technogrannie8

Back from MDA in Houston for initial consult and tests.  Usual initial stuff and total body PET and brain MRI.  No report on those yet and no conversation regarding C-kit and/or B-RAF mutations.  I see melanoma radiologist next week and maybe it will come up then.  I see MDA has Integrative Medicine Dept.  Think I will request consult with them if it is not suggested.  I have always been interested in natural health alternatives and, when possible, have followed suggestions of people in that field that I trust  rather than take drugs.  Already put myself on healing diet of no sugar, no white anything, no dairy and lots of blenderized veggies, greens and fruits.  This afte reading Dr. Patrick Quillen's book, Beating Cancer with Nutrition, Dr. Russell Blaylock's book Natural Strategies, and Doug Kaufmann's book The Germ that Causes Cancer.  Can't do all they suggest (my wallet is not fat enough), but I'm trying to as much as I can.  Would really like to have a doctor that will work with me on this instead of having a negative attitude about it.  Anyone here have any experience using such strategies?

Back from MDA in Houston for initial consult and tests.  Usual initial stuff and total body PET and brain MRI.  No report on those yet and no conversation regarding C-kit and/or B-RAF mutations.  I see melanoma radiologist next week and maybe it will come up then.  I see MDA has Integrative Medicine Dept.  Think I will request consult with them if it is not suggested.  I have always been interested in natural health alternatives and, when possible, have followed suggestions of people in that field that I trust  rather than take drugs.  Already put myself on healing diet of no sugar, no white anything, no dairy and lots of blenderized veggies, greens and fruits.  This afte reading Dr. Patrick Quillen's book, Beating Cancer with Nutrition, Dr. Russell Blaylock's book Natural Strategies, and Doug Kaufmann's book The Germ that Causes Cancer.  Can't do all they suggest (my wallet is not fat enough), but I'm trying to as much as I can.  Would really like to have a doctor that will work with me on this instead of having a negative attitude about it.  Anyone here have any experience using such strategies?

Back from MDA in Houston for initial consult and tests.  Usual initial stuff and total body PET and brain MRI.  No report on those yet and no conversation regarding C-kit and/or B-RAF mutations.  I see melanoma radiologist next week and maybe it will come up then.  I see MDA has Integrative Medicine Dept.  Think I will request consult with them if it is not suggested.  I have always been interested in natural health alternatives and, when possible, have followed suggestions of people in that field that I trust  rather than take drugs.  Already put myself on healing diet of no sugar, no white anything, no dairy and lots of blenderized veggies, greens and fruits.  This afte reading Dr. Patrick Quillen's book, Beating Cancer with Nutrition, Dr. Russell Blaylock's book Natural Strategies, and Doug Kaufmann's book The Germ that Causes Cancer.  Can't do all they suggest (my wallet is not fat enough), but I'm trying to as much as I can.  Would really like to have a doctor that will work with me on this instead of having a negative attitude about it.  Anyone here have any experience using such strategies?

Will see Dr. Jeffery Myers tomorrow for my first apt.  Traveling today to Houston.  The fact that you are still here is encouragement.  Thanks for responding.  I'll post more when I know more.

Another newbie.  Had surgery to remove uvula because of growth on it.  Path report said mucosal melanoma.  Headed to M. D Anderson next week for evaluation and recommendations.  Have had no scans, etc. so don't know if and how far it has spread.  Been doing lots of reading.  Have put myself on a anti-cancer healing diet of mostly blenderized fruit, greens, veggie, and protein powder.  Also taking some of the supplements I see recommended.  Great disappointment in that I have been interested in natural health practices for some time and have been on a fairly good diet and some supplents for years.  Evidently did not protect me against this.  However, I have chosen my motto for this chapter of my life to be:

I am here:

1)By God's appointment

2)In His keeping

3)Under His training

4)For His time

      And For His Glory

The picture from what I read is bleak, but I start down this road with confidence that He will lead and guide each step of the way and I trust Him to give me wisdom and strength for decisions I will have to make.

I am glad to have found this forum and look forward to getting lots of good information.

Another newbie.  Had surgery to remove uvula because of growth on it.  Path report said mucosal melanoma.  Headed to M. D Anderson next week for evaluation and recommendations.  Have had no scans, etc. so don't know if and how far it has spread.  Been doing lots of reading.  Have put myself on a anti-cancer healing diet of mostly blenderized fruit, greens, veggie, and protein powder.  Also taking some of the supplements I see recommended.  Great disappointment in that I have been interested in natural health practices for some time and have been on a fairly good diet and some supplents for years.  Evidently did not protect me against this.  However, I have chosen my motto for this chapter of my life to be:

I am here:

1)By God's appointment

2)In His keeping

3)Under His training

4)For His time

      And For His Glory

The picture from what I read is bleak, but I start down this road with confidence that He will lead and guide each step of the way and I trust Him to give me wisdom and strength for decisions I will have to make.

