep it goimg.

      • August 25, 2011 at 4:52 am
      FormerCaregiver
      Participant

      Thanks for telling us about your encouraging news. We all need to have hope that things will get better, so it is really great to hear when anyone has things go well for them.

      Best wishes

      Frank from Australia

      • August 25, 2011 at 4:52 am
      FormerCaregiver
      Participant

      Thanks for telling us about your encouraging news. We all need to have hope that things will get better, so it is really great to hear when anyone has things go well for them.

      Best wishes

      Frank from Australia

        • August 25, 2011 at 10:13 pm
        boot2aboot
        Participant

        It's a crap shoot isn't it? which treatment/study will help each of us the best?  i hope you win.

        boots

        • August 25, 2011 at 10:13 pm
        boot2aboot
        Participant

        It's a crap shoot isn't it? which treatment/study will help each of us the best?  i hope you win.

        boots

        • August 26, 2011 at 12:02 pm
        Lisa13
        Participant

        Stable is good news and so is shrinking – I hope this continues for you 🙂

        Lisa – Stage 4 (lung mets)

        • August 26, 2011 at 12:02 pm
        Lisa13
        Participant

        Stable is good news and so is shrinking – I hope this continues for you 🙂

        Lisa – Stage 4 (lung mets)

Viewing 13 reply threads
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