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Wilfred

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      Wilfred
      Participant

        Natasha, no question is silly, the answer to your question should include some comments however. I am not a doctor, nor am I a scientist; I am a person, a husband, a father, a grandfather, a friend, a fighter. There may not be any issue with applying a "fake spray tan", but why? Fake tans are a result of DHA and there seems to be no reason to worry about DHA. BUT what about the other chemicals in the bottle or can? You are going to breath this stuff, maybe you are going to get it in places you don't want me to see. Why?

        Is the beautiful lady in your profile pic really you? If she is you why do you want to cheapen her. I will bet you that I can look at ten women and tell you wich ones have the fake tan 95% of the time. Do you think people are going to say "Wow, check out Natasha, what a great tan" or, maybe, "Natasha is a beautiful person, but what is she thinking with a fake tan like that"?

        I think that tanning in any form is addicting. You know that person you see at the pool, the one that's 45 but looks like 70. Wrinkles, sagging skin, skin that looks like an old leather coat. If you start down the road witha bottle tan, will you switch over to a tanning salon?

        Come on, Natasha, you are better than that…your healthy glow comes from within, from your loving heart, from your vivacious personality, not from a bottle.

        Thinking good things about you, Wilfred

        Wilfred
        Participant

          Natasha, no question is silly, the answer to your question should include some comments however. I am not a doctor, nor am I a scientist; I am a person, a husband, a father, a grandfather, a friend, a fighter. There may not be any issue with applying a "fake spray tan", but why? Fake tans are a result of DHA and there seems to be no reason to worry about DHA. BUT what about the other chemicals in the bottle or can? You are going to breath this stuff, maybe you are going to get it in places you don't want me to see. Why?

          Is the beautiful lady in your profile pic really you? If she is you why do you want to cheapen her. I will bet you that I can look at ten women and tell you wich ones have the fake tan 95% of the time. Do you think people are going to say "Wow, check out Natasha, what a great tan" or, maybe, "Natasha is a beautiful person, but what is she thinking with a fake tan like that"?

          I think that tanning in any form is addicting. You know that person you see at the pool, the one that's 45 but looks like 70. Wrinkles, sagging skin, skin that looks like an old leather coat. If you start down the road witha bottle tan, will you switch over to a tanning salon?

          Come on, Natasha, you are better than that…your healthy glow comes from within, from your loving heart, from your vivacious personality, not from a bottle.

          Thinking good things about you, Wilfred

          Wilfred
          Participant

            Natasha, no question is silly, the answer to your question should include some comments however. I am not a doctor, nor am I a scientist; I am a person, a husband, a father, a grandfather, a friend, a fighter. There may not be any issue with applying a "fake spray tan", but why? Fake tans are a result of DHA and there seems to be no reason to worry about DHA. BUT what about the other chemicals in the bottle or can? You are going to breath this stuff, maybe you are going to get it in places you don't want me to see. Why?

            Is the beautiful lady in your profile pic really you? If she is you why do you want to cheapen her. I will bet you that I can look at ten women and tell you wich ones have the fake tan 95% of the time. Do you think people are going to say "Wow, check out Natasha, what a great tan" or, maybe, "Natasha is a beautiful person, but what is she thinking with a fake tan like that"?

            I think that tanning in any form is addicting. You know that person you see at the pool, the one that's 45 but looks like 70. Wrinkles, sagging skin, skin that looks like an old leather coat. If you start down the road witha bottle tan, will you switch over to a tanning salon?

            Come on, Natasha, you are better than that…your healthy glow comes from within, from your loving heart, from your vivacious personality, not from a bottle.

            Thinking good things about you, Wilfred

            Wilfred
            Participant

              Thanks, I do see my opthomologist regularly.

              Wilfred
              Participant

                Thanks, I do see my opthomologist regularly.

                Wilfred
                Participant

                  Thanks, I do see my opthomologist regularly.

                  Wilfred
                  Participant

                    Dick, I am not going to argue your point, but why should someone with melanoma do anything "un-natural" to their skin. Look at Natasha's picture in her wedding dress. She is beautiful and radiant.

