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I finished a clinical trial of opdivo and yervoy last August for stage 3b melanoma. Not sure if I was getting just Opdivo or the combo. But here I am 7 months out and still experiencing extreme fatique and muscle/joint pain. Does anyone know if this is normal? Can I expect these side effects to subside of will they be something I will always have to deal with? I can't seem to find any definitive answers anywhere online.
My last treatment was in August also, 5 yervoy and 52 opdivo and none of my side effects have gone away. The fatigue has been my worse side effect and it is still horrible. I keep telling myself it is better than the stage IV melanoma I had.
Unfortunately, the side effects do seem to linger. I have joint pain and fatigue, although the fatigue has lessened some except at the end of the work week. I use CBD/THC for joint pain (find a salve or cream). I am Stage 4 and did yervoy/opdivo for four and then opdivo alone for one year. NED now so willing to put up with the side effects – an easy trade off. Best wishes!
I had to stop nivo treatment after four treatments due to severe diarrhea, muscle and joint pain and itching. I was tapered on prednisone for three weeks. Last treatment was December. I am still having side effects especially joint pain in my hands mostly and living in Motrin. I am told the medication works in your body for six months. I hope these side effects stop soon and are not permanent I am sorry you all are having side effects too but felt a little better I am not the only one. Thank you
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