Nan in Nebraska
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Nan in Nebraska

Forum Replies Created

Viewing 8 reply threads
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  • Replies
      • February 3, 2015 at 1:51 am
      Nan in Nebraska
      Participant

      m so glad to see your husband is getting a response. How long between stopping Yervoy and starting Keytruda?

      • February 3, 2015 at 1:51 am
      Nan in Nebraska
      Participant

      m so glad to see your husband is getting a response. How long between stopping Yervoy and starting Keytruda?

      • February 3, 2015 at 1:51 am
      Nan in Nebraska
      Participant

      m so glad to see your husband is getting a response. How long between stopping Yervoy and starting Keytruda?

      • January 23, 2014 at 3:36 pm
      Nan in Nebraska
      Participant

      Hi Racheal,

         Congratulations on what sounds like a wonderful opportunity in going to Japan for your job.

         If you haven't heard his name already, Dr. Takemi Sato in Philadelphia, has the most experience of anyone in the country in ocular melanoma. Since he is Japenese, and I know he goes back home often, you might reach out to him for a recommendation. Just a thought. His nurse's name is Renee and she will get back to you quickly.

       

      Renee M. Zalinsky, RN, OCN, Metastatic Uveal Melanoma Navigator/Senior Cancer Care Coordinator, Jefferson Kimmel Cancer Center Network, 1015 Chestnut St., Suite 622, Philadelphia, PA 19107, Direct 215-955-3158, Fax 215-955-1020   E-mail: Renee.M.Zalinsky@jeffersonhospital.org

       

      Hope this is helpful.

      • January 23, 2014 at 3:36 pm
      Nan in Nebraska
      Participant

      Hi Racheal,

         Congratulations on what sounds like a wonderful opportunity in going to Japan for your job.

         If you haven't heard his name already, Dr. Takemi Sato in Philadelphia, has the most experience of anyone in the country in ocular melanoma. Since he is Japenese, and I know he goes back home often, you might reach out to him for a recommendation. Just a thought. His nurse's name is Renee and she will get back to you quickly.

       

      Renee M. Zalinsky, RN, OCN, Metastatic Uveal Melanoma Navigator/Senior Cancer Care Coordinator, Jefferson Kimmel Cancer Center Network, 1015 Chestnut St., Suite 622, Philadelphia, PA 19107, Direct 215-955-3158, Fax 215-955-1020   E-mail: Renee.M.Zalinsky@jeffersonhospital.org

       

      Hope this is helpful.

      • January 23, 2014 at 3:36 pm
      Nan in Nebraska
      Participant

      Hi Racheal,

         Congratulations on what sounds like a wonderful opportunity in going to Japan for your job.

         If you haven't heard his name already, Dr. Takemi Sato in Philadelphia, has the most experience of anyone in the country in ocular melanoma. Since he is Japenese, and I know he goes back home often, you might reach out to him for a recommendation. Just a thought. His nurse's name is Renee and she will get back to you quickly.

       

      Renee M. Zalinsky, RN, OCN, Metastatic Uveal Melanoma Navigator/Senior Cancer Care Coordinator, Jefferson Kimmel Cancer Center Network, 1015 Chestnut St., Suite 622, Philadelphia, PA 19107, Direct 215-955-3158, Fax 215-955-1020   E-mail: Renee.M.Zalinsky@jeffersonhospital.org

       

      Hope this is helpful.

      • March 27, 2013 at 4:10 am
      Nan in Nebraska
      Participant

      Esther, I am so saddened to hear about Christine. She was such a fighter and inspiration to us all.

      My condolences to her family and friends. RIP Christine.

      Nan

      • March 27, 2013 at 4:10 am
      Nan in Nebraska
      Participant

      Esther, I am so saddened to hear about Christine. She was such a fighter and inspiration to us all.

      My condolences to her family and friends. RIP Christine.

      Nan

      • March 27, 2013 at 4:10 am
      Nan in Nebraska
      Participant

      Esther, I am so saddened to hear about Christine. She was such a fighter and inspiration to us all.

      My condolences to her family and friends. RIP Christine.

      Nan

      • February 1, 2015 at 12:43 am
      Nan in Nebraska
      Participant

      Are you experiencing any side effects? If so, what are they?

      Thanks,

      Nan

      • February 1, 2015 at 12:43 am
      Nan in Nebraska
      Participant

      Are you experiencing any side effects? If so, what are they?

