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paleskinisin

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      paleskinisin
      Participant

        Thanks everyone!  She is Goldsboro, about an hr south of Raleigh.  I'll give her these docs/locations. She's willing to travel for a good doc.

        Again, thanks!

        paleskinisin
        Participant

          Thanks everyone!  She is Goldsboro, about an hr south of Raleigh.  I'll give her these docs/locations. She's willing to travel for a good doc.

          Again, thanks!

          paleskinisin
          Participant

            So glad to hear she is doing so well!  Congratulations to her and the entire family.  Also, what an amazing thing you are doing for other families.

            paleskinisin
            Participant

              So glad to hear she is doing so well!  Congratulations to her and the entire family.  Also, what an amazing thing you are doing for other families.

              paleskinisin
              Participant

                Thank you KatyWI and LBN.  I was interested in hearing from those who have had this treatment.  I know it is not the newest treatment, but it is a treatment that is still used by many.  Thank you for sharing your experiences and thoughts. 

                I wish you both the best of health and success in your journey's.

                Tina

                 

                paleskinisin
                Participant

                  Thank you KatyWI and LBN.  I was interested in hearing from those who have had this treatment.  I know it is not the newest treatment, but it is a treatment that is still used by many.  Thank you for sharing your experiences and thoughts. 

                  I wish you both the best of health and success in your journey's.

                  Tina

                   

                  paleskinisin
                  Participant

                    I just found an article that mentions the MRF wanting to do a BRAF/IPI trial: "Dr. Schuchter said that the Melanoma Research Foundation is in the planning stages of a study that combines ipilimumab and PLX4032 in patients with metastatic melanoma." Doesn't mention timing, but seems this is the line of thinking.

                     http://www.medscape.com/viewarticle/727137.  It is mentioned at the bottom of the article.

                    paleskinisin
                    Participant

                      I just found an article that mentions the MRF wanting to do a BRAF/IPI trial: "Dr. Schuchter said that the Melanoma Research Foundation is in the planning stages of a study that combines ipilimumab and PLX4032 in patients with metastatic melanoma." Doesn't mention timing, but seems this is the line of thinking.

                       http://www.medscape.com/viewarticle/727137.  It is mentioned at the bottom of the article.

                      paleskinisin
                      Participant

                        Thanks Debbie!  I am on my way to my Dr.'s visit to discuss treatment.  I have my list of questions from my research and the information I received from those on this site – thanks everyone.

                        It is fantastic to hear from a responder of IL-2.  I know the percentage is low for responders, but I know there are folks out there so thanks for posting.  I will email you soon. 

                        Thanks so much and good health to all!

                        Tina

                        paleskinisin
                        Participant

                          Thanks Debbie!  I am on my way to my Dr.'s visit to discuss treatment.  I have my list of questions from my research and the information I received from those on this site – thanks everyone.

                          It is fantastic to hear from a responder of IL-2.  I know the percentage is low for responders, but I know there are folks out there so thanks for posting.  I will email you soon. 

                          Thanks so much and good health to all!

                          Tina

                          paleskinisin
                          Participant

                            Thanks Jim.  This is the trial I found on the website for MD Anderson – Houston.  The criteria for this trial is tumors must be at least 1 cm.  Mine are all under 1 cm.  According to this criteria, I don't qualify.  I am going to ask my doc about it, but I don't think I can get on this one.

                            paleskinisin
                            Participant

                              Thanks Jim.  This is the trial I found on the website for MD Anderson – Houston.  The criteria for this trial is tumors must be at least 1 cm.  Mine are all under 1 cm.  According to this criteria, I don't qualify.  I am going to ask my doc about it, but I don't think I can get on this one.

                              paleskinisin
                              Participant

                                Thanks Jim in Denver for your response.  I definately conducting my own research on this site as well as elsewhere and seeking second opinions. I posted on this site about IL-2 to get information from those who have gone through it as well as just information in general.  I appreciate all the feedback that I have received so far. 

                                I looked into the trials at MD Anderson in Houston and they have 2 protocols.  One you have to have failed another treatment to qualify and the other your tumor must be at least 1 cm.  My tumors are all under this size.  I'll still discuss this with my doc, but it seems that at this point I am not eligible for either at this location.  I'll research and see if there are any others that I may qualify for.  

                                I'm familiar with both the GSK trial and the Roche. Thanks for the information and the encouragement!  I wish you success with your current treatment.

                                Tina

                                paleskinisin
                                Participant

                                  Thanks Jim in Denver for your response.  I definately conducting my own research on this site as well as elsewhere and seeking second opinions. I posted on this site about IL-2 to get information from those who have gone through it as well as just information in general.  I appreciate all the feedback that I have received so far. 

                                  I looked into the trials at MD Anderson in Houston and they have 2 protocols.  One you have to have failed another treatment to qualify and the other your tumor must be at least 1 cm.  My tumors are all under this size.  I'll still discuss this with my doc, but it seems that at this point I am not eligible for either at this location.  I'll research and see if there are any others that I may qualify for.  

                                  I'm familiar with both the GSK trial and the Roche. Thanks for the information and the encouragement!  I wish you success with your current treatment.

                                  Tina

                                  paleskinisin
                                  Participant

                                    Wow, Vera, we have a lot in common.  I also have Patrick Donovan as my primary oncologist and see Dr. Hersh down in Tucson.  I'll email you and we can chat.

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