P Brown

Nahmi,

I haven't posted here since summer when I asked the same question as you and got no responses.  It must not be a common thing.

My wife had her nearly completely cancerous spleen removed this July even though she had other mets in liver, lungs and some previously treated in brain.  The thought was the spleen was spreading the cells as fast as we could treat the cancer, so why not remove it.  Since then we have been hitting the remaining cancer with chemo with the intention of moving to yervoy after the new year.  (she already had yervoy a year ago and had some response)

So, yes, it does happen.  She continues to live a mostly normal life and we haven't regretted the surgery once.

Hope this helps,

Paul

Nahmi,

I haven't posted here since summer when I asked the same question as you and got no responses.  It must not be a common thing.

My wife had her nearly completely cancerous spleen removed this July even though she had other mets in liver, lungs and some previously treated in brain.  The thought was the spleen was spreading the cells as fast as we could treat the cancer, so why not remove it.  Since then we have been hitting the remaining cancer with chemo with the intention of moving to yervoy after the new year.  (she already had yervoy a year ago and had some response)

So, yes, it does happen.  She continues to live a mostly normal life and we haven't regretted the surgery once.

Hope this helps,

Paul

Nahmi,

I haven't posted here since summer when I asked the same question as you and got no responses.  It must not be a common thing.

My wife had her nearly completely cancerous spleen removed this July even though she had other mets in liver, lungs and some previously treated in brain.  The thought was the spleen was spreading the cells as fast as we could treat the cancer, so why not remove it.  Since then we have been hitting the remaining cancer with chemo with the intention of moving to yervoy after the new year.  (she already had yervoy a year ago and had some response)

So, yes, it does happen.  She continues to live a mostly normal life and we haven't regretted the surgery once.

Hope this helps,

Paul

Emily,

My wife was one of the unfortunate who had absolutely no response at all.   Dramatic growth in her spleen mets and new ones on her liver followed by a couple of new mets on the brain.

I am so happy to hear from those that do respond and hope someday we can figure out why some do and some don't.

BTW, we are hoping next week to get on the Braf/MEK trial at MDAnderson.  

Best wishes,  Paul

Emily,

My wife was one of the unfortunate who had absolutely no response at all.   Dramatic growth in her spleen mets and new ones on her liver followed by a couple of new mets on the brain.

I am so happy to hear from those that do respond and hope someday we can figure out why some do and some don't.

BTW, we are hoping next week to get on the Braf/MEK trial at MDAnderson.  

Best wishes,  Paul

Shady,

If you are in the Midwest, you only need to go up the road.    Dr. Kahanic at Sioux City is doing the Braf trial, a phase 1 so you get the drug.    June Nylen clinic.   My wife was on it until she had new growth.  

Paul

Shady,

If you are in the Midwest, you only need to go up the road.    Dr. Kahanic at Sioux City is doing the Braf trial, a phase 1 so you get the drug.    June Nylen clinic.   My wife was on it until she had new growth.  

Paul

Wendy,

My bride had thinning of her hair, rough skin (like she had goosebumps all over) and a couple of squamous cell spot that needed to be frozen off.   Also, she seemed to sleep more.

But all in all very tolerable.   Just wish we would have gotten some benefit !!

Paul

Wendy,

My bride had thinning of her hair, rough skin (like she had goosebumps all over) and a couple of squamous cell spot that needed to be frozen off.   Also, she seemed to sleep more.

But all in all very tolerable.   Just wish we would have gotten some benefit !!

Paul