Forum Replies Created
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- February 24, 2013 at 11:49 pm
That’s odd.I had bio-chemo and IL -2 from Dr. Gailani both of which failed and he then put me on Yervoy which also didn’t, work. He was totally cooperative and encouraging regarding clinical trials. I went to UCLA oncology a purported “melanoma center of excellence” and they reviewed all my treatment at Kaiser Riverside and said everything they did and were doing was perfectly appropriate and according to the standard of care.My experience with Dr. Gailani and Kaiser was first rate.
I would recommend Dr. Ribas at UCLA to follow you if Kaiser would permit it. Best of luck.
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- February 24, 2013 at 11:49 pm
That’s odd.I had bio-chemo and IL -2 from Dr. Gailani both of which failed and he then put me on Yervoy which also didn’t, work. He was totally cooperative and encouraging regarding clinical trials. I went to UCLA oncology a purported “melanoma center of excellence” and they reviewed all my treatment at Kaiser Riverside and said everything they did and were doing was perfectly appropriate and according to the standard of care.My experience with Dr. Gailani and Kaiser was first rate.
I would recommend Dr. Ribas at UCLA to follow you if Kaiser would permit it. Best of luck.
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- February 24, 2013 at 11:49 pm
That’s odd.I had bio-chemo and IL -2 from Dr. Gailani both of which failed and he then put me on Yervoy which also didn’t, work. He was totally cooperative and encouraging regarding clinical trials. I went to UCLA oncology a purported “melanoma center of excellence” and they reviewed all my treatment at Kaiser Riverside and said everything they did and were doing was perfectly appropriate and according to the standard of care.My experience with Dr. Gailani and Kaiser was first rate.
I would recommend Dr. Ribas at UCLA to follow you if Kaiser would permit it. Best of luck.
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- January 22, 2014 at 8:03 pm
You are very fortunate, Robert, to have been accepted into a PD-1 trial; I am stage 4, with mets in left lung, liver, spine and humerus bone; when I began an anti PD-1 Merck trial at UCLA, in April 2012 under the guidance of Antoni Ribas, M.D., both my lung and liver mets were over 10×10 cm. My left lung was almost completely obliterated by tumor mass and fluid; I was on 24 hour oxygen and confined to a wheelchair. I needed help in eating on the rare occasions when I would eat; by July 2012 my ,liver and lung mets had shrunk over 50%; As of November 2013, my lung met measures 36×21 mm and my liver met measures 36×18 mm. They are essentiall stable over the past year. I continue in the Merck trial and am totally active, playing tennis three times per week on average; You have much cause for OPTIMISM with the PD1 trial! I wish you good luck with your clincal trial. Best regards, Thomas
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- January 22, 2014 at 8:03 pm
You are very fortunate, Robert, to have been accepted into a PD-1 trial; I am stage 4, with mets in left lung, liver, spine and humerus bone; when I began an anti PD-1 Merck trial at UCLA, in April 2012 under the guidance of Antoni Ribas, M.D., both my lung and liver mets were over 10×10 cm. My left lung was almost completely obliterated by tumor mass and fluid; I was on 24 hour oxygen and confined to a wheelchair. I needed help in eating on the rare occasions when I would eat; by July 2012 my ,liver and lung mets had shrunk over 50%; As of November 2013, my lung met measures 36×21 mm and my liver met measures 36×18 mm. They are essentiall stable over the past year. I continue in the Merck trial and am totally active, playing tennis three times per week on average; You have much cause for OPTIMISM with the PD1 trial! I wish you good luck with your clincal trial. Best regards, Thomas
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- January 22, 2014 at 8:03 pm
You are very fortunate, Robert, to have been accepted into a PD-1 trial; I am stage 4, with mets in left lung, liver, spine and humerus bone; when I began an anti PD-1 Merck trial at UCLA, in April 2012 under the guidance of Antoni Ribas, M.D., both my lung and liver mets were over 10×10 cm. My left lung was almost completely obliterated by tumor mass and fluid; I was on 24 hour oxygen and confined to a wheelchair. I needed help in eating on the rare occasions when I would eat; by July 2012 my ,liver and lung mets had shrunk over 50%; As of November 2013, my lung met measures 36×21 mm and my liver met measures 36×18 mm. They are essentiall stable over the past year. I continue in the Merck trial and am totally active, playing tennis three times per week on average; You have much cause for OPTIMISM with the PD1 trial! I wish you good luck with your clincal trial. Best regards, Thomas
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