paul Lyons

Hello Frank,

I've been on MEK combo for about eight months. Have had several bouts of fevers/chills (none recently). One time I went to the ER and was given fluids–they mostly check for what is causing the fever, to make sure that it's not caused by an infection. I try to stay well-hydrated, and when I'm feeling light-headed or fatigued often drinking a sports drink, like Gatorade, will relieve it somewhat. Often the RN is more up-to-date than the oncologist about side-effects–especially in places where there have not yet been many MEK patients. If the difficulty climbing the stairs was the result of fatigue, that sounds unusual–if it's because of the severe foot soreness that comes seemingly randomly, it's totally normal and will likely pass. Hang in there.

Paul

Hello Frank,

I've been on MEK combo for about eight months. Have had several bouts of fevers/chills (none recently). One time I went to the ER and was given fluids–they mostly check for what is causing the fever, to make sure that it's not caused by an infection. I try to stay well-hydrated, and when I'm feeling light-headed or fatigued often drinking a sports drink, like Gatorade, will relieve it somewhat. Often the RN is more up-to-date than the oncologist about side-effects–especially in places where there have not yet been many MEK patients. If the difficulty climbing the stairs was the result of fatigue, that sounds unusual–if it's because of the severe foot soreness that comes seemingly randomly, it's totally normal and will likely pass. Hang in there.

Paul

Hello Frank,

I've been on MEK combo for about eight months. Have had several bouts of fevers/chills (none recently). One time I went to the ER and was given fluids–they mostly check for what is causing the fever, to make sure that it's not caused by an infection. I try to stay well-hydrated, and when I'm feeling light-headed or fatigued often drinking a sports drink, like Gatorade, will relieve it somewhat. Often the RN is more up-to-date than the oncologist about side-effects–especially in places where there have not yet been many MEK patients. If the difficulty climbing the stairs was the result of fatigue, that sounds unusual–if it's because of the severe foot soreness that comes seemingly randomly, it's totally normal and will likely pass. Hang in there.

Paul

Hi Steve,

I've been on the MEK combo for about eight months, after having been on Zelboraf for four months. I've had fewer side effects on the MEK, and it seems to have kept my disease stable.

All the best to you,

Paul

Hi Steve,

I've been on the MEK combo for about eight months, after having been on Zelboraf for four months. I've had fewer side effects on the MEK, and it seems to have kept my disease stable.

All the best to you,

Paul

Hi Steve,

I've been on the MEK combo for about eight months, after having been on Zelboraf for four months. I've had fewer side effects on the MEK, and it seems to have kept my disease stable.

All the best to you,

Paul

I had these symptoms from other treatments. For mucusitus I was helped by something called Stanford Protocol (a rinse and swallow). Biotene helps a little for dry mouth, and for mouth health, and they make small spray products as well.

I had these symptoms from other treatments. For mucusitus I was helped by something called Stanford Protocol (a rinse and swallow). Biotene helps a little for dry mouth, and for mouth health, and they make small spray products as well.

I had these symptoms from other treatments. For mucusitus I was helped by something called Stanford Protocol (a rinse and swallow). Biotene helps a little for dry mouth, and for mouth health, and they make small spray products as well.

Hi Kevin,

Sounds sane to me!

I've been in this place (Stage 4 NED), and made the choice to watch and wait, try to stay healthy, while being proactive about checking things out. I don't see compelling evidence for a prophylactic use of systemic therapies or vaccines.

Paul

Hi Kevin,

Sounds sane to me!

I've been in this place (Stage 4 NED), and made the choice to watch and wait, try to stay healthy, while being proactive about checking things out. I don't see compelling evidence for a prophylactic use of systemic therapies or vaccines.

Paul

Hi Kevin,

Sounds sane to me!

I've been in this place (Stage 4 NED), and made the choice to watch and wait, try to stay healthy, while being proactive about checking things out. I don't see compelling evidence for a prophylactic use of systemic therapies or vaccines.

Paul

Hello Lisa,

I've done MOHs several times — it seems to be most considered for spots on the face that look contained where the extra tissue might make a significant cosmetic difference. I was told they see the melanoma pretty clearly, but that was by a MOHs practitioner, and I'm not sure is wholly supported (or disallowed) by data.

Paul

Hello Lisa,

I've done MOHs several times — it seems to be most considered for spots on the face that look contained where the extra tissue might make a significant cosmetic difference. I was told they see the melanoma pretty clearly, but that was by a MOHs practitioner, and I'm not sure is wholly supported (or disallowed) by data.

Paul

Hello Lisa,

I've done MOHs several times — it seems to be most considered for spots on the face that look contained where the extra tissue might make a significant cosmetic difference. I was told they see the melanoma pretty clearly, but that was by a MOHs practitioner, and I'm not sure is wholly supported (or disallowed) by data.

Paul