MRF-Logo2019-Horizontal-RGB
Rncab218
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Rncab218

Forum Replies Created

Viewing 4 reply threads
  • Replies
      • April 16, 2019 at 1:43 pm
      Rncab218
      Participant

        I had to stop nivo treatment after four treatments due to severe diarrhea, muscle and joint pain and itching. I was tapered on prednisone for three weeks.  Last treatment was December. I am still having side effects especially joint pain in my hands mostly and living in Motrin.  I am told the medication works in your body for six months.  I hope these side effects stop soon and are not permanent   I am sorry you all are having side effects too but felt a little better I am not the only one. Thank you

        • February 25, 2011 at 12:07 am
        Rncab218
        Participant

          glad you are feeling well  Yes, the doctors and nurses at sloan are the best, had my surgery and treatment there and still following up every 3 months hoping we both stay NED!!  rest and take care.

          • February 25, 2011 at 12:07 am
          Rncab218
          Participant

            glad you are feeling well  Yes, the doctors and nurses at sloan are the best, had my surgery and treatment there and still following up every 3 months hoping we both stay NED!!  rest and take care.

            • February 2, 2011 at 3:41 pm
            Rncab218
            Participant

              Congratulations Carole!!

              I read posts almost daily but dont post myself often but when i saw this i just wanted to thank you for all you do.  When i was diagnosed in may 2009., i somehow found your email online and your help got me through a very tough time.  I'm glad you are still doing well and thank you again for all your help and kindness

              Cindy

              • February 2, 2011 at 3:41 pm
              Rncab218
              Participant

                Congratulations Carole!!

                I read posts almost daily but dont post myself often but when i saw this i just wanted to thank you for all you do.  When i was diagnosed in may 2009., i somehow found your email online and your help got me through a very tough time.  I'm glad you are still doing well and thank you again for all your help and kindness

                Cindy

            Viewing 4 reply threads