The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

TinkPeriwinkle

Forum Replies Created

Viewing 0 reply threads
  • Replies
      TinkPeriwinkle
      Participant
        I know this is an older post, but I wanted to provide a link with updated information as of 2019 regarding BRAF positive and what that means. Some very good information in that link that addresses questions I had myself just like AvaL’s question. There is a couple of sections that is targeted at Melanoma BRAF. Hope this helps someone in the future.

        https://www.verywellhealth.com/braf-mutations-in-cancer-4769844

        TinkPeriwinkle
        Participant
          Thank you for your quick reply <3
          I'm hesitant about immunotherapy now. His tumors appeared after two doses of it, and I had found a journal study that found of all those that the immunotherapy doesn't work for, 9% of them the immunotherapy actually hastens the tumors, and all most of those were after two doses. My husband's case seems to mirror the study I found. But we travel to Huntsman next week and if they suggest it, we may do it. We trust that center immensely as they had successfully treated him twice in the past for cancers.

          As for the pills in the mail, these are pills that our local oncologist is adamant that he take right away. He stated they are too controlled to be in local pharmacies which is why they are mailed directly to patients. I do not remember what the name of it is, we were on a teleconference as we live very remotely and our local oncologist is an hour and a half away. But he said my husband carries the Braf biomarker that is traditionally receptive to these pills he's sending us to buy him a little more time. Possibly even up to a year or two. But again, I will trust Huntsman more, they have renowned professionals there that focus solely on melanoma and have many clinical trials going on right now as well.

          Again, thank you for responding! It's very appreciated. I feel so alone in this.

      Viewing 0 reply threads