Natjocur

I hope you’re doing okay (silly, of course you’re not).
I did interferon 7 years ago. My hair thinned a bit about 6 months in, but not bad. I’ve been on Yervoy for a year this month. No effect on my hair at all.

Realizing this postime is 5 years old, I’m still going to reply. I was stage 3B 6.5 years ago. 22 nodes removed, but only 1 positive (3.5 cm). Underwent interferon for 9 months- stopped due to side-effects. Recurrence this past October with 1 positive node in same area. Here’s my experience.
Yes the doctors said chance of recurrence goes down after 3 years, but in all my reading of persoNalgene stories I did not find that to be the case. It seems, to me, to tend to wait longer- I kind of expected a good 8 years- before coming back. That said I’m happy it waited 6. I’m now on Ipilimumab, which so far sucks. But if it keeps it away longer I’ll keep trying.

Realizing this postime is 5 years old, I’m still going to reply. I was stage 3B 6.5 years ago. 22 nodes removed, but only 1 positive (3.5 cm). Underwent interferon for 9 months- stopped due to side-effects. Recurrence this past October with 1 positive node in same area. Here’s my experience.
Yes the doctors said chance of recurrence goes down after 3 years, but in all my reading of persoNalgene stories I did not find that to be the case. It seems, to me, to tend to wait longer- I kind of expected a good 8 years- before coming back. That said I’m happy it waited 6. I’m now on Ipilimumab, which so far sucks. But if it keeps it away longer I’ll keep trying.

Realizing this postime is 5 years old, I’m still going to reply. I was stage 3B 6.5 years ago. 22 nodes removed, but only 1 positive (3.5 cm). Underwent interferon for 9 months- stopped due to side-effects. Recurrence this past October with 1 positive node in same area. Here’s my experience.
Yes the doctors said chance of recurrence goes down after 3 years, but in all my reading of persoNalgene stories I did not find that to be the case. It seems, to me, to tend to wait longer- I kind of expected a good 8 years- before coming back. That said I’m happy it waited 6. I’m now on Ipilimumab, which so far sucks. But if it keeps it away longer I’ll keep trying.

Hi Michelle. I also agree with the 3B staging, that’s where I am. I’m on my second go round- they’ve never found a primary, I had 1 positive lymph node in my left armpit 6 years ago. Did interferon for 9 months at that time (didn’t last the full year due to side effects). New positive lymph node in same area removed in October, and started on Yervoy last month.
Over the last 6 years I was diligent about having things checked out, but had it in my head that it would likely come back- so I lived my life to the fullest. The fear was never a big thing for me. But this time around is different. I’m not scared, just frustrated with the side effects.

Hi Michelle. I also agree with the 3B staging, that’s where I am. I’m on my second go round- they’ve never found a primary, I had 1 positive lymph node in my left armpit 6 years ago. Did interferon for 9 months at that time (didn’t last the full year due to side effects). New positive lymph node in same area removed in October, and started on Yervoy last month.
Over the last 6 years I was diligent about having things checked out, but had it in my head that it would likely come back- so I lived my life to the fullest. The fear was never a big thing for me. But this time around is different. I’m not scared, just frustrated with the side effects.

Hi Michelle. I also agree with the 3B staging, that’s where I am. I’m on my second go round- they’ve never found a primary, I had 1 positive lymph node in my left armpit 6 years ago. Did interferon for 9 months at that time (didn’t last the full year due to side effects). New positive lymph node in same area removed in October, and started on Yervoy last month.
Over the last 6 years I was diligent about having things checked out, but had it in my head that it would likely come back- so I lived my life to the fullest. The fear was never a big thing for me. But this time around is different. I’m not scared, just frustrated with the side effects.