@mrsmarilyn
Forum Replies Created
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- April 12, 2013 at 4:28 pm
Hello, Thank you for the excellent update! We are awaiting these drugs-to treat brain mets! Timing is critical – as always in a rush for time.
Thanks again- I will share with the family.
All the best
MrsMarilyn
(sister of Gary stage IV for 11 years)
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- April 12, 2013 at 4:28 pm
Hello, Thank you for the excellent update! We are awaiting these drugs-to treat brain mets! Timing is critical – as always in a rush for time.
Thanks again- I will share with the family.
All the best
MrsMarilyn
(sister of Gary stage IV for 11 years)
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- April 12, 2013 at 4:28 pm
Hello, Thank you for the excellent update! We are awaiting these drugs-to treat brain mets! Timing is critical – as always in a rush for time.
Thanks again- I will share with the family.
All the best
MrsMarilyn
(sister of Gary stage IV for 11 years)
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- April 1, 2013 at 3:53 pm
Hello-just read your story- and my brother is in the same position as your husband. He had multiple brain mets – not a candidate for targeted radiation, and had WBR. Now he is on Zelboraf – 2x a day. He was in ICU for 33 days and made it out – and is resting at home. One large tumor right in between two ventricles and was bleeding. They didn't expect him to make it out of Mayo, Jacksonville.
We are going to do the 30 day scan- and probably get him over to Moffitt, Tampa- and see what his oncologist says about intermittent dosing – and also await dabrafenib. We too have had a great battle for 11 years – and then moved to his brain – and he has declined mentally and physically. I too feel he is too weak to get into clinical trial for the travel. Please let me know if you hear something about dabrafanib — but I too don't know if it is really a different drug or just a similar drug by a different drug company.
Does anyone know if he would be a candidate for targeted radiation after wbr? I think he is too weak for that – and hoping the Zelboraf is holding the mel down.
It was great to hear your story – and I wish you the best.
Wishing you lots of luck and love
Mrs Marilyn
Sister of Gary (Stage IV) FOR 11 YEARS
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- April 1, 2013 at 3:53 pm
Hello-just read your story- and my brother is in the same position as your husband. He had multiple brain mets – not a candidate for targeted radiation, and had WBR. Now he is on Zelboraf – 2x a day. He was in ICU for 33 days and made it out – and is resting at home. One large tumor right in between two ventricles and was bleeding. They didn't expect him to make it out of Mayo, Jacksonville.
We are going to do the 30 day scan- and probably get him over to Moffitt, Tampa- and see what his oncologist says about intermittent dosing – and also await dabrafenib. We too have had a great battle for 11 years – and then moved to his brain – and he has declined mentally and physically. I too feel he is too weak to get into clinical trial for the travel. Please let me know if you hear something about dabrafanib — but I too don't know if it is really a different drug or just a similar drug by a different drug company.
Does anyone know if he would be a candidate for targeted radiation after wbr? I think he is too weak for that – and hoping the Zelboraf is holding the mel down.
It was great to hear your story – and I wish you the best.
Wishing you lots of luck and love
Mrs Marilyn
Sister of Gary (Stage IV) FOR 11 YEARS
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- April 1, 2013 at 3:53 pm
Hello-just read your story- and my brother is in the same position as your husband. He had multiple brain mets – not a candidate for targeted radiation, and had WBR. Now he is on Zelboraf – 2x a day. He was in ICU for 33 days and made it out – and is resting at home. One large tumor right in between two ventricles and was bleeding. They didn't expect him to make it out of Mayo, Jacksonville.
We are going to do the 30 day scan- and probably get him over to Moffitt, Tampa- and see what his oncologist says about intermittent dosing – and also await dabrafenib. We too have had a great battle for 11 years – and then moved to his brain – and he has declined mentally and physically. I too feel he is too weak to get into clinical trial for the travel. Please let me know if you hear something about dabrafanib — but I too don't know if it is really a different drug or just a similar drug by a different drug company.
Does anyone know if he would be a candidate for targeted radiation after wbr? I think he is too weak for that – and hoping the Zelboraf is holding the mel down.
It was great to hear your story – and I wish you the best.
Wishing you lots of luck and love
Mrs Marilyn
Sister of Gary (Stage IV) FOR 11 YEARS
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- February 6, 2012 at 3:00 pm
Hi-I think he is going with the clinical trial first then Yervoy. But we are trying to get into Moffitt to get a second opinion and the IL-2 injection might be an option.
Thanks for taking the time out to help!
We will keep fighting!
Love & Prayers
MrsMarilyn
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- February 6, 2012 at 3:00 pm
Hi-I think he is going with the clinical trial first then Yervoy. But we are trying to get into Moffitt to get a second opinion and the IL-2 injection might be an option.
Thanks for taking the time out to help!
We will keep fighting!
Love & Prayers
MrsMarilyn
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- February 6, 2012 at 3:00 pm
Hi-I think he is going with the clinical trial first then Yervoy. But we are trying to get into Moffitt to get a second opinion and the IL-2 injection might be an option.
Thanks for taking the time out to help!
We will keep fighting!
Love & Prayers
MrsMarilyn
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- February 6, 2012 at 2:58 pm
Hello-No one has suggested the debulking – I was kind of thinking the same thing. He has tumors elsewhere – small – but yes its metastasized. The Braf/Mek trial he was on for two years removed all the others just about–except this mass in his arm. They did perform a biopsy–but we did not ask the results of it yet. Great questions — all! It is just so hard to think of everything – we always miss something–that is why this board has been a Godsend.
Thanks for the great questions–I will follow up with answers.
Best wishes to all.
Mrs Marilyn
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- February 6, 2012 at 2:58 pm
Hello-No one has suggested the debulking – I was kind of thinking the same thing. He has tumors elsewhere – small – but yes its metastasized. The Braf/Mek trial he was on for two years removed all the others just about–except this mass in his arm. They did perform a biopsy–but we did not ask the results of it yet. Great questions — all! It is just so hard to think of everything – we always miss something–that is why this board has been a Godsend.
Thanks for the great questions–I will follow up with answers.
Best wishes to all.
Mrs Marilyn
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- February 6, 2012 at 2:58 pm
Hello-No one has suggested the debulking – I was kind of thinking the same thing. He has tumors elsewhere – small – but yes its metastasized. The Braf/Mek trial he was on for two years removed all the others just about–except this mass in his arm. They did perform a biopsy–but we did not ask the results of it yet. Great questions — all! It is just so hard to think of everything – we always miss something–that is why this board has been a Godsend.
Thanks for the great questions–I will follow up with answers.
Best wishes to all.
Mrs Marilyn
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- February 6, 2012 at 2:55 pm
Hi-We will have to check that movie out! But he is in sooooooo much pain and is not able to move his arm- something has to be done quickly. He has been like this for about a year — hoping the Braf/Mek would hit it – like the rest of his tumors but it didn't. I will certainly let him know. thank so much!
Mrs. Marilyn
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- February 6, 2012 at 2:55 pm
Hi-We will have to check that movie out! But he is in sooooooo much pain and is not able to move his arm- something has to be done quickly. He has been like this for about a year — hoping the Braf/Mek would hit it – like the rest of his tumors but it didn't. I will certainly let him know. thank so much!
Mrs. Marilyn
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- February 6, 2012 at 2:55 pm
Hi-We will have to check that movie out! But he is in sooooooo much pain and is not able to move his arm- something has to be done quickly. He has been like this for about a year — hoping the Braf/Mek would hit it – like the rest of his tumors but it didn't. I will certainly let him know. thank so much!
Mrs. Marilyn
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