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You need to let your Oncologist know in case there is neurological adverse effects. My first adverse reaction was neurological. ,It started after my 2nd Yervoy. I lost fine motor coordination and the first I realized was when I tried to write me off. Yours might be nothing but you have to report it. The infusions were delayed and I went on high dose steroids and tapered down and was able to finish treatments.

You need to let your Oncologist know in case there is neurological adverse effects. My first adverse reaction was neurological. ,It started after my 2nd Yervoy. I lost fine motor coordination and the first I realized was when I tried to write me off. Yours might be nothing but you have to report it. The infusions were delayed and I went on high dose steroids and tapered down and was able to finish treatments.

BTW 2 week waiting and funds were in my bank account.

I applied online also. Approved right away and was given 2 yrs back payment according to time I was actually eligible. Virginia resident. If only I had known how easy it was. Good luck.

Your symptoms sound like Laryngo Pharangel Reflux. I was diagnosed 2 years ago. It followed a mild respiratory illness. My symptoms are coughing and clearing my throat all day but never at night. I have a post nasal drip that has nothing to do with allergies. I also have a lot of trouble swallowing. There is always present a glob of mucus at the very back of throat. This is supposed to be diagnosed by ENT but honestly GI doc was more help. I also have GERD but that is controlled by Nexium. Nexium seems to do little for the other. Google LPR and see if the symptoms fit. 

Your symptoms sound like Laryngo Pharangel Reflux. I was diagnosed 2 years ago. It followed a mild respiratory illness. My symptoms are coughing and clearing my throat all day but never at night. I have a post nasal drip that has nothing to do with allergies. I also have a lot of trouble swallowing. There is always present a glob of mucus at the very back of throat. This is supposed to be diagnosed by ENT but honestly GI doc was more help. I also have GERD but that is controlled by Nexium. Nexium seems to do little for the other. Google LPR and see if the symptoms fit. 

Your symptoms sound like Laryngo Pharangel Reflux. I was diagnosed 2 years ago. It followed a mild respiratory illness. My symptoms are coughing and clearing my throat all day but never at night. I have a post nasal drip that has nothing to do with allergies. I also have a lot of trouble swallowing. There is always present a glob of mucus at the very back of throat. This is supposed to be diagnosed by ENT but honestly GI doc was more help. I also have GERD but that is controlled by Nexium. Nexium seems to do little for the other. Google LPR and see if the symptoms fit. 

I am on Nivo but long before I started approx a year and a half I had a mild upper respiratory infection and following that I developed a productive cough. I went to PCP and he suggested it might be due to reflux. I researched it and found that my symptoms resembled that of something called Laryngopharyngeal Reflux or LPR. It is different than acid reflux with none of the usual reflux problems. No indigestion or acid reflux. It usually follows a respiratory infection. I never cough at night just during the day when I am upright. There is always a glob of mucus at the back of my throat that comes from a post nasal drip not associated with allergies or sinus problems. I also have a terrible taste in my mouth all the time and find myself brushing my teeth way too often.My diagnosis was made by my GI Dr but usually ENTS are the one to see. Unfortunately I am still coughing and there is not a good treatment except surgery which I am considering. Nexium and other PPI’s don’t help. I was already on Nexium for various problems associated with Radiation to neck and esophagus when I developed this. Like you my lungs are always clear. Google LPR and see if it fits. Just a suggestion and may be wrong but worth looking into.

I am on Nivo but long before I started approx a year and a half I had a mild upper respiratory infection and following that I developed a productive cough. I went to PCP and he suggested it might be due to reflux. I researched it and found that my symptoms resembled that of something called Laryngopharyngeal Reflux or LPR. It is different than acid reflux with none of the usual reflux problems. No indigestion or acid reflux. It usually follows a respiratory infection. I never cough at night just during the day when I am upright. There is always a glob of mucus at the back of my throat that comes from a post nasal drip not associated with allergies or sinus problems. I also have a terrible taste in my mouth all the time and find myself brushing my teeth way too often.My diagnosis was made by my GI Dr but usually ENTS are the one to see. Unfortunately I am still coughing and there is not a good treatment except surgery which I am considering. Nexium and other PPI’s don’t help. I was already on Nexium for various problems associated with Radiation to neck and esophagus when I developed this. Like you my lungs are always clear. Google LPR and see if it fits. Just a suggestion and may be wrong but worth looking into.

I am on Nivo but long before I started approx a year and a half I had a mild upper respiratory infection and following that I developed a productive cough. I went to PCP and he suggested it might be due to reflux. I researched it and found that my symptoms resembled that of something called Laryngopharyngeal Reflux or LPR. It is different than acid reflux with none of the usual reflux problems. No indigestion or acid reflux. It usually follows a respiratory infection. I never cough at night just during the day when I am upright. There is always a glob of mucus at the back of my throat that comes from a post nasal drip not associated with allergies or sinus problems. I also have a terrible taste in my mouth all the time and find myself brushing my teeth way too often.My diagnosis was made by my GI Dr but usually ENTS are the one to see. Unfortunately I am still coughing and there is not a good treatment except surgery which I am considering. Nexium and other PPI’s don’t help. I was already on Nexium for various problems associated with Radiation to neck and esophagus when I developed this. Like you my lungs are always clear. Google LPR and see if it fits. Just a suggestion and may be wrong but worth looking into.

