5 Year Nedaversary!
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5 Year Nedaversary!

› Forums › General Melanoma Community › 5 Year Nedaversary!

  • Post
    • September 26, 2022 at 6:42 pm
    BillB
    Participant
    Hi, Just checking in as I received results for my last set of scans and I have reached the 5 year mark for NED. Seems like a pretty important milestone compared to the potential 9 month survival statistic when I went to stage 4. More importantly I still appreciate all of the kind people that provided me support and knowledge over the past 6 years. Wishing everyone my best in the future with their individual journeys. Also, it is still comforting to see Ed and Bubbles are still here providing support to everyone.
    My best to everyone,
    Bill B
Viewing 9 reply threads
  • Replies
      • September 26, 2022 at 9:45 pm
      chrispl1974
      Participant
      Fantastic news Bill. I am very very happy for you. Take care Chris
        • January 26, 2023 at 12:22 am
        alhudge
        Participant
        I am so happy for you!! These are some words of encouragement I’ll be passing on to my dad who was just moved into stage 4. I needed to hear your words!

        Best wishes!

      • September 27, 2022 at 12:50 am
      JudiAU
      Participant
      Really wonderful. Thanks for sharing.
      • September 27, 2022 at 9:09 am
      Bubbles
      Participant
      Awwwe, Mr. Bill!!!! That is wonderful news indeed! Take good care and enjoy every minute! yours, c
      • September 29, 2022 at 7:45 pm
      Baby_Girl
      Participant
      Wonderful news! I love see these posts! Thank you for sharing!
      • September 29, 2022 at 8:58 pm
      ThinkingPositive
      Participant
      Great news Bill! If I might ask, how long is surveillance? I had a complete response and stopped pembro 8 months ago and get CT scans every 3 months.
      Cindy
        • October 3, 2022 at 9:36 pm
        BillB
        Participant
        Hi Cindy,
        I also had a CR within 2 months of starting Keytruda. I stayed on Keytruda for another 26 months. My oncologist suggested going to annual scans based on my history with a CR. I haven’t decided whether I will go to 6 month scans yet and my oncologist is more than ok with whatever I choose. Hopefully I answered your question, if not please let me know.
        Bill B
        • October 3, 2022 at 9:37 pm
        BillB
        Participant
        Thank you everyone and best wishes.
        Bill
      • October 2, 2022 at 9:47 am
      Canadian melanoma wife
      Participant
      Congratulations Bill!! My husband hits his 5 year NED from stage 4 and thought I would check in to the forum and leave a post as encouragement to others and I am delighted to see your thread at the top. I hope the shadow of melanoma grows ever weaker for you.
      • November 19, 2022 at 12:16 am
      gregor913
      Participant
      Congratulations that is great news. Im ned 7 years with stage 3b melanoma that was ulcerated. Sending good vibes cause during my initial diagnoses I spent alot of time here and loved reading stories like this.For everyone keep fighting the fight and happy holidays.
      • January 26, 2023 at 1:13 pm
      chrispl1974
      Participant
      Fantastic news. I am very happy for you. Wish you another 100 years of NED :)))
      • February 3, 2023 at 2:44 pm
      Chris R
      Participant
      Congratulations! Great news indeed. If my scan remains unchanged in March I will be able to stop Opdivo. I am not sure that I am technically NED as there is a 8mm spot in my lung that is new from my original diagnosis, but does not show bright and is not growing. I am hoping my journey goes as well as yours.
      • February 7, 2023 at 2:15 pm
      sing123
      Participant
      Super congrats! Hope you celebrated for days!
Viewing 9 reply threads
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