Forum Replies Created
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- July 23, 2011 at 4:36 pm
Hi all. I am another MDA patient. I see Dr. Lucci(surg) and Dr. P Hwu(onc). Stage IIIa, currently NED. I have scans on Aug. 8 and see Dr. Hwu on the 9th. I live NW of Houston near Cypress. Let me know if I can help in any way. I will make one point–be prepared for the heat and humidity! I have lived in the area my entire life and sometimes it gets to me. At least we have A/C everywhere.
Phyllis
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- July 23, 2011 at 4:36 pm
Hi all. I am another MDA patient. I see Dr. Lucci(surg) and Dr. P Hwu(onc). Stage IIIa, currently NED. I have scans on Aug. 8 and see Dr. Hwu on the 9th. I live NW of Houston near Cypress. Let me know if I can help in any way. I will make one point–be prepared for the heat and humidity! I have lived in the area my entire life and sometimes it gets to me. At least we have A/C everywhere.
Phyllis
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- December 11, 2010 at 4:30 pm
I would also like you to email me the report. [email protected] I was dx in Nov. 09, WLE, SNB–1 pos. then TLD none pos. That makes me IIIA. Scans 2 weeks ago were negative. Yea! I have added some of the mentioned supplements and added more fruits/vegs but still eat meat and I do enjoy red wine daily. Thats where I get resveratol!
thanks for posting about the article.
Phyllis
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- December 11, 2010 at 4:30 pm
I would also like you to email me the report. [email protected] I was dx in Nov. 09, WLE, SNB–1 pos. then TLD none pos. That makes me IIIA. Scans 2 weeks ago were negative. Yea! I have added some of the mentioned supplements and added more fruits/vegs but still eat meat and I do enjoy red wine daily. Thats where I get resveratol!
thanks for posting about the article.
Phyllis
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- November 16, 2010 at 3:43 pm
Hi Aaron,
I am also 3A diagnosed Dec. 09. I live in Houston as well and see Dr. Patrick Hwu at MDA. I was offered the pegylated interferon trial too, but chose not to do it because I got a blood clot after my lymphadectomy and had to do 3 months of Fragmin injections. Currently I am NED and go in for scans and derm. checks every 3 months. I wasn't offered the HD interferon but after researching mel treatments and statistics I didn't consider it. It really is a personal choice.
I also try to eat healthy but still enjoy coffee and red wine. I added Tumeric to my supplements because I read it can be beneficial in fighting melanoma. My next scans are the week after Thanksgiving…so I am praying for NED. Whatever trreatment (or none) you decide on I wish you the best.
Phyllis
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- November 16, 2010 at 3:43 pm
Hi Aaron,
I am also 3A diagnosed Dec. 09. I live in Houston as well and see Dr. Patrick Hwu at MDA. I was offered the pegylated interferon trial too, but chose not to do it because I got a blood clot after my lymphadectomy and had to do 3 months of Fragmin injections. Currently I am NED and go in for scans and derm. checks every 3 months. I wasn't offered the HD interferon but after researching mel treatments and statistics I didn't consider it. It really is a personal choice.
I also try to eat healthy but still enjoy coffee and red wine. I added Tumeric to my supplements because I read it can be beneficial in fighting melanoma. My next scans are the week after Thanksgiving…so I am praying for NED. Whatever trreatment (or none) you decide on I wish you the best.
Phyllis
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- September 6, 2010 at 2:28 pm
I had a similar experience with my husband Curtis who had surgery for an abdominal cancer. The incision was 8-10" long. He had surgery in another state and I wasn't there when they gave the instructions for the "wet to dry" technique. So he and a friend told me how to do it. I was nervous not by the incision but because of the chance of infection in what looked to me like a gaping wound! The first time we went to a walk-in clinic. I thought that by watching someone do it I could too. Well, they didn't know what they were doing, even with Curtis telling them. It annoyed both of us! At that point I decided I could do a much better job myself. After the first couple of times we had our routine down. To this day I am surprised by how well the incision healed w/o any infection. Just my experience.
I totally understand your feelings. I can do things like that but couldn't be in the room for IV starts, Subclavian Caths, PICC lines etc. I always get light headed. Best wishes for quick healing.
Phyllis
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- September 6, 2010 at 2:28 pm
I had a similar experience with my husband Curtis who had surgery for an abdominal cancer. The incision was 8-10" long. He had surgery in another state and I wasn't there when they gave the instructions for the "wet to dry" technique. So he and a friend told me how to do it. I was nervous not by the incision but because of the chance of infection in what looked to me like a gaping wound! The first time we went to a walk-in clinic. I thought that by watching someone do it I could too. Well, they didn't know what they were doing, even with Curtis telling them. It annoyed both of us! At that point I decided I could do a much better job myself. After the first couple of times we had our routine down. To this day I am surprised by how well the incision healed w/o any infection. Just my experience.
I totally understand your feelings. I can do things like that but couldn't be in the room for IV starts, Subclavian Caths, PICC lines etc. I always get light headed. Best wishes for quick healing.
Phyllis
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