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Thoughts and Prayers Needed.
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Thoughts and Prayers Needed.

› Forums › General Melanoma Community › Thoughts and Prayers Needed.

  • Post
    • August 25, 2010 at 5:06 pm
    TimG
    Participant

      I am currently at NIH/ NCI in Bethesda going though TIL.    Friday Aug 27 is the day I get the cells infused and start IL2.  Should complete and be home Sept 9 or so.

       

      If anyone will be at NCI let me know maybe we can meet.

       

      Tim

      I am currently at NIH/ NCI in Bethesda going though TIL.    Friday Aug 27 is the day I get the cells infused and start IL2.  Should complete and be home Sept 9 or so.

       

      If anyone will be at NCI let me know maybe we can meet.

       

      Tim

    Viewing 7 reply threads
    • Replies
        • August 25, 2010 at 8:41 pm
        Sherron
        Participant

          Hi Tim –Sorry you had to find this place…but if you have Melanoma this a good place to be…There are many knowledgeable people here to talk to, to answer questions, and to guide you a bit….and also to give you hope.

          Take Care,

          Sherron, wife to Jim

            • August 26, 2010 at 1:13 am
            TimG
            Participant

              Sherron,

              Sherron Thanks for your comment.

              I have not been around posting much since Oct 2008 when Gregory…. The Mighty Melanoma guy got his wings.

              I know this site is a very good place and offers so much knowledge, wisdow, and hope.

               

              Tim

              • August 26, 2010 at 1:13 am
              TimG
              Participant

                Sherron,

                Sherron Thanks for your comment.

                I have not been around posting much since Oct 2008 when Gregory…. The Mighty Melanoma guy got his wings.

                I know this site is a very good place and offers so much knowledge, wisdow, and hope.

                 

                Tim

              • August 25, 2010 at 8:41 pm
              Sherron
              Participant

                Hi Tim –Sorry you had to find this place…but if you have Melanoma this a good place to be…There are many knowledgeable people here to talk to, to answer questions, and to guide you a bit….and also to give you hope.

                Take Care,

                Sherron, wife to Jim

                • August 25, 2010 at 10:24 pm
                Rebecca and Bob
                Participant

                  Tim,

                   

                  We go to NCI/NIH in Bethesda to. My husband is stage IV and went through IL-2 and surgery at NIH after being part of a stage III trial for a year. We have always felt we are in the best care there with the most current trials.

                  We just went for scans/results 2 weeks ago so we won't be back for another couple of months.

                  Good luck with your treatment we have heard very positive info about the TIL treatment.

                   

                  Rebecca and Bob

                    • August 26, 2010 at 1:21 am
                    TimG
                    Participant

                      Rebecca and Bob,

                       

                      NVI/HIH is a wonderful place.  I now on my 6th visist,  Had 2 surgeries.

                      They have really moved fast when they needed to. I live in CA so it s  a long flight.  The other trial in LA, CA (CTLA4) has moved in slow motion. 

                       

                      Thanks for sharing.

                       

                      Tim

                      • August 26, 2010 at 1:21 am
                      TimG
                      Participant

                        Rebecca and Bob,

                         

                        NVI/HIH is a wonderful place.  I now on my 6th visist,  Had 2 surgeries.

                        They have really moved fast when they needed to. I live in CA so it s  a long flight.  The other trial in LA, CA (CTLA4) has moved in slow motion. 

                         

                        Thanks for sharing.

                         

                        Tim

                      • August 25, 2010 at 10:24 pm
                      Rebecca and Bob
                      Participant

                        Tim,

                         

                        We go to NCI/NIH in Bethesda to. My husband is stage IV and went through IL-2 and surgery at NIH after being part of a stage III trial for a year. We have always felt we are in the best care there with the most current trials.

                        We just went for scans/results 2 weeks ago so we won't be back for another couple of months.

                        Good luck with your treatment we have heard very positive info about the TIL treatment.

                         

                        Rebecca and Bob

                        • August 26, 2010 at 2:01 am
                        King
                        Participant

                          Tim,

                           

                          Good thoughts and prayers are being sent your way.  A tough treatment for sure…one day at a time.  I've not been treated at NIH.  I'm treated at Moffitt in Tampa, FL.   It must be difficult to be so far away from home.  Gregory…I'll never forget him.

                           

                          Stay Strong

                          King

                          Stage IV 7/05 Liver mets

                            • August 26, 2010 at 1:33 pm
                            TimG
                            Participant

                              King,

                               

                              Thanks for you com

                              ments.  Yes It had been more difficult than I thought it would be.  (6 trips so far, at 2288 miles each way).

                               

                              Glad you remember Gregory. He was a wealth of infomation, and a great guy. We both had the same Dr in Riverside, and we were hoping someday to have a beer together after a Dr. appt…  I ring a bell in Oct for him.  . 

                              • August 26, 2010 at 1:33 pm
                              TimG
                              Participant

                                King,

                                 

                                Thanks for you com

                                ments.  Yes It had been more difficult than I thought it would be.  (6 trips so far, at 2288 miles each way).

                                 

                                Glad you remember Gregory. He was a wealth of infomation, and a great guy. We both had the same Dr in Riverside, and we were hoping someday to have a beer together after a Dr. appt…  I ring a bell in Oct for him.  . 

                              • August 26, 2010 at 2:01 am
                              King
                              Participant

                                Tim,

                                 

                                Good thoughts and prayers are being sent your way.  A tough treatment for sure…one day at a time.  I've not been treated at NIH.  I'm treated at Moffitt in Tampa, FL.   It must be difficult to be so far away from home.  Gregory…I'll never forget him.

                                 

                                Stay Strong

                                King

                                Stage IV 7/05 Liver mets

                                • August 26, 2010 at 1:45 pm
                                Lori C
                                Participant

                                  Healing prayers and best wishes for success of this treatment.

                                  • August 26, 2010 at 1:45 pm
                                  Lori C
                                  Participant

                                    Healing prayers and best wishes for success of this treatment.

                                Viewing 7 reply threads
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