I am glad to have found this forum and look forward to getting lots of good information.

Another newbie.  Had surgery to remove uvula because of growth on it.  Path report said mucosal melanoma.  Headed to M. D Anderson next week for evaluation and recommendations.  Have had no scans, etc. so don't know if and how far it has spread.  Been doing lots of reading.  Have put myself on a anti-cancer healing diet of mostly blenderized fruit, greens, veggie, and protein powder.  Also taking some of the supplements I see recommended.  Great disappointment in that I have been interested in natural health practices for some time and have been on a fairly good diet and some supplents for years.  Evidently did not protect me against this.  However, I have chosen my motto for this chapter of my life to be:

I am here:

1)By God's appointment

2)In His keeping

3)Under His training

4)For His time

      And For His Glory

The picture from what I read is bleak, but I start down this road with confidence that He will lead and guide each step of the way and I trust Him to give me wisdom and strength for decisions I will have to make.

I am glad to have found this forum and look forward to getting lots of good information.

Any suggestions on dosage of Vitamin C during and after radiation treatment.  Oncologists say don't take it, natural health people say it is benefiial.  I have purchased buffered C in ascorbate form as recommended by Dr. Russel Blaylock in his book, I need some guidance on dose amount—especially if I'm going to go against my oncologists.

Thanks,

Technigrannis

Any suggestions on dosage of Vitamin C during and after radiation treatment.  Oncologists say don't take it, natural health people say it is benefiial.  I have purchased buffered C in ascorbate form as recommended by Dr. Russel Blaylock in his book, I need some guidance on dose amount—especially if I'm going to go against my oncologists.

Thanks,

Technigrannis

Any suggestions on dosage of Vitamin C during and after radiation treatment.  Oncologists say don't take it, natural health people say it is benefiial.  I have purchased buffered C in ascorbate form as recommended by Dr. Russel Blaylock in his book, I need some guidance on dose amount—especially if I'm going to go against my oncologists.

Thanks,

Technigrannis

Will "reply" to Jerry because I'm not sure how to post "update."  I may be technogrannie, but still pretty challenged on some of this tech stuff.

Decision made at MDAnderson to treat my mucosal with 5 radiation treatments only because the tissue that is left is "insitu"–not really cancer yet.  I have had one treatment, 4 to go. I know I'm looking at a period of time with very sore mouth and throat.  Doing research and setting up program of supplements to help protect and heal.  Will see Complementary'Alternative doctor here on Friday for his/her suggestions.

They are going to test for the proteins but will be a while before I know the results.  However, dr. said that infor would only be helpful if the cancer returns and they need to decide how to treat it then.

I' m grateful to have fouond this forum to see and learn.

Will "reply" to Jerry because I'm not sure how to post "update."  I may be technogrannie, but still pretty challenged on some of this tech stuff.

Decision made at MDAnderson to treat my mucosal with 5 radiation treatments only because the tissue that is left is "insitu"–not really cancer yet.  I have had one treatment, 4 to go. I know I'm looking at a period of time with very sore mouth and throat.  Doing research and setting up program of supplements to help protect and heal.  Will see Complementary'Alternative doctor here on Friday for his/her suggestions.

They are going to test for the proteins but will be a while before I know the results.  However, dr. said that infor would only be helpful if the cancer returns and they need to decide how to treat it then.

I' m grateful to have fouond this forum to see and learn.

Will "reply" to Jerry because I'm not sure how to post "update."  I may be technogrannie, but still pretty challenged on some of this tech stuff.

Decision made at MDAnderson to treat my mucosal with 5 radiation treatments only because the tissue that is left is "insitu"–not really cancer yet.  I have had one treatment, 4 to go. I know I'm looking at a period of time with very sore mouth and throat.  Doing research and setting up program of supplements to help protect and heal.  Will see Complementary'Alternative doctor here on Friday for his/her suggestions.

They are going to test for the proteins but will be a while before I know the results.  However, dr. said that infor would only be helpful if the cancer returns and they need to decide how to treat it then.

I' m grateful to have fouond this forum to see and learn.

Will see Dr. Jeffery Myers tomorrow for my first apt.  Traveling today to Houston.  The fact that you are still here is encouragement.  Thanks for responding.  I'll post more when I know more.

Will see Dr. Jeffery Myers tomorrow for my first apt.  Traveling today to Houston.  The fact that you are still here is encouragement.  Thanks for responding.  I'll post more when I know more.