Good scans!
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Good scans!

› Forums › General Melanoma Community › Good scans!

  • Post
    • June 9, 2011 at 10:05 am
    Rocco
    Participant

    Scan results yesterday.  CT of chest/adb/pelvis and brain MRI both clean!  Scanxiety was pretty bad this time around, so greatly appreciated everyone's kind thoughts, good vibes and prayers.   Will be scanned again late August. 

    Scan results yesterday.  CT of chest/adb/pelvis and brain MRI both clean!  Scanxiety was pretty bad this time around, so greatly appreciated everyone's kind thoughts, good vibes and prayers.   Will be scanned again late August. 

    Was told in order to stay on the Compassionate Use Trial protocol (10MG/KG) that I would need to stay on the 3 month scan schedule.  So in case I had reoccurance I would get the10MG instead of the 3MG dose.  Need to confirm with my Onc on this, as I saw a newbie (to me) Dr. yesterday…. need to weigh pros and cons of this approach.

    Also asked to resign my trial paperwork as they added 2 more "rare" potential side effects for ipi/Yervoy – since I last resigned in March!   Reviewing now and will post what those new side effects are under separate posting in case folks are interested. 

    Rocco – IV since  2005, THX2MDX / Ipi

Viewing 17 reply threads
  • Replies
      • June 9, 2011 at 10:26 am
      shellebrownies
      Participant

      Congrats, Rocco for such great news! I am so happy for you! 

      Michelle, wife of Don, Stage IV

      • June 9, 2011 at 10:26 am
      shellebrownies
      Participant

      Congrats, Rocco for such great news! I am so happy for you! 

      Michelle, wife of Don, Stage IV

      • June 9, 2011 at 11:33 am
      Carol Taylor
      Participant

      Hallelujah, Rocco! Rock on ! Wonderfyl news…celebrate!

      Lord, in Your mercy, make it so. Amen and Amen!

      Grace and peace,

      Carol

        • June 9, 2011 at 12:42 pm
        Vermont_Donna
        Participant

        Dear Rocco,

        Good news on the scans! I would be interested in the "newer" side effects of Ipi (at the 10mg/kg dose, or any dose?). How long does this study go on for?? My oncologist said the 10mg/kg study that they participated in was brutal for many of their patients enrolled in the study and some of them died due to the severe side effects (and their health status may have been way more compromised to begin with, I am not sure but I think he said that). So not trying to scare you but he did say the 3mg/kg seemed to be a more manageable dose, with good results with fewer side effects. STILL he cautioned me that since we are "messing with my immune system" the side effects can still occur months or years later, so be diligent, and early reporting of any symptoms will lead to early management of them.

        I am so happy for you!!

        Vermont_Donna, stage 3a, now NED due to Ipi (Yervoy)

        • June 9, 2011 at 12:42 pm
        Vermont_Donna
        Participant

        Dear Rocco,

        Good news on the scans! I would be interested in the "newer" side effects of Ipi (at the 10mg/kg dose, or any dose?). How long does this study go on for?? My oncologist said the 10mg/kg study that they participated in was brutal for many of their patients enrolled in the study and some of them died due to the severe side effects (and their health status may have been way more compromised to begin with, I am not sure but I think he said that). So not trying to scare you but he did say the 3mg/kg seemed to be a more manageable dose, with good results with fewer side effects. STILL he cautioned me that since we are "messing with my immune system" the side effects can still occur months or years later, so be diligent, and early reporting of any symptoms will lead to early management of them.

        I am so happy for you!!

        Vermont_Donna, stage 3a, now NED due to Ipi (Yervoy)

      • June 9, 2011 at 11:33 am
      Carol Taylor
      Participant

      Hallelujah, Rocco! Rock on ! Wonderfyl news…celebrate!

      Lord, in Your mercy, make it so. Amen and Amen!

      Grace and peace,

      Carol

      • June 9, 2011 at 1:52 pm
      dian in spokane
      Participant

      Rocco!

      I'm THRILLED to hear your news this morning. What a great way to start off the day.

      Keep on having great successes!

      dian in spokane

      • June 9, 2011 at 1:52 pm
      dian in spokane
      Participant

      Rocco!

      I'm THRILLED to hear your news this morning. What a great way to start off the day.

      Keep on having great successes!

      dian in spokane

      • June 9, 2011 at 2:40 pm
      King
      Participant

      Great news, Rocco!  This should give others some hope.  You and your husband should celebrate big time since you both got wonderful news.

       

      Stay Strong
      King

      Stage IV 7/05  Liver mets

      • June 9, 2011 at 2:40 pm
      King
      Participant

      Great news, Rocco!  This should give others some hope.  You and your husband should celebrate big time since you both got wonderful news.

       

      Stay Strong
      King

      Stage IV 7/05  Liver mets

      • June 9, 2011 at 3:18 pm
      ValinMtl
      Participant

      Hi Rocco…doing the happy dance for you…so glad to hear this news.  Val xx stage IV, failed ipi looking for new trial.

      • June 9, 2011 at 3:18 pm
      ValinMtl
      Participant

      Hi Rocco…doing the happy dance for you…so glad to hear this news.  Val xx stage IV, failed ipi looking for new trial.

      • June 9, 2011 at 4:58 pm
      mom3girlsFL
      Participant

      Thanks for the great update Rocco!

      Laurie

        • June 9, 2011 at 8:14 pm
        boot2aboot
        Participant

        Rocco,

        glad you picked the right dart and the researchers found the dart board…congrats…

        • June 9, 2011 at 8:14 pm
        boot2aboot
        Participant

        Rocco,

        glad you picked the right dart and the researchers found the dart board…congrats…

      • June 9, 2011 at 4:58 pm
      mom3girlsFL
      Participant

      Thanks for the great update Rocco!

      Laurie

      • June 9, 2011 at 9:17 pm
      lhaley
      Participant

      That is fantastic news!!  Hope you never have to even consider using the drug again so it won't be a thought.

      Linda

      • June 9, 2011 at 9:17 pm
      lhaley
      Participant

      That is fantastic news!!  Hope you never have to even consider using the drug again so it won't be a thought.

      Linda

      • June 10, 2011 at 2:46 am
      FormerCaregiver
      Participant

      Congratulations on your great scan results! I have just read your profile, and I encourage
      everyone to do the same. You have defied all the odds and given us hope and inspiration!

      Best wishes

      Frank from Australia

      • June 10, 2011 at 2:46 am
      FormerCaregiver
      Participant

      Congratulations on your great scan results! I have just read your profile, and I encourage
      everyone to do the same. You have defied all the odds and given us hope and inspiration!

      Best wishes

      Frank from Australia

      • June 10, 2011 at 5:55 pm
      KevinM
      Participant

      Such awesome news Rocco!!! I was thrilled to read your post! Seems like we are on a bit of a winning streak around Boston these days….Bruins, Red Sox and now you!!!

      Congrats…keep kickin butt!

      Kevin

      • June 10, 2011 at 5:55 pm
      KevinM
      Participant

      Such awesome news Rocco!!! I was thrilled to read your post! Seems like we are on a bit of a winning streak around Boston these days….Bruins, Red Sox and now you!!!

      Congrats…keep kickin butt!

      Kevin

Viewing 17 reply threads
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