A little slice of hope for LMD
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

A little slice of hope for LMD

› Forums › General Melanoma Community › A little slice of hope for LMD

  • Post
    • February 14, 2017 at 7:12 pm
    adriana cooper
    Participant

    I found this the other day during my research on WBRT.

    Long-term stabilization of leptomeningeal disease with whole-brain radiation therapy in a patient with metastatic melanoma treated with vemurafenib: a case report

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3880202/

     

    Adriana got to come home yesterday and has been managing pain relatively well. Day 4 of lumbar and WBRT coming up. Boy that mask doesn't look fun but only about three minutes of treatment duration. The worst part was making it and targeting which took considerable time. She wished she had accepted the drugs in hindsight. She is awesome always with a smile on her face even though she has to put up with me. 

    Need to get a new bed for her and new chair as ours are not comfortable for her. Occupational therapy discussed the potential for a hospital bed at home but she was discharged before they could arrange it. 

    Any info on hospital bed rentals and specifically Medicare/Medicaid coverage would be appreciated.

     

    Rob

     

Viewing 10 reply threads
  • Replies
      • February 14, 2017 at 7:40 pm
      adriana cooper
      Participant

      BTW, Lego Batman tonight. Happy Valentines Day to all. Hug and cherish your loved ones every day. 

      Although we or our loved ones have cancer don't let it take your lives. Live every moment.

      Rob

        • February 15, 2017 at 12:07 am
        Bubbles
        Participant

        You two are awesome examples of the power of the heart.  Glad she is feeling a bit better.  Hang in there. love, c

        • February 15, 2017 at 12:07 am
        Bubbles
        Participant

        You two are awesome examples of the power of the heart.  Glad she is feeling a bit better.  Hang in there. love, c

        • February 15, 2017 at 12:07 am
        Bubbles
        Participant

        You two are awesome examples of the power of the heart.  Glad she is feeling a bit better.  Hang in there. love, c

      • February 14, 2017 at 7:40 pm
      adriana cooper
      Participant

      BTW, Lego Batman tonight. Happy Valentines Day to all. Hug and cherish your loved ones every day. 

      Although we or our loved ones have cancer don't let it take your lives. Live every moment.

      Rob

      • February 14, 2017 at 7:40 pm
      adriana cooper
      Participant

      BTW, Lego Batman tonight. Happy Valentines Day to all. Hug and cherish your loved ones every day. 

      Although we or our loved ones have cancer don't let it take your lives. Live every moment.

      Rob

      • February 15, 2017 at 12:21 pm
      rosa1
      Participant

      You're a wonderful, loving husband. I wish you both the best. Stay strong.

      Rosa

      • February 15, 2017 at 12:21 pm
      rosa1
      Participant

      You're a wonderful, loving husband. I wish you both the best. Stay strong.

      Rosa

      • February 15, 2017 at 12:21 pm
      rosa1
      Participant

      You're a wonderful, loving husband. I wish you both the best. Stay strong.

      Rosa

      • February 15, 2017 at 8:14 pm
      maperny
      Participant

      That is certainly encouraging, Rob.  Lots of positive energy being wished to both you and Adriana.

      Maria

      • February 15, 2017 at 8:14 pm
      maperny
      Participant

      That is certainly encouraging, Rob.  Lots of positive energy being wished to both you and Adriana.

      Maria

      • February 15, 2017 at 8:14 pm
      maperny
      Participant

      That is certainly encouraging, Rob.  Lots of positive energy being wished to both you and Adriana.

      Maria

      • February 16, 2017 at 4:51 pm
      snow white
      Participant

      Thank you for the post Rob, any and all info on LMD is of great interest to us.  So happy to hear that your girl got to come home, so AWESOME!!  I am hoping that Adriana will have great relief with the radiation.  You have a lot of people on here cheering for you both.  Stay positive and keep loving each other, you set such a great example of grace and positivity.

      xo Jen

      • February 16, 2017 at 4:51 pm
      snow white
      Participant

      Thank you for the post Rob, any and all info on LMD is of great interest to us.  So happy to hear that your girl got to come home, so AWESOME!!  I am hoping that Adriana will have great relief with the radiation.  You have a lot of people on here cheering for you both.  Stay positive and keep loving each other, you set such a great example of grace and positivity.

      xo Jen

Viewing 10 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Popular Topics