      Thanks,

      Nan

      • February 1, 2015 at 12:43 am
      Nan in Nebraska
      Participant

      Are you experiencing any side effects? If so, what are they?

      Thanks,

      Nan

      • January 17, 2014 at 3:55 pm
      Nan in Nebraska
      Participant

      Hi James,

         I've had two courses Yervoy. I have mets in my liver, abdomen, and peritoneum and also have an enlarged paratracheal node. I've been pretty much stable since early 2011. I did have an existing lesion cyberknifed (target radiation) halfway through my second course of Yervoy. I have had NOTHING NEW since Feb., 2011.

         How much liver involvement does she have? I'm wondering if she should/could do sirspheres (direct liver treatment) and then do Yervoy. Yervoy sometimes takes a while to show that it's working. For me, at first, it showed new lesions and enlarging existing ones, but after 3 months things settled down with a couple liver lesions and things have stayed there since.

         Contact Dr. Sato in Philadelphia. They will work with your oncologist if you cannot travel to see him. He is the "guru" ….he has the most experience with metastatic OM patience. His nurse, Renee, is WONDERFUL and gets back to you right away. Here is her address:

      Renee M. Zalinsky, RN, OCN, Metastatic Uveal Melanoma Navigator/Senior Cancer Care Coordinator, Jefferson Kimmel Cancer Center Networf 1015 Chestnut St., Suite 622, Philadelphia, PA 19107, Direct Phone 215-955-3158, Fax 215-955-1020…………E-Mail: Renee.M.Zalinsky@jeffersonhospital.org

       

      Best wishes,

      Nan

       

       

       

       

       

       

      • January 17, 2014 at 3:55 pm
      Nan in Nebraska
      Participant

      Hi James,

         I've had two courses Yervoy. I have mets in my liver, abdomen, and peritoneum and also have an enlarged paratracheal node. I've been pretty much stable since early 2011. I did have an existing lesion cyberknifed (target radiation) halfway through my second course of Yervoy. I have had NOTHING NEW since Feb., 2011.

         How much liver involvement does she have? I'm wondering if she should/could do sirspheres (direct liver treatment) and then do Yervoy. Yervoy sometimes takes a while to show that it's working. For me, at first, it showed new lesions and enlarging existing ones, but after 3 months things settled down with a couple liver lesions and things have stayed there since.

         Contact Dr. Sato in Philadelphia. They will work with your oncologist if you cannot travel to see him. He is the "guru" ….he has the most experience with metastatic OM patience. His nurse, Renee, is WONDERFUL and gets back to you right away. Here is her address:

      Renee M. Zalinsky, RN, OCN, Metastatic Uveal Melanoma Navigator/Senior Cancer Care Coordinator, Jefferson Kimmel Cancer Center Networf 1015 Chestnut St., Suite 622, Philadelphia, PA 19107, Direct Phone 215-955-3158, Fax 215-955-1020…………E-Mail: Renee.M.Zalinsky@jeffersonhospital.org

       

      Best wishes,

      Nan

       

       

       

       

       

       

      • January 17, 2014 at 3:55 pm
      Nan in Nebraska
      Participant

      Hi James,

         I've had two courses Yervoy. I have mets in my liver, abdomen, and peritoneum and also have an enlarged paratracheal node. I've been pretty much stable since early 2011. I did have an existing lesion cyberknifed (target radiation) halfway through my second course of Yervoy. I have had NOTHING NEW since Feb., 2011.

         How much liver involvement does she have? I'm wondering if she should/could do sirspheres (direct liver treatment) and then do Yervoy. Yervoy sometimes takes a while to show that it's working. For me, at first, it showed new lesions and enlarging existing ones, but after 3 months things settled down with a couple liver lesions and things have stayed there since.

         Contact Dr. Sato in Philadelphia. They will work with your oncologist if you cannot travel to see him. He is the "guru" ….he has the most experience with metastatic OM patience. His nurse, Renee, is WONDERFUL and gets back to you right away. Here is her address:

      Renee M. Zalinsky, RN, OCN, Metastatic Uveal Melanoma Navigator/Senior Cancer Care Coordinator, Jefferson Kimmel Cancer Center Networf 1015 Chestnut St., Suite 622, Philadelphia, PA 19107, Direct Phone 215-955-3158, Fax 215-955-1020…………E-Mail: Renee.M.Zalinsky@jeffersonhospital.org

       

      Best wishes,

      Nan

       

       

       

       

       

       

Viewing 8 reply threads
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