rlowe
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rlowe

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  • Replies
      • December 7, 2012 at 7:19 pm
      rlowe
      Participant
      I asked about that very thing at Vandy. They told me I could bring a water enhancer like Meo or whatever its called to squirt in it. I have scans in 2 weeks – I will try it and let you know.

      Rusty 3b on ippi trial

      • December 7, 2012 at 7:19 pm
      rlowe
      Participant
      I asked about that very thing at Vandy. They told me I could bring a water enhancer like Meo or whatever its called to squirt in it. I have scans in 2 weeks – I will try it and let you know.

      Rusty 3b on ippi trial

      • December 7, 2012 at 7:19 pm
      rlowe
      Participant
      I asked about that very thing at Vandy. They told me I could bring a water enhancer like Meo or whatever its called to squirt in it. I have scans in 2 weeks – I will try it and let you know.

      Rusty 3b on ippi trial

      • June 15, 2012 at 8:32 pm
      rlowe
      Participant

      My primary was a nodule on the crown of my head. I had WLE and skin graft ( skin from my thigh). The graft is about 2" in diameter. My surgeon put a round hard cap on my head over the bandages. The cap had a chin strap on it. I had to wear it for a week solid. I think it was to keep light pressure on it. The graft was bothersome, but not too painful. The skin donation site took longer to heal. They also did a SLNB which found one positive node in my neck.

      That was the first surgery I've ever had. It was day surgery so not long in the hospital. I hope everything goes well for you.

      Rusty stage 3B

      • June 15, 2012 at 8:32 pm
      rlowe
      Participant

      My primary was a nodule on the crown of my head. I had WLE and skin graft ( skin from my thigh). The graft is about 2" in diameter. My surgeon put a round hard cap on my head over the bandages. The cap had a chin strap on it. I had to wear it for a week solid. I think it was to keep light pressure on it. The graft was bothersome, but not too painful. The skin donation site took longer to heal. They also did a SLNB which found one positive node in my neck.

      That was the first surgery I've ever had. It was day surgery so not long in the hospital. I hope everything goes well for you.

      Rusty stage 3B

      • June 15, 2012 at 8:32 pm
      rlowe
      Participant

      My primary was a nodule on the crown of my head. I had WLE and skin graft ( skin from my thigh). The graft is about 2" in diameter. My surgeon put a round hard cap on my head over the bandages. The cap had a chin strap on it. I had to wear it for a week solid. I think it was to keep light pressure on it. The graft was bothersome, but not too painful. The skin donation site took longer to heal. They also did a SLNB which found one positive node in my neck.

      That was the first surgery I've ever had. It was day surgery so not long in the hospital. I hope everything goes well for you.

      Rusty stage 3B

      • May 1, 2012 at 1:00 am
      rlowe
      Participant
      Yea, I think that is the only way to know for sure without the agonizing wait for more scans. I don’t know if the atelectasis is associated with a met or cancer. When I google lung nodules, most mention “without atelectasis”. And the term emphasematic changes scares me. I’m only 47 and have never smoked.
      Harry, it looks like we have head/neck in common. Mine was a raised ulcerated nodule on the top of my head with one positive node in neck. Thank you for the reply.

      RLowe

      • May 1, 2012 at 1:00 am
      rlowe
      Participant
      Yea, I think that is the only way to know for sure without the agonizing wait for more scans. I don’t know if the atelectasis is associated with a met or cancer. When I google lung nodules, most mention “without atelectasis”. And the term emphasematic changes scares me. I’m only 47 and have never smoked.
      Harry, it looks like we have head/neck in common. Mine was a raised ulcerated nodule on the top of my head with one positive node in neck. Thank you for the reply.

      RLowe

      • May 1, 2012 at 1:00 am
      rlowe
      Participant
      Yea, I think that is the only way to know for sure without the agonizing wait for more scans. I don’t know if the atelectasis is associated with a met or cancer. When I google lung nodules, most mention “without atelectasis”. And the term emphasematic changes scares me. I’m only 47 and have never smoked.
      Harry, it looks like we have head/neck in common. Mine was a raised ulcerated nodule on the top of my head with one positive node in neck. Thank you for the reply.

      RLowe

      • June 3, 2014 at 9:50 pm
      rlowe
      Participant

      Inflamed pituitary can cause eye issues too. Has he had head aches?  Stay on your onc until they find out what it is. 

      • June 3, 2014 at 9:50 pm
      rlowe
      Participant

      Inflamed pituitary can cause eye issues too. Has he had head aches?  Stay on your onc until they find out what it is. 

      • June 3, 2014 at 9:50 pm
      rlowe
      Participant

      Inflamed pituitary can cause eye issues too. Has he had head aches?  Stay on your onc until they find out what it is. 

      • October 16, 2013 at 3:04 pm
      rlowe
      Participant
      No I have not been able to come off. I was tested after 6 months to check my adrenal function, but there was nothing. They think I will have to be on prednisone forever

      I am sorry to hear you have had issues too. I am just glad for no colitis. Yuk

      • October 16, 2013 at 3:04 pm
      rlowe
      Participant
      No I have not been able to come off. I was tested after 6 months to check my adrenal function, but there was nothing. They think I will have to be on prednisone forever

      I am sorry to hear you have had issues too. I am just glad for no colitis. Yuk

      • October 16, 2013 at 3:04 pm
      rlowe
      Participant
      No I have not been able to come off. I was tested after 6 months to check my adrenal function, but there was nothing. They think I will have to be on prednisone forever

      I am sorry to hear you have had issues too. I am just glad for no colitis. Yuk

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