The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Melanoma mets to small intestine

Forums General Melanoma Community Melanoma mets to small intestine

  • Post
    Randy437
    Participant

    Are CT scans as effective in finding mets in the small intestine as they are in any other area of the body?

Viewing 11 reply threads
  • Replies
      jpg
      Participant

      Are you have symptoms like vomiting, constipation.  sometimes the scan can't see them. so be sure to tell your doctor.  I insisted on this and sure enough I had a tumor blockage and removal. Now doing well.

        Randy437
        Participant

        So how was your tumor discovered?  CT? Camera? PET scan?  I'm negative on symptoms except for mild anemia.  CT and colonoscopy are negative. 

        jpg
        Participant

        Finally from CT scan after symptoms of block, vomiting etc.  Are you losing weight for no explained reason? You need to discuss this worry with your doc.

        jpg
        Participant

        Finally from CT scan after symptoms of block, vomiting etc.  Are you losing weight for no explained reason? You need to discuss this worry with your doc.

        jpg
        Participant

        Finally from CT scan after symptoms of block, vomiting etc.  Are you losing weight for no explained reason? You need to discuss this worry with your doc.

        Randy437
        Participant

        So how was your tumor discovered?  CT? Camera? PET scan?  I'm negative on symptoms except for mild anemia.  CT and colonoscopy are negative. 

        Randy437
        Participant

        So how was your tumor discovered?  CT? Camera? PET scan?  I'm negative on symptoms except for mild anemia.  CT and colonoscopy are negative. 

      jpg
      Participant

      Are you have symptoms like vomiting, constipation.  sometimes the scan can't see them. so be sure to tell your doctor.  I insisted on this and sure enough I had a tumor blockage and removal. Now doing well.

      jpg
      Participant

      Are you have symptoms like vomiting, constipation.  sometimes the scan can't see them. so be sure to tell your doctor.  I insisted on this and sure enough I had a tumor blockage and removal. Now doing well.

      BrianP
      Participant

      Randy,

      In my experience it can be tough to find mets in the small intestines with a CT.  Mine was eventually found with a PET.  Do a search for "Blood in stool" and you will find a thread where I chronicled my experience with finding the mets in my small intestines (4/11/2013). 

      Brian

       

       

      BrianP
      Participant

      Randy,

      In my experience it can be tough to find mets in the small intestines with a CT.  Mine was eventually found with a PET.  Do a search for "Blood in stool" and you will find a thread where I chronicled my experience with finding the mets in my small intestines (4/11/2013). 

      Brian

       

       

      BrianP
      Participant

      Randy,

      In my experience it can be tough to find mets in the small intestines with a CT.  Mine was eventually found with a PET.  Do a search for "Blood in stool" and you will find a thread where I chronicled my experience with finding the mets in my small intestines (4/11/2013). 

      Brian

       

       

      CHD
      Participant

      I too was told CT is not as good at finding mets in the colon/intestinal areas.  I think there is some evidence that capsule endoscopy is a better study for this. 

      CHD
      Participant

      I too was told CT is not as good at finding mets in the colon/intestinal areas.  I think there is some evidence that capsule endoscopy is a better study for this. 

        pookerpb
        Participant

        My husband's melanoma removed from his leg in 2008 came back to small intestine in 2014. He had terrible stomach pains off and on for almost a year. He had colonoscopy and endoscopy several times and doc kept telling him he had mild gastritis. After several trips to ER and no relief, we discovered it was after he eats certain meals it would happen and would be excruciating for up to 4-6 hours. He lived on crackers and oatmeal and basically any food that was water soluble.

        Long story short I made sure that next doctor we moved onto knew that he had history of melanoma and that doctor said that he could do the camera endoscopy. There are so many folds in the small intestine that a blockage could so easily be missed as a colonoscopy can only reach so far.

        The camera found there were two masses that were almost completely blocking the lower intestine. This caused anemia for months and monhts due to slow blood loss, and he had severe vomiting when the mass got big enough to not allow much to pass through.

        Hope this helps. CT never found it, and PET scan wasnt offered, so the camera was the next step.

         

        pookerpb
        Participant

        My husband's melanoma removed from his leg in 2008 came back to small intestine in 2014. He had terrible stomach pains off and on for almost a year. He had colonoscopy and endoscopy several times and doc kept telling him he had mild gastritis. After several trips to ER and no relief, we discovered it was after he eats certain meals it would happen and would be excruciating for up to 4-6 hours. He lived on crackers and oatmeal and basically any food that was water soluble.

        Long story short I made sure that next doctor we moved onto knew that he had history of melanoma and that doctor said that he could do the camera endoscopy. There are so many folds in the small intestine that a blockage could so easily be missed as a colonoscopy can only reach so far.

        The camera found there were two masses that were almost completely blocking the lower intestine. This caused anemia for months and monhts due to slow blood loss, and he had severe vomiting when the mass got big enough to not allow much to pass through.

        Hope this helps. CT never found it, and PET scan wasnt offered, so the camera was the next step.

         

        pookerpb
        Participant

        My husband's melanoma removed from his leg in 2008 came back to small intestine in 2014. He had terrible stomach pains off and on for almost a year. He had colonoscopy and endoscopy several times and doc kept telling him he had mild gastritis. After several trips to ER and no relief, we discovered it was after he eats certain meals it would happen and would be excruciating for up to 4-6 hours. He lived on crackers and oatmeal and basically any food that was water soluble.

        Long story short I made sure that next doctor we moved onto knew that he had history of melanoma and that doctor said that he could do the camera endoscopy. There are so many folds in the small intestine that a blockage could so easily be missed as a colonoscopy can only reach so far.

        The camera found there were two masses that were almost completely blocking the lower intestine. This caused anemia for months and monhts due to slow blood loss, and he had severe vomiting when the mass got big enough to not allow much to pass through.

        Hope this helps. CT never found it, and PET scan wasnt offered, so the camera was the next step.

         

      CHD
      Participant

      I too was told CT is not as good at finding mets in the colon/intestinal areas.  I think there is some evidence that capsule endoscopy is a better study for this. 

      kpcollins31
      Participant

      The tumor in my small intestine was found very easily by PET/CT… I had no symptoms at the time it was discovered. Bowel resection surgery was done in early Feb 2014 to remove the section of intestine with the tumor – fortunately, I have been NED ever since. The surgery was tough but bearable – just under a week in the hospital. Worked from home for a week and then went back to the office. Was able to get back to the gym about 6 weeks post-op and I am in better shape now than when I went in for the surgery.

      My next scans will be in November so praying they remain clear.

      Kevin

      kpcollins31
      Participant

      The tumor in my small intestine was found very easily by PET/CT… I had no symptoms at the time it was discovered. Bowel resection surgery was done in early Feb 2014 to remove the section of intestine with the tumor – fortunately, I have been NED ever since. The surgery was tough but bearable – just under a week in the hospital. Worked from home for a week and then went back to the office. Was able to get back to the gym about 6 weeks post-op and I am in better shape now than when I went in for the surgery.

      My next scans will be in November so praying they remain clear.

      Kevin

      kpcollins31
      Participant

      The tumor in my small intestine was found very easily by PET/CT… I had no symptoms at the time it was discovered. Bowel resection surgery was done in early Feb 2014 to remove the section of intestine with the tumor – fortunately, I have been NED ever since. The surgery was tough but bearable – just under a week in the hospital. Worked from home for a week and then went back to the office. Was able to get back to the gym about 6 weeks post-op and I am in better shape now than when I went in for the surgery.

      My next scans will be in November so praying they remain clear.

      Kevin

Viewing 11 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.