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stevecathy
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stevecathy

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      • September 29, 2016 at 10:20 pm
      stevecathy
      Participant
        Hi there Niki, I have no advice for for this post . I’m sorry for that , I just wanted to say WOW!!!! I read your bio, you sure have been through it !!! Very inspired by your story. My husband has been onamed this journey since July of 15 and this week had seizure and found 7 brain mets . Doing radiation now and hope to start keytruda soon. Sorry I just wanted to respond to say thanks for sharing your story!! Best wishes and continue to fight!!
        • September 29, 2016 at 10:20 pm
        stevecathy
        Participant
          Hi there Niki, I have no advice for for this post . I’m sorry for that , I just wanted to say WOW!!!! I read your bio, you sure have been through it !!! Very inspired by your story. My husband has been onamed this journey since July of 15 and this week had seizure and found 7 brain mets . Doing radiation now and hope to start keytruda soon. Sorry I just wanted to respond to say thanks for sharing your story!! Best wishes and continue to fight!!
          • September 29, 2016 at 10:20 pm
          stevecathy
          Participant
            Hi there Niki, I have no advice for for this post . I’m sorry for that , I just wanted to say WOW!!!! I read your bio, you sure have been through it !!! Very inspired by your story. My husband has been onamed this journey since July of 15 and this week had seizure and found 7 brain mets . Doing radiation now and hope to start keytruda soon. Sorry I just wanted to respond to say thanks for sharing your story!! Best wishes and continue to fight!!
            • December 2, 2016 at 3:53 pm
            stevecathy
            Participant
              Thank you Celeste
              • December 2, 2016 at 3:53 pm
              stevecathy
              Participant
                Thank you Celeste
                • December 2, 2016 at 3:53 pm
                stevecathy
                Participant
                  Thank you Celeste
                  • December 2, 2016 at 1:46 am
                  stevecathy
                  Participant
                    Meant no growth
                    • December 2, 2016 at 1:46 am
                    stevecathy
                    Participant
                      Meant no growth
                      • December 2, 2016 at 1:46 am
                      stevecathy
                      Participant
                        Meant no growth
                        • December 2, 2016 at 1:45 am
                        stevecathy
                        Participant
                          He has had scan since fall , there is a bleed again so doing 6mg dexamethasone 4 times day. He is little better but wobbly and can not walk far. He was on mek/take until brain mets in Sept. He now has had 3 keytruda infusion , the 3rd was Tues this week. The vemurafenib and cobimetinib will arrive tomorrow. Just seems slow to bounce back , getting worried . Doctor says mets are stable in growth just to allow keytruda to have response. Hopefully adding vemurafenib and cobimetinib combo will help his gait. Ughhhhh, I’m sooo worried for him .
                          • December 2, 2016 at 1:45 am
                          stevecathy
                          Participant
                            He has had scan since fall , there is a bleed again so doing 6mg dexamethasone 4 times day. He is little better but wobbly and can not walk far. He was on mek/take until brain mets in Sept. He now has had 3 keytruda infusion , the 3rd was Tues this week. The vemurafenib and cobimetinib will arrive tomorrow. Just seems slow to bounce back , getting worried . Doctor says mets are stable in growth just to allow keytruda to have response. Hopefully adding vemurafenib and cobimetinib combo will help his gait. Ughhhhh, I’m sooo worried for him .
                            • December 2, 2016 at 1:45 am
                            stevecathy
                            Participant
                              He has had scan since fall , there is a bleed again so doing 6mg dexamethasone 4 times day. He is little better but wobbly and can not walk far. He was on mek/take until brain mets in Sept. He now has had 3 keytruda infusion , the 3rd was Tues this week. The vemurafenib and cobimetinib will arrive tomorrow. Just seems slow to bounce back , getting worried . Doctor says mets are stable in growth just to allow keytruda to have response. Hopefully adding vemurafenib and cobimetinib combo will help his gait. Ughhhhh, I’m sooo worried for him .
                              • September 29, 2016 at 10:49 pm
                              stevecathy
                              Participant
                                Thank you for the advice. We have appt Monday with pcp and oncologist local. However all records are being sent to ctca in zion where he has been treated. Looking at all their opinions. I thank you for info and will talk with all doctors. I don’t want any cognitive issues. This has been so overwhelming, ughhhhh!! Thank you soo much for reply and advice . I am sooo grateful for this site!!!
                                • September 29, 2016 at 10:49 pm
                                stevecathy
                                Participant
                                  Thank you for the advice. We have appt Monday with pcp and oncologist local. However all records are being sent to ctca in zion where he has been treated. Looking at all their opinions. I thank you for info and will talk with all doctors. I don’t want any cognitive issues. This has been so overwhelming, ughhhhh!! Thank you soo much for reply and advice . I am sooo grateful for this site!!!
                                  • September 29, 2016 at 10:49 pm
                                  stevecathy
                                  Participant
                                    Thank you for the advice. We have appt Monday with pcp and oncologist local. However all records are being sent to ctca in zion where he has been treated. Looking at all their opinions. I thank you for info and will talk with all doctors. I don’t want any cognitive issues. This has been so overwhelming, ughhhhh!! Thank you soo much for reply and advice . I am sooo grateful for this site!!!
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