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nasullivan
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nasullivan

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      • November 19, 2019 at 2:32 am
      nasullivan
      Participant
        Who are you seeing? We are at MSK in NY too!
        • October 10, 2019 at 11:51 am
        nasullivan
        Participant
          Unchanged probably reactive heterogeneous bone marrow uptake with few
          slightly more prominent foci without CT correlate, indeterminate

          What does that mean? She is now having hip pain…..does it seem suspicious?

          • October 4, 2019 at 10:24 pm
          nasullivan
          Participant
            Thank you, Mike! This my grandmothers’ recent PET Scan. She was Stage 0 in 2o15. They cut it out (original tumor was 0.2 mm). They never did a scan on diagnosis or on follow-up (which she went every 3 months). And now, in July was diangosed stage 4 – on a fluke brain MRI.

            This is all so crazy. Do you know if PET scans are typically done on stage 0 melanoma? She is 82 – but has no other health problems. Thank you for being an inspiration!

            • October 4, 2019 at 10:22 pm
            nasullivan
            Participant
              Thank you!!! I appreciate 🙂
              • August 24, 2019 at 2:12 pm
              nasullivan
              Participant
                Thank you! I am glad to hear you are doing well … trying to be positive.

                Her lersions are mostly small – some very small (mm) and the largest being 1.6 cm in her temporal lobe and the second largest in her occiptal region 1.5cm – the others are smaller.

                Neurology seems to want to hold off on radiation as she is “mostly asymptomatic” = but from what I can find – radiation + immunotherapy works best. Then again, she is 82 – so maybe they are trying the immunotherapy first?

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