paleskinisin
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paleskinisin

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      • January 19, 2011 at 3:04 am
      paleskinisin
      Participant

      Thanks everyone!  She is Goldsboro, about an hr south of Raleigh.  I'll give her these docs/locations. She's willing to travel for a good doc.

      Again, thanks!

      • January 19, 2011 at 3:04 am
      paleskinisin
      Participant

      Thanks everyone!  She is Goldsboro, about an hr south of Raleigh.  I'll give her these docs/locations. She's willing to travel for a good doc.

      Again, thanks!

      • September 20, 2010 at 5:37 am
      paleskinisin
      Participant

      So glad to hear she is doing so well!  Congratulations to her and the entire family.  Also, what an amazing thing you are doing for other families.

      • September 20, 2010 at 5:37 am
      paleskinisin
      Participant

      So glad to hear she is doing so well!  Congratulations to her and the entire family.  Also, what an amazing thing you are doing for other families.

      • September 20, 2010 at 5:14 am
      paleskinisin
      Participant

      Thank you KatyWI and LBN.  I was interested in hearing from those who have had this treatment.  I know it is not the newest treatment, but it is a treatment that is still used by many.  Thank you for sharing your experiences and thoughts. 

      I wish you both the best of health and success in your journey's.

      Tina

       

      • September 20, 2010 at 5:14 am
      paleskinisin
      Participant

      Thank you KatyWI and LBN.  I was interested in hearing from those who have had this treatment.  I know it is not the newest treatment, but it is a treatment that is still used by many.  Thank you for sharing your experiences and thoughts. 

      I wish you both the best of health and success in your journey's.

      Tina

       

      • September 19, 2010 at 9:06 pm
      paleskinisin
      Participant

      I just found an article that mentions the MRF wanting to do a BRAF/IPI trial: "Dr. Schuchter said that the Melanoma Research Foundation is in the planning stages of a study that combines ipilimumab and PLX4032 in patients with metastatic melanoma." Doesn't mention timing, but seems this is the line of thinking.

       http://www.medscape.com/viewarticle/727137.  It is mentioned at the bottom of the article.

      • September 19, 2010 at 9:06 pm
      paleskinisin
      Participant

      I just found an article that mentions the MRF wanting to do a BRAF/IPI trial: "Dr. Schuchter said that the Melanoma Research Foundation is in the planning stages of a study that combines ipilimumab and PLX4032 in patients with metastatic melanoma." Doesn't mention timing, but seems this is the line of thinking.

       http://www.medscape.com/viewarticle/727137.  It is mentioned at the bottom of the article.

      • September 21, 2010 at 5:45 pm
      paleskinisin
      Participant

      Thanks Debbie!  I am on my way to my Dr.'s visit to discuss treatment.  I have my list of questions from my research and the information I received from those on this site – thanks everyone.

      It is fantastic to hear from a responder of IL-2.  I know the percentage is low for responders, but I know there are folks out there so thanks for posting.  I will email you soon. 

      Thanks so much and good health to all!

      Tina

      • September 21, 2010 at 5:45 pm
      paleskinisin
      Participant

      Thanks Debbie!  I am on my way to my Dr.'s visit to discuss treatment.  I have my list of questions from my research and the information I received from those on this site – thanks everyone.

      It is fantastic to hear from a responder of IL-2.  I know the percentage is low for responders, but I know there are folks out there so thanks for posting.  I will email you soon. 

      Thanks so much and good health to all!

      Tina

      • September 20, 2010 at 5:02 am
      paleskinisin
      Participant

      Thanks Jim.  This is the trial I found on the website for MD Anderson – Houston.  The criteria for this trial is tumors must be at least 1 cm.  Mine are all under 1 cm.  According to this criteria, I don't qualify.  I am going to ask my doc about it, but I don't think I can get on this one.

      • September 20, 2010 at 5:02 am
      paleskinisin
      Participant

      Thanks Jim.  This is the trial I found on the website for MD Anderson – Houston.  The criteria for this trial is tumors must be at least 1 cm.  Mine are all under 1 cm.  According to this criteria, I don't qualify.  I am going to ask my doc about it, but I don't think I can get on this one.

      • September 19, 2010 at 8:40 pm
      paleskinisin
      Participant

      Thanks Jim in Denver for your response.  I definately conducting my own research on this site as well as elsewhere and seeking second opinions. I posted on this site about IL-2 to get information from those who have gone through it as well as just information in general.  I appreciate all the feedback that I have received so far. 

      I looked into the trials at MD Anderson in Houston and they have 2 protocols.  One you have to have failed another treatment to qualify and the other your tumor must be at least 1 cm.  My tumors are all under this size.  I'll still discuss this with my doc, but it seems that at this point I am not eligible for either at this location.  I'll research and see if there are any others that I may qualify for.  

      I'm familiar with both the GSK trial and the Roche. Thanks for the information and the encouragement!  I wish you success with your current treatment.

      Tina

      • September 19, 2010 at 8:40 pm
      paleskinisin
      Participant

      Thanks Jim in Denver for your response.  I definately conducting my own research on this site as well as elsewhere and seeking second opinions. I posted on this site about IL-2 to get information from those who have gone through it as well as just information in general.  I appreciate all the feedback that I have received so far. 

      I looked into the trials at MD Anderson in Houston and they have 2 protocols.  One you have to have failed another treatment to qualify and the other your tumor must be at least 1 cm.  My tumors are all under this size.  I'll still discuss this with my doc, but it seems that at this point I am not eligible for either at this location.  I'll research and see if there are any others that I may qualify for.  

      I'm familiar with both the GSK trial and the Roche. Thanks for the information and the encouragement!  I wish you success with your current treatment.

      Tina

      • September 19, 2010 at 6:01 pm
      paleskinisin
      Participant

      Wow, Vera, we have a lot in common.  I also have Patrick Donovan as my primary oncologist and see Dr. Hersh down in Tucson.  I'll email you and we can chat.

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