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Terra

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      Terra
      Participant

      Hi, Lisa, I posted a similar question a while back.  I think that yes you can be reintroduced to the drug with a mixed response and/or if something starts regrowing.  I know Dr. Joshua has mentioned that to us and that (I think) – you have a 50% chance of responding again.  I know PMH is also opening an anti-PD 1 trial soon, that may also be a thought.  We have scans mid Dec after last scans showed about a 50% decrease in tumour load as well and I already have that nervous feeling. We are thinking about you and are looking forward to hearing the good news tomorrow!

      Terra
      Participant

      Hi, Lisa, I posted a similar question a while back.  I think that yes you can be reintroduced to the drug with a mixed response and/or if something starts regrowing.  I know Dr. Joshua has mentioned that to us and that (I think) – you have a 50% chance of responding again.  I know PMH is also opening an anti-PD 1 trial soon, that may also be a thought.  We have scans mid Dec after last scans showed about a 50% decrease in tumour load as well and I already have that nervous feeling. We are thinking about you and are looking forward to hearing the good news tomorrow!

      Terra
      Participant

      Hi, Lisa, I posted a similar question a while back.  I think that yes you can be reintroduced to the drug with a mixed response and/or if something starts regrowing.  I know Dr. Joshua has mentioned that to us and that (I think) – you have a 50% chance of responding again.  I know PMH is also opening an anti-PD 1 trial soon, that may also be a thought.  We have scans mid Dec after last scans showed about a 50% decrease in tumour load as well and I already have that nervous feeling. We are thinking about you and are looking forward to hearing the good news tomorrow!

      Terra
      Participant

      Lisa, I hope and pray ipi continues to its job – and I think there is definitely every reason to believe it will.  We will be TO for a scan mid Dec  – maybe we will be able to see you there.

      Terra
      Participant

      Lisa, I hope and pray ipi continues to its job – and I think there is definitely every reason to believe it will.  We will be TO for a scan mid Dec  – maybe we will be able to see you there.

      Terra
      Participant

      Lisa, I hope and pray ipi continues to its job – and I think there is definitely every reason to believe it will.  We will be TO for a scan mid Dec  – maybe we will be able to see you there.

      Terra
      Participant

      Lisa, I am so glad you are a responder and am hoping and thinking the growth of the 2 nodes is just inflammation, and praying the brain met is nothing – if it is thank goodness Joshua can get you in so fast to have it removed!  Keep us posted

      Terra
      Participant

      Lisa, I am so glad you are a responder and am hoping and thinking the growth of the 2 nodes is just inflammation, and praying the brain met is nothing – if it is thank goodness Joshua can get you in so fast to have it removed!  Keep us posted

      Terra
      Participant

      Lisa, I am so glad you are a responder and am hoping and thinking the growth of the 2 nodes is just inflammation, and praying the brain met is nothing – if it is thank goodness Joshua can get you in so fast to have it removed!  Keep us posted

      Terra
      Participant

      Hi Karrie,

      My husband was diagnosed in 2001 at stage 3, he progressed to stage IV June 2010, he is currently a late responder to ipi and we are waiting for our 3 mos scans.  There are definitely more choices in the US but we do have many here, I am not sure what cancer centre you are at, we have been to Kingston, Sunnybrook, and are now at PMH in Toronto.  Contact Annette Cyr at the Melanoma Network of Canada (can google it) and she will be really up to date on what is available.  Derek did do interferon for a year June 2007 to June 2008.  He did pretty well and I think it worked in that it delayed his progression to stage 4 by 8-12 months (there was a lymph node in his right lung that held more or less steady until about 11 mos after interferon then it began to grow.  It is a tough decision but once he makes his decision don't look back.  Email me if you wouldlike – tdeeth@hpedsb.on.ca

      Terra
      Participant

      Hi Karrie,

      My husband was diagnosed in 2001 at stage 3, he progressed to stage IV June 2010, he is currently a late responder to ipi and we are waiting for our 3 mos scans.  There are definitely more choices in the US but we do have many here, I am not sure what cancer centre you are at, we have been to Kingston, Sunnybrook, and are now at PMH in Toronto.  Contact Annette Cyr at the Melanoma Network of Canada (can google it) and she will be really up to date on what is available.  Derek did do interferon for a year June 2007 to June 2008.  He did pretty well and I think it worked in that it delayed his progression to stage 4 by 8-12 months (there was a lymph node in his right lung that held more or less steady until about 11 mos after interferon then it began to grow.  It is a tough decision but once he makes his decision don't look back.  Email me if you wouldlike – tdeeth@hpedsb.on.ca

      Terra
      Participant

      Hi Karrie,

      My husband was diagnosed in 2001 at stage 3, he progressed to stage IV June 2010, he is currently a late responder to ipi and we are waiting for our 3 mos scans.  There are definitely more choices in the US but we do have many here, I am not sure what cancer centre you are at, we have been to Kingston, Sunnybrook, and are now at PMH in Toronto.  Contact Annette Cyr at the Melanoma Network of Canada (can google it) and she will be really up to date on what is available.  Derek did do interferon for a year June 2007 to June 2008.  He did pretty well and I think it worked in that it delayed his progression to stage 4 by 8-12 months (there was a lymph node in his right lung that held more or less steady until about 11 mos after interferon then it began to grow.  It is a tough decision but once he makes his decision don't look back.  Email me if you wouldlike – tdeeth@hpedsb.on.ca

      Terra
      Participant

      W will say prayes for you both and be thinking of you.  It is good you have a plan already and I hope the Zelboraf works.

      Terra
      Participant

      W will say prayes for you both and be thinking of you.  It is good you have a plan already and I hope the Zelboraf works.

      Terra
      Participant

      W will say prayes for you both and be thinking of you.  It is good you have a plan already and I hope the Zelboraf works.

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