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TimG
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TimG

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      • March 28, 2011 at 6:46 am
      TimG
      Participant

        Forgot to add that I was anemic from 2003 to 2008.   I had many Blood and Iron Transfusions.   After the surgery 2008, I have not had a problem with  anemia .

         

        Tim

        • March 28, 2011 at 6:46 am
        TimG
        Participant

          Forgot to add that I was anemic from 2003 to 2008.   I had many Blood and Iron Transfusions.   After the surgery 2008, I have not had a problem with  anemia .

           

          Tim

          • March 28, 2011 at 6:39 am
          TimG
          Participant

            Back in 2003 I had 2 percent of the small intestine removed.  Then in 2008 had tumor in the bowl and had it removed.They told me in 2008 it was not common, but with melanoma you never know where it goes.  Since 2008 I have had tumors removed from the Neck, top of head under the skin, and the Brain.  Currently have a few tumors.  I was at NCI in Bethesda, MD in 2010.  I did TIL with Dr Rosenberg. In Dec 2010 I showed signs of  tumor growth so I started Yervoy ( Ipilimumab) in Jan.  My Last dose is Wed march 30, then in 2 weeks scans to see.

            There is now so much in the pipeline for melanoma.  We need to stay positive. 

            Living with melanoma since 1984, I have many options today.  There is hope.

             

            Tim               

            • March 28, 2011 at 6:39 am
            TimG
            Participant

              Back in 2003 I had 2 percent of the small intestine removed.  Then in 2008 had tumor in the bowl and had it removed.They told me in 2008 it was not common, but with melanoma you never know where it goes.  Since 2008 I have had tumors removed from the Neck, top of head under the skin, and the Brain.  Currently have a few tumors.  I was at NCI in Bethesda, MD in 2010.  I did TIL with Dr Rosenberg. In Dec 2010 I showed signs of  tumor growth so I started Yervoy ( Ipilimumab) in Jan.  My Last dose is Wed march 30, then in 2 weeks scans to see.

              There is now so much in the pipeline for melanoma.  We need to stay positive. 

              Living with melanoma since 1984, I have many options today.  There is hope.

               

              Tim               

              • August 26, 2010 at 1:33 pm
              TimG
              Participant

                King,

                 

                Thanks for you com

                ments.  Yes It had been more difficult than I thought it would be.  (6 trips so far, at 2288 miles each way).

                 

                Glad you remember Gregory. He was a wealth of infomation, and a great guy. We both had the same Dr in Riverside, and we were hoping someday to have a beer together after a Dr. appt…  I ring a bell in Oct for him.  . 

                • August 26, 2010 at 1:33 pm
                TimG
                Participant

                  King,

                   

                  Thanks for you com

                  ments.  Yes It had been more difficult than I thought it would be.  (6 trips so far, at 2288 miles each way).

                   

                  Glad you remember Gregory. He was a wealth of infomation, and a great guy. We both had the same Dr in Riverside, and we were hoping someday to have a beer together after a Dr. appt…  I ring a bell in Oct for him.  . 

                  • August 26, 2010 at 1:21 am
                  TimG
                  Participant

                    Rebecca and Bob,

                     

                    NVI/HIH is a wonderful place.  I now on my 6th visist,  Had 2 surgeries.

                    They have really moved fast when they needed to. I live in CA so it s  a long flight.  The other trial in LA, CA (CTLA4) has moved in slow motion. 

                     

                    Thanks for sharing.

                     

                    Tim

                    • August 26, 2010 at 1:21 am
                    TimG
                    Participant

                      Rebecca and Bob,

                       

                      NVI/HIH is a wonderful place.  I now on my 6th visist,  Had 2 surgeries.

                      They have really moved fast when they needed to. I live in CA so it s  a long flight.  The other trial in LA, CA (CTLA4) has moved in slow motion. 

                       

                      Thanks for sharing.

                       

                      Tim

                      • August 26, 2010 at 1:13 am
                      TimG
                      Participant

                        Sherron,

                        Sherron Thanks for your comment.

                        I have not been around posting much since Oct 2008 when Gregory…. The Mighty Melanoma guy got his wings.

                        I know this site is a very good place and offers so much knowledge, wisdow, and hope.

                         

                        Tim

                        • August 26, 2010 at 1:13 am
                        TimG
                        Participant

                          Sherron,

                          Sherron Thanks for your comment.

                          I have not been around posting much since Oct 2008 when Gregory…. The Mighty Melanoma guy got his wings.

                          I know this site is a very good place and offers so much knowledge, wisdow, and hope.

                           

                          Tim

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