                    Wilfred
                    Participant

                      Dick, I am not going to argue your point, but why should someone with melanoma do anything "un-natural" to their skin. Look at Natasha's picture in her wedding dress. She is beautiful and radiant.

                      Wilfred
                      Participant

                        Dick, I am not going to argue your point, but why should someone with melanoma do anything "un-natural" to their skin. Look at Natasha's picture in her wedding dress. She is beautiful and radiant.

                        Wilfred
                        Participant

                          Julie, and eveybody else, thanks for the comment. It is important to me to have reasonable replies to my questions from people who have been there done that. I have been to see four doctors: Dr William Sharfman at Hopkins, Dr Anna Pavlick at NYUCC in NYC, Dr Lynn Schuchter at Abramson Cancer Cenetr at UPenn in Philadelphia and Dr Paul Chapman at MSKCC.  

                          Here are my thoughts; I am being honest, I am not here for brownie points, I am here for me and you: Sharfman is probably an excellent Oncologist but, for me, there was no fire in his belly. I got the impression he had been doing this gig for a long time and was going to play the same old tunes. Pavlick is a firecracker. She has a goal: she wants me to survive and play with my grandchildren. She said that if the trial she has going doesn't work in two months she would pull me out and do something else. She is interested in me, she is interested in my winning the fight with her help. Schuchter is a slightly more reserved Pavlick, but a strong person and great doctor. Now I had a real problem, I was a believer in both Dr Pavlick and Dr Schuchter: they were here for me, they wanted me to beat this thing. Then we met with Dr Chapman at MSKCC. MSKCC did not have a trial for which I would qualify and Dr Chapman was dream come true. He discussed my history in detai, he listened to my search for a trial and he examined me thouroughly. He said that I wouldn't go wrong with Dr Pavlick's BRAF/MEK trial. The next day I signed the consent form with NYUCC. The trial is with a combo of Zelboraf and an unapproved drug GDC0973. 

                          So… that's where we stand; in the past week I have had lots of tests and on Tuesday, May 1, I start the meds. The system/marketplace, whatever you want to call it is truly amazing. Within 45 days I have been able to meet with 4 of the top Melanoma Doctors in the US, and become a member of a very limited number of people privileged to join a trial with real possibilites of success. My family participated in the decision process and with lots of my friends will help me win this fight. Best wishes to you all, Wilfred

                          Wilfred
                          Participant

                            Julie, and eveybody else, thanks for the comment. It is important to me to have reasonable replies to my questions from people who have been there done that. I have been to see four doctors: Dr William Sharfman at Hopkins, Dr Anna Pavlick at NYUCC in NYC, Dr Lynn Schuchter at Abramson Cancer Cenetr at UPenn in Philadelphia and Dr Paul Chapman at MSKCC.  

                            Here are my thoughts; I am being honest, I am not here for brownie points, I am here for me and you: Sharfman is probably an excellent Oncologist but, for me, there was no fire in his belly. I got the impression he had been doing this gig for a long time and was going to play the same old tunes. Pavlick is a firecracker. She has a goal: she wants me to survive and play with my grandchildren. She said that if the trial she has going doesn't work in two months she would pull me out and do something else. She is interested in me, she is interested in my winning the fight with her help. Schuchter is a slightly more reserved Pavlick, but a strong person and great doctor. Now I had a real problem, I was a believer in both Dr Pavlick and Dr Schuchter: they were here for me, they wanted me to beat this thing. Then we met with Dr Chapman at MSKCC. MSKCC did not have a trial for which I would qualify and Dr Chapman was dream come true. He discussed my history in detai, he listened to my search for a trial and he examined me thouroughly. He said that I wouldn't go wrong with Dr Pavlick's BRAF/MEK trial. The next day I signed the consent form with NYUCC. The trial is with a combo of Zelboraf and an unapproved drug GDC0973. 

                            So… that's where we stand; in the past week I have had lots of tests and on Tuesday, May 1, I start the meds. The system/marketplace, whatever you want to call it is truly amazing. Within 45 days I have been able to meet with 4 of the top Melanoma Doctors in the US, and become a member of a very limited number of people privileged to join a trial with real possibilites of success. My family participated in the decision process and with lots of my friends will help me win this fight. Best wishes to you all, Wilfred

                            Wilfred
                            Participant

                              Julie, and eveybody else, thanks for the comment. It is important to me to have reasonable replies to my questions from people who have been there done that. I have been to see four doctors: Dr William Sharfman at Hopkins, Dr Anna Pavlick at NYUCC in NYC, Dr Lynn Schuchter at Abramson Cancer Cenetr at UPenn in Philadelphia and Dr Paul Chapman at MSKCC.  

