tennisgirl
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tennisgirl

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  • Replies
      • April 16, 2011 at 2:30 pm
      tennisgirl
      Participant

      Jill:   This is great news!  We all need an advocate like you in our corner.  Please keep us all posted on Eric's progress.  Keep on keeping on!

       

      Marian

      • April 16, 2011 at 2:30 pm
      tennisgirl
      Participant

      Jill:   This is great news!  We all need an advocate like you in our corner.  Please keep us all posted on Eric's progress.  Keep on keeping on!

       

      Marian

      • March 5, 2011 at 7:03 pm
      tennisgirl
      Participant

      Emily: 
       

      I was on the Roche BRAF from May – October 2010.  Had a great response at first and then my tumors started growing again.  After I stopped the Roche BRAF, it's like my melanoma went crazy and things grew substantially fast.  I have heard this is common.  But on Wednesday, 2/23/10 I started on GSK BRAF/MEK and am AMAZED how fast my subcutaneous tumors are shrinking.  I have been sending pics via my cell phone to my friends and family.  It's just remarkable.  To me, it looks like it's shriveling up and dying.   Dying!  How nice to use that word in regards to melanoma going away! 

      Marian Erickson

      • March 5, 2011 at 7:03 pm
      tennisgirl
      Participant

      Emily: 
       

      I was on the Roche BRAF from May – October 2010.  Had a great response at first and then my tumors started growing again.  After I stopped the Roche BRAF, it's like my melanoma went crazy and things grew substantially fast.  I have heard this is common.  But on Wednesday, 2/23/10 I started on GSK BRAF/MEK and am AMAZED how fast my subcutaneous tumors are shrinking.  I have been sending pics via my cell phone to my friends and family.  It's just remarkable.  To me, it looks like it's shriveling up and dying.   Dying!  How nice to use that word in regards to melanoma going away! 

      Marian Erickson

      • February 13, 2011 at 12:54 am
      tennisgirl
      Participant

      This is so encouraging!  I start GSK BRAF/MEK next week.  After I saw your post, I wanted to sing all day.  I've got some nasty looking tumors coming out of my leg, also, not as bad as Eric's.  I've been following your story on here but don't post much.   Please keep us updated, Jill.  Our best days are in front of us!

       

      Marian

      • February 13, 2011 at 12:54 am
      tennisgirl
      Participant

      This is so encouraging!  I start GSK BRAF/MEK next week.  After I saw your post, I wanted to sing all day.  I've got some nasty looking tumors coming out of my leg, also, not as bad as Eric's.  I've been following your story on here but don't post much.   Please keep us updated, Jill.  Our best days are in front of us!

       

      Marian

      • January 8, 2011 at 1:47 am
      tennisgirl
      Participant

      Jill:  Since I have been reading your posts, I think about you and Eric often.  I too hope to get on this trial in February.    Please continue with the updates.  Keep on keeping on! 

      • January 8, 2011 at 1:47 am
      tennisgirl
      Participant

      Jill:  Since I have been reading your posts, I think about you and Eric often.  I too hope to get on this trial in February.    Please continue with the updates.  Keep on keeping on! 

      • November 27, 2010 at 10:24 pm
      tennisgirl
      Participant

      Janice:  I am also Stage 3 and was put on PLX4032 in May and taken off it in October because my  tumors started to grow again.  I'm finding this is the response for most people.  Going to try Ipi in a few weeks.  I had hair loss and joint pain, my wrists/shoulders ached.  Sun sensitivity!  5 minutes in the sun and my body reacted like it was 5 hrs.   Email me Janice if you have more questions.  r3baseballboys@aol.com. 

      Marian

      • November 27, 2010 at 10:24 pm
      tennisgirl
      Participant

      Janice:  I am also Stage 3 and was put on PLX4032 in May and taken off it in October because my  tumors started to grow again.  I'm finding this is the response for most people.  Going to try Ipi in a few weeks.  I had hair loss and joint pain, my wrists/shoulders ached.  Sun sensitivity!  5 minutes in the sun and my body reacted like it was 5 hrs.   Email me Janice if you have more questions.  r3baseballboys@aol.com. 

      Marian

      • September 22, 2010 at 3:02 pm
      tennisgirl
      Participant

      Just wondering which one did you go with?  Ipi or BRAF.  I'm on BRAF currently but might be switching to Ipi after my next CT scans.  I think my tumors are growing again.  Finish strong.

      • September 22, 2010 at 3:02 pm
      tennisgirl
      Participant

      Just wondering which one did you go with?  Ipi or BRAF.  I'm on BRAF currently but might be switching to Ipi after my next CT scans.  I think my tumors are growing again.  Finish strong.

      • April 20, 2011 at 9:16 pm
      tennisgirl
      Participant

      Thank you both for your fast replys! 

      • April 20, 2011 at 9:16 pm
      tennisgirl
      Participant

      Thank you both for your fast replys! 

Viewing 11 reply threads
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