Daughters scan showing progress after YERVOY
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Daughters scan showing progress after YERVOY

› Forums › General Melanoma Community › Daughters scan showing progress after YERVOY

  • Post
    • February 5, 2015 at 4:02 pm
    Jacqueh27
    Participant

    I am so encouraged. First, the LDH sure  was a good marker that her liver tumor burden was lessening. First four week scan shows a huge hole in tumor and is down by 4cm. She is totally out of pain and it has not spread to any other organs, not even brain. She will have Pet scan done in 9 weeks to see what's left and we will discuss surgery. They aren't even talking any other meds now! I'm so encouraged and am so happy I found this support forum. 

Viewing 23 reply threads
  • Replies
      • February 5, 2015 at 4:07 pm
      kpcollins31
      Participant

      Congratulations – that is very good news.

      Kevin

      • February 5, 2015 at 4:07 pm
      kpcollins31
      Participant

      Congratulations – that is very good news.

      Kevin

      • February 5, 2015 at 4:07 pm
      kpcollins31
      Participant

      Congratulations – that is very good news.

      Kevin

      • February 5, 2015 at 4:24 pm
      rick1981
      Participant

      Very happy Jacque!

      Got scared for a second though as progress and progression (tumor growth) mean something quite different depending on the context 🙂

      So it seems you can keep using the blood tests (and LDH) now to track her situation – and don't have to wait long periods for scans. It can also help you identify issues quickly and move on quickly if needed. Having said that, be careful – it can be faulty at times so best to look at a complete set of blood values. Our onc looks mostly at LDH and CRP but also standard tests such as hemoglobine and white blood cells and two other liver tests (alk. phosphates and one more – have to look it up).

      GOOD LUCK,

      Rick

      • February 5, 2015 at 4:24 pm
      rick1981
      Participant

      Very happy Jacque!

      Got scared for a second though as progress and progression (tumor growth) mean something quite different depending on the context 🙂

      So it seems you can keep using the blood tests (and LDH) now to track her situation – and don't have to wait long periods for scans. It can also help you identify issues quickly and move on quickly if needed. Having said that, be careful – it can be faulty at times so best to look at a complete set of blood values. Our onc looks mostly at LDH and CRP but also standard tests such as hemoglobine and white blood cells and two other liver tests (alk. phosphates and one more – have to look it up).

      GOOD LUCK,

      Rick

      • February 5, 2015 at 4:24 pm
      rick1981
      Participant

      Very happy Jacque!

      Got scared for a second though as progress and progression (tumor growth) mean something quite different depending on the context 🙂

      So it seems you can keep using the blood tests (and LDH) now to track her situation – and don't have to wait long periods for scans. It can also help you identify issues quickly and move on quickly if needed. Having said that, be careful – it can be faulty at times so best to look at a complete set of blood values. Our onc looks mostly at LDH and CRP but also standard tests such as hemoglobine and white blood cells and two other liver tests (alk. phosphates and one more – have to look it up).

      GOOD LUCK,

      Rick

        • February 5, 2015 at 4:26 pm
        rick1981
        Participant

        By the way, it's remarkably quick for YERVOY to work after 1 treatment …. !

        Did they have any explanation for this? Just curious because my wife's on Keytruda (4th infusion yesterday) and in case of doubt if it works, our onc is thinking of 2 quick rounds of YERVOY (in the hope of being a quick responder) and then move back to Keytruda…

        • February 5, 2015 at 4:26 pm
        rick1981
        Participant

        By the way, it's remarkably quick for YERVOY to work after 1 treatment …. !

        Did they have any explanation for this? Just curious because my wife's on Keytruda (4th infusion yesterday) and in case of doubt if it works, our onc is thinking of 2 quick rounds of YERVOY (in the hope of being a quick responder) and then move back to Keytruda…

        • February 5, 2015 at 4:26 pm
        rick1981
        Participant

        By the way, it's remarkably quick for YERVOY to work after 1 treatment …. !

        Did they have any explanation for this? Just curious because my wife's on Keytruda (4th infusion yesterday) and in case of doubt if it works, our onc is thinking of 2 quick rounds of YERVOY (in the hope of being a quick responder) and then move back to Keytruda…

        • February 5, 2015 at 4:44 pm
        Jacqueh27
        Participant

        Thanks Rick! No she did have four infusions. The scan was done four weeks after treatment and remember she had the embolization a week before YERVOY started so that may have helped too. Beleive me, with your advice I am all over the blood levels and everything is in normal range. Can't thank you enough for that. I would say give the YERVOY a shot if it's an option because It can't hurt right? We have wonaotnagain to see if it will shrink more but the fact he didn't suggest a Braf inhibitor I'm thinking he thinks YERVOY will work. How sinuous wife feeling??