                              Here are my thoughts; I am being honest, I am not here for brownie points, I am here for me and you: Sharfman is probably an excellent Oncologist but, for me, there was no fire in his belly. I got the impression he had been doing this gig for a long time and was going to play the same old tunes. Pavlick is a firecracker. She has a goal: she wants me to survive and play with my grandchildren. She said that if the trial she has going doesn't work in two months she would pull me out and do something else. She is interested in me, she is interested in my winning the fight with her help. Schuchter is a slightly more reserved Pavlick, but a strong person and great doctor. Now I had a real problem, I was a believer in both Dr Pavlick and Dr Schuchter: they were here for me, they wanted me to beat this thing. Then we met with Dr Chapman at MSKCC. MSKCC did not have a trial for which I would qualify and Dr Chapman was dream come true. He discussed my history in detai, he listened to my search for a trial and he examined me thouroughly. He said that I wouldn't go wrong with Dr Pavlick's BRAF/MEK trial. The next day I signed the consent form with NYUCC. The trial is with a combo of Zelboraf and an unapproved drug GDC0973. 

                              So… that's where we stand; in the past week I have had lots of tests and on Tuesday, May 1, I start the meds. The system/marketplace, whatever you want to call it is truly amazing. Within 45 days I have been able to meet with 4 of the top Melanoma Doctors in the US, and become a member of a very limited number of people privileged to join a trial with real possibilites of success. My family participated in the decision process and with lots of my friends will help me win this fight. Best wishes to you all, Wilfred

                              Wilfred
                              Participant

                                Eileen, I have just joined the BRAF/MEK trial at NYUCC with Dr Anna Pavlick. My first meds will be next week. I have a couple of questions for you. 

                                1. Have you been able to read the complete consent form for the trial? In the one I signed there was language to the effect that Roche would pay for the uncovered expenses in some cases.

                                2. Are you covered by Medicare as primary with Kaiser as supplemental? If you are, Medicare pays 80% of approved costs.

                                In any case you should talk to your local trial administrator about your payment options. The trial is thought to hold great promise. Roche will do very well with Zelboraf/gdc0973, they want good cases to prove their combo. 

                                From what Charlie said about you and to you, I think you are a fighter….so go FIGHT.

                                Wilfred

                                Wilfred
                                Participant

                                  Eileen, I have just joined the BRAF/MEK trial at NYUCC with Dr Anna Pavlick. My first meds will be next week. I have a couple of questions for you. 

                                  1. Have you been able to read the complete consent form for the trial? In the one I signed there was language to the effect that Roche would pay for the uncovered expenses in some cases.

                                  2. Are you covered by Medicare as primary with Kaiser as supplemental? If you are, Medicare pays 80% of approved costs.

                                  In any case you should talk to your local trial administrator about your payment options. The trial is thought to hold great promise. Roche will do very well with Zelboraf/gdc0973, they want good cases to prove their combo. 

                                  From what Charlie said about you and to you, I think you are a fighter….so go FIGHT.

                                  Wilfred

                                  Wilfred
                                  Participant

                                    Eileen, I have just joined the BRAF/MEK trial at NYUCC with Dr Anna Pavlick. My first meds will be next week. I have a couple of questions for you. 

                                    1. Have you been able to read the complete consent form for the trial? In the one I signed there was language to the effect that Roche would pay for the uncovered expenses in some cases.

                                    2. Are you covered by Medicare as primary with Kaiser as supplemental? If you are, Medicare pays 80% of approved costs.

                                    In any case you should talk to your local trial administrator about your payment options. The trial is thought to hold great promise. Roche will do very well with Zelboraf/gdc0973, they want good cases to prove their combo. 

                                    From what Charlie said about you and to you, I think you are a fighter….so go FIGHT.

                                    Wilfred

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