Forum Replies Created
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- January 19, 2011 at 3:04 am
Thanks everyone! She is Goldsboro, about an hr south of Raleigh. I'll give her these docs/locations. She's willing to travel for a good doc.
Again, thanks!
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- January 19, 2011 at 3:04 am
Thanks everyone! She is Goldsboro, about an hr south of Raleigh. I'll give her these docs/locations. She's willing to travel for a good doc.
Again, thanks!
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- September 20, 2010 at 5:37 am
So glad to hear she is doing so well! Congratulations to her and the entire family. Also, what an amazing thing you are doing for other families.
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- September 20, 2010 at 5:37 am
So glad to hear she is doing so well! Congratulations to her and the entire family. Also, what an amazing thing you are doing for other families.
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- September 20, 2010 at 5:14 am
Thank you KatyWI and LBN. I was interested in hearing from those who have had this treatment. I know it is not the newest treatment, but it is a treatment that is still used by many. Thank you for sharing your experiences and thoughts.
I wish you both the best of health and success in your journey's.
Tina
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- September 20, 2010 at 5:14 am
Thank you KatyWI and LBN. I was interested in hearing from those who have had this treatment. I know it is not the newest treatment, but it is a treatment that is still used by many. Thank you for sharing your experiences and thoughts.
I wish you both the best of health and success in your journey's.
Tina
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- September 19, 2010 at 9:06 pm
I just found an article that mentions the MRF wanting to do a BRAF/IPI trial: "Dr. Schuchter said that the Melanoma Research Foundation is in the planning stages of a study that combines ipilimumab and PLX4032 in patients with metastatic melanoma." Doesn't mention timing, but seems this is the line of thinking.
http://www.medscape.com/viewarticle/727137. It is mentioned at the bottom of the article.
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- September 19, 2010 at 9:06 pm
I just found an article that mentions the MRF wanting to do a BRAF/IPI trial: "Dr. Schuchter said that the Melanoma Research Foundation is in the planning stages of a study that combines ipilimumab and PLX4032 in patients with metastatic melanoma." Doesn't mention timing, but seems this is the line of thinking.
http://www.medscape.com/viewarticle/727137. It is mentioned at the bottom of the article.
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- September 21, 2010 at 5:45 pm
Thanks Debbie! I am on my way to my Dr.'s visit to discuss treatment. I have my list of questions from my research and the information I received from those on this site – thanks everyone.
It is fantastic to hear from a responder of IL-2. I know the percentage is low for responders, but I know there are folks out there so thanks for posting. I will email you soon.
Thanks so much and good health to all!
Tina
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- September 21, 2010 at 5:45 pm
Thanks Debbie! I am on my way to my Dr.'s visit to discuss treatment. I have my list of questions from my research and the information I received from those on this site – thanks everyone.
It is fantastic to hear from a responder of IL-2. I know the percentage is low for responders, but I know there are folks out there so thanks for posting. I will email you soon.
Thanks so much and good health to all!
Tina
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- September 20, 2010 at 5:02 am
Thanks Jim. This is the trial I found on the website for MD Anderson – Houston. The criteria for this trial is tumors must be at least 1 cm. Mine are all under 1 cm. According to this criteria, I don't qualify. I am going to ask my doc about it, but I don't think I can get on this one.
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- September 20, 2010 at 5:02 am
Thanks Jim. This is the trial I found on the website for MD Anderson – Houston. The criteria for this trial is tumors must be at least 1 cm. Mine are all under 1 cm. According to this criteria, I don't qualify. I am going to ask my doc about it, but I don't think I can get on this one.
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- September 19, 2010 at 8:40 pm
Thanks Jim in Denver for your response. I definately conducting my own research on this site as well as elsewhere and seeking second opinions. I posted on this site about IL-2 to get information from those who have gone through it as well as just information in general. I appreciate all the feedback that I have received so far.
I looked into the trials at MD Anderson in Houston and they have 2 protocols. One you have to have failed another treatment to qualify and the other your tumor must be at least 1 cm. My tumors are all under this size. I'll still discuss this with my doc, but it seems that at this point I am not eligible for either at this location. I'll research and see if there are any others that I may qualify for.
I'm familiar with both the GSK trial and the Roche. Thanks for the information and the encouragement! I wish you success with your current treatment.
Tina
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- September 19, 2010 at 8:40 pm
Thanks Jim in Denver for your response. I definately conducting my own research on this site as well as elsewhere and seeking second opinions. I posted on this site about IL-2 to get information from those who have gone through it as well as just information in general. I appreciate all the feedback that I have received so far.
I looked into the trials at MD Anderson in Houston and they have 2 protocols. One you have to have failed another treatment to qualify and the other your tumor must be at least 1 cm. My tumors are all under this size. I'll still discuss this with my doc, but it seems that at this point I am not eligible for either at this location. I'll research and see if there are any others that I may qualify for.
I'm familiar with both the GSK trial and the Roche. Thanks for the information and the encouragement! I wish you success with your current treatment.
Tina
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- September 19, 2010 at 6:01 pm
Wow, Vera, we have a lot in common. I also have Patrick Donovan as my primary oncologist and see Dr. Hersh down in Tucson. I'll email you and we can chat.
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