        • February 5, 2015 at 4:44 pm
        Jacqueh27
        Participant

        Thanks Rick! No she did have four infusions. The scan was done four weeks after treatment and remember she had the embolization a week before YERVOY started so that may have helped too. Beleive me, with your advice I am all over the blood levels and everything is in normal range. Can't thank you enough for that. I would say give the YERVOY a shot if it's an option because It can't hurt right? We have wonaotnagain to see if it will shrink more but the fact he didn't suggest a Braf inhibitor I'm thinking he thinks YERVOY will work. How sinuous wife feeling??

        • February 5, 2015 at 4:44 pm
        Jacqueh27
        Participant

        Thanks Rick! No she did have four infusions. The scan was done four weeks after treatment and remember she had the embolization a week before YERVOY started so that may have helped too. Beleive me, with your advice I am all over the blood levels and everything is in normal range. Can't thank you enough for that. I would say give the YERVOY a shot if it's an option because It can't hurt right? We have wonaotnagain to see if it will shrink more but the fact he didn't suggest a Braf inhibitor I'm thinking he thinks YERVOY will work. How sinuous wife feeling??

        • February 5, 2015 at 4:47 pm
        Jacqueh27
        Participant

        Wow sorry about all the typos lol! And Kevin, thanks for the congrats too. 

        • February 5, 2015 at 4:47 pm
        Jacqueh27
        Participant

        Wow sorry about all the typos lol! And Kevin, thanks for the congrats too. 

        • February 5, 2015 at 4:47 pm
        Jacqueh27
        Participant

        Wow sorry about all the typos lol! And Kevin, thanks for the congrats too. 

        • February 5, 2015 at 4:51 pm
        Jacqueh27
        Participant

        When you say one treatment, did you mean the four rounds? 

        • February 5, 2015 at 4:51 pm
        Jacqueh27
        Participant

        When you say one treatment, did you mean the four rounds? 

        • February 5, 2015 at 4:51 pm
        Jacqueh27
        Participant

        When you say one treatment, did you mean the four rounds? 

        • February 5, 2015 at 8:08 pm
        rick1981
        Participant

        No just a single infusion – is that what your daughter had?

        • February 5, 2015 at 8:08 pm
        rick1981
        Participant

        No just a single infusion – is that what your daughter had?

        • February 5, 2015 at 8:08 pm
        rick1981
        Participant

        No just a single infusion – is that what your daughter had?

        • February 5, 2015 at 9:32 pm
        Jacqueh27
        Participant

        No rick that was after four infusions three weeks apart. 

        • February 5, 2015 at 9:32 pm
        Jacqueh27
        Participant

        No rick that was after four infusions three weeks apart. 

        • February 5, 2015 at 9:32 pm
        Jacqueh27
        Participant

        No rick that was after four infusions three weeks apart. 

        • February 6, 2015 at 12:39 pm
        rick1981
        Participant

        Yep had trouble reading it seems 🙂

        • February 6, 2015 at 12:39 pm
        rick1981
        Participant

        Yep had trouble reading it seems 🙂

        • February 6, 2015 at 12:39 pm
        rick1981
        Participant

        Yep had trouble reading it seems 🙂

        • February 5, 2015 at 9:33 pm
        Jacqueh27
        Participant

        But after her second infusion her LDH was back to normal range which is when I think it may have started shrinking. 

        • February 5, 2015 at 9:33 pm
        Jacqueh27
        Participant

        But after her second infusion her LDH was back to normal range which is when I think it may have started shrinking. 

        • February 5, 2015 at 9:33 pm
        Jacqueh27
        Participant

        But after her second infusion her LDH was back to normal range which is when I think it may have started shrinking. 

      • February 5, 2015 at 7:59 pm
      Bubbles
      Participant

      So glad that things are improving for your daughter, Jacqueh!!!!  Wonderful news!  c

      • February 5, 2015 at 7:59 pm
      Bubbles
      Participant

      So glad that things are improving for your daughter, Jacqueh!!!!  Wonderful news!  c

      • February 5, 2015 at 7:59 pm
      Bubbles
      Participant

      So glad that things are improving for your daughter, Jacqueh!!!!  Wonderful news!  c

        • February 5, 2015 at 9:31 pm
        Jacqueh27
        Participant

        Thank you! 🙂 

        • February 5, 2015 at 9:31 pm
        Jacqueh27
        Participant

        Thank you! 🙂 

        • February 5, 2015 at 9:31 pm
        Jacqueh27
        Participant

        Thank you! 🙂 

      • February 5, 2015 at 10:47 pm
      arthurjedi007
      Participant

      Awesome news. That is wonderful.