I don't know where you live but the Drs at Washington Hospital Center have moved to a new Center at Inova Fairfax Hospital. I was a former pt at Washington Hospital Center and when the new center opened followed them to new location. There is Derm/Onc, and 2 Melanoma Oncologists and oncology surgeon. I have received excellent care there. I live in Warrenton, Va and it it approx 40 miles for me. There is also a Melanoma Support group located near the hospital which meets quarterly. I don't know where you live but it could be more convienent esp for follow up care. The phone # is 703 970 6430. Hope this helps. 

I don't know where you live but the Drs at Washington Hospital Center have moved to a new Center at Inova Fairfax Hospital. I was a former pt at Washington Hospital Center and when the new center opened followed them to new location. There is Derm/Onc, and 2 Melanoma Oncologists and oncology surgeon. I have received excellent care there. I live in Warrenton, Va and it it approx 40 miles for me. There is also a Melanoma Support group located near the hospital which meets quarterly. I don't know where you live but it could be more convienent esp for follow up care. The phone # is 703 970 6430. Hope this helps. 

I don't know where you live but the Drs at Washington Hospital Center have moved to a new Center at Inova Fairfax Hospital. I was a former pt at Washington Hospital Center and when the new center opened followed them to new location. There is Derm/Onc, and 2 Melanoma Oncologists and oncology surgeon. I have received excellent care there. I live in Warrenton, Va and it it approx 40 miles for me. There is also a Melanoma Support group located near the hospital which meets quarterly. I don't know where you live but it could be more convienent esp for follow up care. The phone # is 703 970 6430. Hope this helps. 

Hi Artie

Sorryabout your scary situation. I was in a similar place 1 1/2 yrs ago. I had metastatic nodes between my esopahagus and aorta which had grown despite 2 surgeries and a course of Cyberknife. I was started on Yervoy and right before 3rd infusion all the nodes in my neck started swelling to the point I was having trouble swallowing. I had to be careful eating using small bites and make sure I dint look down. A CT of the neck revealed large groups of swollen nodes so it was decided I had to have immediate radiation along with Yervoy. The 1 thing that prompted this was the fact that I was having trouble swallowing liquids. That is more dangerous than difficulty with food as it is easier to aspirate liquids into the lung than food which can quickly turn into pneumonia. The one thing that we did before both Cyberknife and the 4 weeks of radiation was to start on a PPI(Nexium, Prilosec etc). Some of your problems could be reflux and you will most likely need it after radiation. I had really bad esophagitis after both Radiations. It feels like you are swallowing nails but thankfully it lasted only a week. I still suffer from reflux but a different kind called Laryngopharyongeal Reflux or LPR.  If you already aren't on Nexium or another PPI I would ask about it. It could ease some of the symptoms you are having now. If you have any questions about neck radiation let me know. I also had swelling of a huge group of nodes the size of my fist on my clavicle. This was all determined to be from Yervoy but at first it was thought to be all tumors since Yervoy makes tumors larger at first but it was decided it was all T Cell inflammation due to enhanced reaction since I have Lupus. Inwish you well. Scary time, I know.

Mary Sue

Hi Artie

Sorryabout your scary situation. I was in a similar place 1 1/2 yrs ago. I had metastatic nodes between my esopahagus and aorta which had grown despite 2 surgeries and a course of Cyberknife. I was started on Yervoy and right before 3rd infusion all the nodes in my neck started swelling to the point I was having trouble swallowing. I had to be careful eating using small bites and make sure I dint look down. A CT of the neck revealed large groups of swollen nodes so it was decided I had to have immediate radiation along with Yervoy. The 1 thing that prompted this was the fact that I was having trouble swallowing liquids. That is more dangerous than difficulty with food as it is easier to aspirate liquids into the lung than food which can quickly turn into pneumonia. The one thing that we did before both Cyberknife and the 4 weeks of radiation was to start on a PPI(Nexium, Prilosec etc). Some of your problems could be reflux and you will most likely need it after radiation. I had really bad esophagitis after both Radiations. It feels like you are swallowing nails but thankfully it lasted only a week. I still suffer from reflux but a different kind called Laryngopharyongeal Reflux or LPR.  If you already aren't on Nexium or another PPI I would ask about it. It could ease some of the symptoms you are having now. If you have any questions about neck radiation let me know. I also had swelling of a huge group of nodes the size of my fist on my clavicle. This was all determined to be from Yervoy but at first it was thought to be all tumors since Yervoy makes tumors larger at first but it was decided it was all T Cell inflammation due to enhanced reaction since I have Lupus. Inwish you well. Scary time, I know.

Mary Sue