stevecathy
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stevecathy

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      • September 29, 2016 at 10:20 pm
      stevecathy
      Participant
      Hi there Niki, I have no advice for for this post . I’m sorry for that , I just wanted to say WOW!!!! I read your bio, you sure have been through it !!! Very inspired by your story. My husband has been onamed this journey since July of 15 and this week had seizure and found 7 brain mets . Doing radiation now and hope to start keytruda soon. Sorry I just wanted to respond to say thanks for sharing your story!! Best wishes and continue to fight!!
      • September 29, 2016 at 10:20 pm
      stevecathy
      Participant
      Hi there Niki, I have no advice for for this post . I’m sorry for that , I just wanted to say WOW!!!! I read your bio, you sure have been through it !!! Very inspired by your story. My husband has been onamed this journey since July of 15 and this week had seizure and found 7 brain mets . Doing radiation now and hope to start keytruda soon. Sorry I just wanted to respond to say thanks for sharing your story!! Best wishes and continue to fight!!
      • September 29, 2016 at 10:20 pm
      stevecathy
      Participant
      Hi there Niki, I have no advice for for this post . I’m sorry for that , I just wanted to say WOW!!!! I read your bio, you sure have been through it !!! Very inspired by your story. My husband has been onamed this journey since July of 15 and this week had seizure and found 7 brain mets . Doing radiation now and hope to start keytruda soon. Sorry I just wanted to respond to say thanks for sharing your story!! Best wishes and continue to fight!!
      • December 2, 2016 at 3:53 pm
      stevecathy
      Participant
      Thank you Celeste
      • December 2, 2016 at 3:53 pm
      stevecathy
      Participant
      Thank you Celeste
      • December 2, 2016 at 3:53 pm
      stevecathy
      Participant
      Thank you Celeste
      • December 2, 2016 at 1:46 am
      stevecathy
      Participant
      Meant no growth
      • December 2, 2016 at 1:46 am
      stevecathy
      Participant
      Meant no growth
      • December 2, 2016 at 1:46 am
      stevecathy
      Participant
      Meant no growth
      • December 2, 2016 at 1:45 am
      stevecathy
      Participant
      He has had scan since fall , there is a bleed again so doing 6mg dexamethasone 4 times day. He is little better but wobbly and can not walk far. He was on mek/take until brain mets in Sept. He now has had 3 keytruda infusion , the 3rd was Tues this week. The vemurafenib and cobimetinib will arrive tomorrow. Just seems slow to bounce back , getting worried . Doctor says mets are stable in growth just to allow keytruda to have response. Hopefully adding vemurafenib and cobimetinib combo will help his gait. Ughhhhh, I’m sooo worried for him .
      • December 2, 2016 at 1:45 am
      stevecathy
      Participant
      He has had scan since fall , there is a bleed again so doing 6mg dexamethasone 4 times day. He is little better but wobbly and can not walk far. He was on mek/take until brain mets in Sept. He now has had 3 keytruda infusion , the 3rd was Tues this week. The vemurafenib and cobimetinib will arrive tomorrow. Just seems slow to bounce back , getting worried . Doctor says mets are stable in growth just to allow keytruda to have response. Hopefully adding vemurafenib and cobimetinib combo will help his gait. Ughhhhh, I’m sooo worried for him .
      • December 2, 2016 at 1:45 am
      stevecathy
      Participant
      He has had scan since fall , there is a bleed again so doing 6mg dexamethasone 4 times day. He is little better but wobbly and can not walk far. He was on mek/take until brain mets in Sept. He now has had 3 keytruda infusion , the 3rd was Tues this week. The vemurafenib and cobimetinib will arrive tomorrow. Just seems slow to bounce back , getting worried . Doctor says mets are stable in growth just to allow keytruda to have response. Hopefully adding vemurafenib and cobimetinib combo will help his gait. Ughhhhh, I’m sooo worried for him .
      • September 29, 2016 at 10:49 pm
      stevecathy
      Participant
      Thank you for the advice. We have appt Monday with pcp and oncologist local. However all records are being sent to ctca in zion where he has been treated. Looking at all their opinions. I thank you for info and will talk with all doctors. I don’t want any cognitive issues. This has been so overwhelming, ughhhhh!! Thank you soo much for reply and advice . I am sooo grateful for this site!!!
      • September 29, 2016 at 10:49 pm
      stevecathy
      Participant
      Thank you for the advice. We have appt Monday with pcp and oncologist local. However all records are being sent to ctca in zion where he has been treated. Looking at all their opinions. I thank you for info and will talk with all doctors. I don’t want any cognitive issues. This has been so overwhelming, ughhhhh!! Thank you soo much for reply and advice . I am sooo grateful for this site!!!
      • September 29, 2016 at 10:49 pm
      stevecathy
      Participant
      Thank you for the advice. We have appt Monday with pcp and oncologist local. However all records are being sent to ctca in zion where he has been treated. Looking at all their opinions. I thank you for info and will talk with all doctors. I don’t want any cognitive issues. This has been so overwhelming, ughhhhh!! Thank you soo much for reply and advice . I am sooo grateful for this site!!!
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