      Artie

      • February 5, 2015 at 10:47 pm
      arthurjedi007
      Participant

      Awesome news. That is wonderful.

      Artie

      • February 5, 2015 at 10:47 pm
      arthurjedi007
      Participant

      Awesome news. That is wonderful.

      Artie

      • February 6, 2015 at 2:43 am
      JoshF
      Participant

      Great to hear good news!!! Here's to continued good news!!!

      Josh

      • February 6, 2015 at 2:43 am
      JoshF
      Participant

      Great to hear good news!!! Here's to continued good news!!!

      Josh

      • February 6, 2015 at 2:43 am
      JoshF
      Participant

      Great to hear good news!!! Here's to continued good news!!!

      Josh

      • February 6, 2015 at 2:43 am
      JoshF
      Participant

      Great to hear good news!!! Here's to continued good news!!!

      Josh

      • February 6, 2015 at 2:43 am
      JoshF
      Participant

      Great to hear good news!!! Here's to continued good news!!!

      Josh

      • February 6, 2015 at 2:43 am
      JoshF
      Participant

      Great to hear good news!!! Here's to continued good news!!!

      Josh

      • February 6, 2015 at 1:28 pm
      _Paul_
      Participant

      That's fantastic news! Thanks for keeping us posted!

      • February 6, 2015 at 1:28 pm
      _Paul_
      Participant

      That's fantastic news! Thanks for keeping us posted!

      • February 6, 2015 at 1:28 pm
      _Paul_
      Participant

      That's fantastic news! Thanks for keeping us posted!

      • February 8, 2015 at 11:41 pm
      john243
      Guest
      I want to share the amazing results with Cannabis oil cancer miracle cure. My wife just recovered from breast cancer just 19 weeks of using it. She have being having this breast cancer on her left side which she have been battling for over 3 years.
       
      More importantly, she is no longer having to deal with the embarrassment and annoyance of Chemo, Radiations and those crazy cancer drugs which is been recommended by oncologist nor daily fatigue. If you have been in the situation, you will know what it means to be free indeed.
       
      Thanks to Dr. Thomas and Mr. Rick Simpson. Save yourself, and your family members and friends by helping them out with this information for better understanding.
       
      Where to order the medication online!!!!!!!!!!!!!!!!!!!!!!!
       
      mail:simpsonmr.rick@yahoo.com: ricksimp@usa.com
       
      for more help.
      • February 8, 2015 at 11:41 pm
      john243
      Guest
      I want to share the amazing results with Cannabis oil cancer miracle cure. My wife just recovered from breast cancer just 19 weeks of using it. She have being having this breast cancer on her left side which she have been battling for over 3 years.
       
      More importantly, she is no longer having to deal with the embarrassment and annoyance of Chemo, Radiations and those crazy cancer drugs which is been recommended by oncologist nor daily fatigue. If you have been in the situation, you will know what it means to be free indeed.
       
      Thanks to Dr. Thomas and Mr. Rick Simpson. Save yourself, and your family members and friends by helping them out with this information for better understanding.
       
      Where to order the medication online!!!!!!!!!!!!!!!!!!!!!!!
       
      mail:simpsonmr.rick@yahoo.com: ricksimp@usa.com
       
      for more help.
      • February 8, 2015 at 11:41 pm
      john243
      Guest
      I want to share the amazing results with Cannabis oil cancer miracle cure. My wife just recovered from breast cancer just 19 weeks of using it. She have being having this breast cancer on her left side which she have been battling for over 3 years.
       
      More importantly, she is no longer having to deal with the embarrassment and annoyance of Chemo, Radiations and those crazy cancer drugs which is been recommended by oncologist nor daily fatigue. If you have been in the situation, you will know what it means to be free indeed.
       
      Thanks to Dr. Thomas and Mr. Rick Simpson. Save yourself, and your family members and friends by helping them out with this information for better understanding.
       
      Where to order the medication online!!!!!!!!!!!!!!!!!!!!!!!
       
      mail:simpsonmr.rick@yahoo.com: ricksimp@usa.com
       
      for more help.
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