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Thoughts and Prayers Needed.

Forums General Melanoma Community Thoughts and Prayers Needed.

  • Post
    TimG
    Participant

    I am currently at NIH/ NCI in Bethesda going though TIL.    Friday Aug 27 is the day I get the cells infused and start IL2.  Should complete and be home Sept 9 or so.

     

    If anyone will be at NCI let me know maybe we can meet.

     

    Tim

    I am currently at NIH/ NCI in Bethesda going though TIL.    Friday Aug 27 is the day I get the cells infused and start IL2.  Should complete and be home Sept 9 or so.

     

    If anyone will be at NCI let me know maybe we can meet.

     

    Tim

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  • Replies
      Sherron
      Participant

      Hi Tim –Sorry you had to find this place…but if you have Melanoma this a good place to be…There are many knowledgeable people here to talk to, to answer questions, and to guide you a bit….and also to give you hope.

      Take Care,

      Sherron, wife to Jim

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        TimG
        Participant

        Sherron,

        Sherron Thanks for your comment.

        I have not been around posting much since Oct 2008 when Gregory…. The Mighty Melanoma guy got his wings.

        I know this site is a very good place and offers so much knowledge, wisdow, and hope.

         

        Tim

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        TimG
        Participant

        Sherron,

        Sherron Thanks for your comment.

        I have not been around posting much since Oct 2008 when Gregory…. The Mighty Melanoma guy got his wings.

        I know this site is a very good place and offers so much knowledge, wisdow, and hope.

         

        Tim

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      Sherron
      Participant

      Hi Tim –Sorry you had to find this place…but if you have Melanoma this a good place to be…There are many knowledgeable people here to talk to, to answer questions, and to guide you a bit….and also to give you hope.

      Take Care,

      Sherron, wife to Jim

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      Rebecca and Bob
      Participant

      Tim,

       

      We go to NCI/NIH in Bethesda to. My husband is stage IV and went through IL-2 and surgery at NIH after being part of a stage III trial for a year. We have always felt we are in the best care there with the most current trials.

      We just went for scans/results 2 weeks ago so we won't be back for another couple of months.

      Good luck with your treatment we have heard very positive info about the TIL treatment.

       

      Rebecca and Bob

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        TimG
        Participant

        Rebecca and Bob,

         

        NVI/HIH is a wonderful place.  I now on my 6th visist,  Had 2 surgeries.

        They have really moved fast when they needed to. I live in CA so it s  a long flight.  The other trial in LA, CA (CTLA4) has moved in slow motion. 

         

        Thanks for sharing.

         

        Tim

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        TimG
        Participant

        Rebecca and Bob,

         

        NVI/HIH is a wonderful place.  I now on my 6th visist,  Had 2 surgeries.

        They have really moved fast when they needed to. I live in CA so it s  a long flight.  The other trial in LA, CA (CTLA4) has moved in slow motion. 

         

        Thanks for sharing.

         

        Tim

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      Rebecca and Bob
      Participant

      Tim,

       

      We go to NCI/NIH in Bethesda to. My husband is stage IV and went through IL-2 and surgery at NIH after being part of a stage III trial for a year. We have always felt we are in the best care there with the most current trials.

      We just went for scans/results 2 weeks ago so we won't be back for another couple of months.

      Good luck with your treatment we have heard very positive info about the TIL treatment.

       

      Rebecca and Bob

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      King
      Participant

      Tim,

       

      Good thoughts and prayers are being sent your way.  A tough treatment for sure…one day at a time.  I've not been treated at NIH.  I'm treated at Moffitt in Tampa, FL.   It must be difficult to be so far away from home.  Gregory…I'll never forget him.

       

      Stay Strong

      King

      Stage IV 7/05 Liver mets

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        TimG
        Participant

        King,

         

        Thanks for you com

        ments.  Yes It had been more difficult than I thought it would be.  (6 trips so far, at 2288 miles each way).

         

        Glad you remember Gregory. He was a wealth of infomation, and a great guy. We both had the same Dr in Riverside, and we were hoping someday to have a beer together after a Dr. appt…  I ring a bell in Oct for him.  . 

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        TimG
        Participant

        King,

         

        Thanks for you com

        ments.  Yes It had been more difficult than I thought it would be.  (6 trips so far, at 2288 miles each way).

         

        Glad you remember Gregory. He was a wealth of infomation, and a great guy. We both had the same Dr in Riverside, and we were hoping someday to have a beer together after a Dr. appt…  I ring a bell in Oct for him.  . 

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      King
      Participant

      Tim,

       

      Good thoughts and prayers are being sent your way.  A tough treatment for sure…one day at a time.  I've not been treated at NIH.  I'm treated at Moffitt in Tampa, FL.   It must be difficult to be so far away from home.  Gregory…I'll never forget him.

       

      Stay Strong

      King

      Stage IV 7/05 Liver mets

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      Lori C
      Participant

      Healing prayers and best wishes for success of this treatment.

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      Lori C
      Participant

      Healing prayers and best wishes for success of this treatment.

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