Sflynn
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Sflynn

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      • August 2, 2016 at 9:28 am
      Sflynn
      Participant

      Well.. My update to my last post is not how I thought it would be.. My husband tried a second round of Taf/Mek after it failing the 1st time. He made it 12 weeks this time. He had a repeat MRI and catscan After having to take him to the e.r. For severe head and ear pain. He was admitted due to complications to the progression of the disease. Even on treatment he developed new brain mets, total of 18 now. Ranging in size 10mm all the way up to 3x3cm and is starting to invade the dura on his right temporal lobe..All mets now have started all to hemorrhage. An increase in steroids and anti seizure meds seem to be doing nothing!! Docs are not hopeful being that he is almost 1 year diagnosed. This disease is horrible!!! 

       

        • August 2, 2016 at 9:28 am
        Sflynn
        Participant

        Well.. My update to my last post is not how I thought it would be.. My husband tried a second round of Taf/Mek after it failing the 1st time. He made it 12 weeks this time. He had a repeat MRI and catscan After having to take him to the e.r. For severe head and ear pain. He was admitted due to complications to the progression of the disease. Even on treatment he developed new brain mets, total of 18 now. Ranging in size 10mm all the way up to 3x3cm and is starting to invade the dura on his right temporal lobe..All mets now have started all to hemorrhage. An increase in steroids and anti seizure meds seem to be doing nothing!! Docs are not hopeful being that he is almost 1 year diagnosed. This disease is horrible!!! 

         

          • August 2, 2016 at 9:28 am
          Sflynn
          Participant

          Well.. My update to my last post is not how I thought it would be.. My husband tried a second round of Taf/Mek after it failing the 1st time. He made it 12 weeks this time. He had a repeat MRI and catscan After having to take him to the e.r. For severe head and ear pain. He was admitted due to complications to the progression of the disease. Even on treatment he developed new brain mets, total of 18 now. Ranging in size 10mm all the way up to 3x3cm and is starting to invade the dura on his right temporal lobe..All mets now have started all to hemorrhage. An increase in steroids and anti seizure meds seem to be doing nothing!! Docs are not hopeful being that he is almost 1 year diagnosed. This disease is horrible!!! 

           

            • July 13, 2016 at 6:56 pm
            Sflynn
            Participant

            My husband developed a grade 3 rash from the Opdivo. Ended up having to discontinue the treatment and have high doses of prednisone over a period of 12 weeks. Over the counters didn't work. He is now on a reduced dosage of the Tafinlar /Mekinist due to the reactions from that the 1st time he tried it. Good Luck To You!

            • July 13, 2016 at 6:56 pm
            Sflynn
            Participant

            My husband developed a grade 3 rash from the Opdivo. Ended up having to discontinue the treatment and have high doses of prednisone over a period of 12 weeks. Over the counters didn't work. He is now on a reduced dosage of the Tafinlar /Mekinist due to the reactions from that the 1st time he tried it. Good Luck To You!

            • July 13, 2016 at 6:56 pm
            Sflynn
            Participant

            My husband developed a grade 3 rash from the Opdivo. Ended up having to discontinue the treatment and have high doses of prednisone over a period of 12 weeks. Over the counters didn't work. He is now on a reduced dosage of the Tafinlar /Mekinist due to the reactions from that the 1st time he tried it. Good Luck To You!

            • May 4, 2016 at 1:46 pm
            Sflynn
            Participant

            Thank you Celeste. 

            • May 4, 2016 at 1:46 pm
            Sflynn
            Participant

            Thank you Celeste. 

            • May 4, 2016 at 1:46 pm
            Sflynn
            Participant

            Thank you Celeste. 

            • May 4, 2016 at 1:45 pm
            Sflynn
            Participant

            Thank you! He is on these 7 days a week no break. 4 Taf 1Mek. The last time he tried it he was on 6 Taf and 1 Mek a day. Glad to hear you had some stability on the meds. Good luck to you! 

            • May 4, 2016 at 1:45 pm
            Sflynn
            Participant

            Thank you! He is on these 7 days a week no break. 4 Taf 1Mek. The last time he tried it he was on 6 Taf and 1 Mek a day. Glad to hear you had some stability on the meds. Good luck to you! 

            • May 4, 2016 at 1:45 pm
            Sflynn
            Participant

            Thank you! He is on these 7 days a week no break. 4 Taf 1Mek. The last time he tried it he was on 6 Taf and 1 Mek a day. Glad to hear you had some stability on the meds. Good luck to you! 

            • May 4, 2016 at 1:42 pm
            Sflynn
            Participant

            Thank you for the recommendation on the Zelboraf. I will definitely look into it.. It seems with all these drugs there are so many horrible side effects. 

            • May 4, 2016 at 1:42 pm
            Sflynn
            Participant

            Thank you for the recommendation on the Zelboraf. I will definitely look into it.. It seems with all these drugs there are so many horrible side effects. 

            • May 4, 2016 at 1:42 pm
            Sflynn
            Participant

            Thank you for the recommendation on the Zelboraf. I will definitely look into it.. It seems with all these drugs there are so many horrible side effects. 

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