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MissJenn

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      MissJenn
      Participant

      You go ahead and say exactly how you feel girl!!!  If Jesus gives you strength through this or if the giant green people eater were to give you strength how dare anybody tell you what to say or where to say it when you are posting your own thoughts…wow.  You are in a battle right now and don't you feel bad for anything at all you feel…or say…on your own post about you!…  Now if you had gone on another persons post and tried to tell them you want to "save" them, I can see how that could be taken offensively…  but you didn't and I am insensed how immediately this person (and supporters) wrote about ettiquiette instead of simply support.  Anyways…back on the topic that matters…  I am a fellow stage 3 patient and I understand how you feel.  You are going to need a lot of support through your time on Interferon…if you have facebook, I hope you add the Melanoma Groups available for you.  Melanoma Prayer Center will be a good one for you specifically…very uplifting and the host is simply awesome.  I'm Jennifer Miller on there…please add me if you want…I'm here for you girl…we are both newbies together!

      MissJenn
      Participant

      You go ahead and say exactly how you feel girl!!!  If Jesus gives you strength through this or if the giant green people eater were to give you strength how dare anybody tell you what to say or where to say it when you are posting your own thoughts…wow.  You are in a battle right now and don't you feel bad for anything at all you feel…or say…on your own post about you!…  Now if you had gone on another persons post and tried to tell them you want to "save" them, I can see how that could be taken offensively…  but you didn't and I am insensed how immediately this person (and supporters) wrote about ettiquiette instead of simply support.  Anyways…back on the topic that matters…  I am a fellow stage 3 patient and I understand how you feel.  You are going to need a lot of support through your time on Interferon…if you have facebook, I hope you add the Melanoma Groups available for you.  Melanoma Prayer Center will be a good one for you specifically…very uplifting and the host is simply awesome.  I'm Jennifer Miller on there…please add me if you want…I'm here for you girl…we are both newbies together!

      MissJenn
      Participant

      You go ahead and say exactly how you feel girl!!!  If Jesus gives you strength through this or if the giant green people eater were to give you strength how dare anybody tell you what to say or where to say it when you are posting your own thoughts…wow.  You are in a battle right now and don't you feel bad for anything at all you feel…or say…on your own post about you!…  Now if you had gone on another persons post and tried to tell them you want to "save" them, I can see how that could be taken offensively…  but you didn't and I am insensed how immediately this person (and supporters) wrote about ettiquiette instead of simply support.  Anyways…back on the topic that matters…  I am a fellow stage 3 patient and I understand how you feel.  You are going to need a lot of support through your time on Interferon…if you have facebook, I hope you add the Melanoma Groups available for you.  Melanoma Prayer Center will be a good one for you specifically…very uplifting and the host is simply awesome.  I'm Jennifer Miller on there…please add me if you want…I'm here for you girl…we are both newbies together!

      MissJenn
      Participant

      Yes…please go find a Melanoma Specialist!  I don't know why they would not do a Sentinal Lymph Node biopsy but mine was .92mm and Clarks Level III and it had traveled to my lymph nodes, and the tissue around my mole was clear.  Get a second opinion for sure and soon.

      MissJenn
      Participant

      Yes…please go find a Melanoma Specialist!  I don't know why they would not do a Sentinal Lymph Node biopsy but mine was .92mm and Clarks Level III and it had traveled to my lymph nodes, and the tissue around my mole was clear.  Get a second opinion for sure and soon.

      MissJenn
      Participant

      Yes…please go find a Melanoma Specialist!  I don't know why they would not do a Sentinal Lymph Node biopsy but mine was .92mm and Clarks Level III and it had traveled to my lymph nodes, and the tissue around my mole was clear.  Get a second opinion for sure and soon.

      MissJenn
      Participant

      My friend is dealing with the same issue… she is not on MPIP but I'm sure she would love to have someone else to talk to about this.  I will tell her tonight.

      MissJenn
      Participant

      My friend is dealing with the same issue… she is not on MPIP but I'm sure she would love to have someone else to talk to about this.  I will tell her tonight.

      MissJenn
      Participant

      My friend is dealing with the same issue… she is not on MPIP but I'm sure she would love to have someone else to talk to about this.  I will tell her tonight.

      MissJenn
      Participant

      I know how you feel about not being so lucky…with a .93 and it having tested positive to lymph nodes.  Mine was .92 and they almost don't check your SNL with <1mm so I guess on the bright side, thank Heaven we didn't forego the SNL biopsy.  It's most likely mitotic rate that pushed your's to your lymph node…was it high?  Mine was 4…  anyone over .82 with a high mitotic rate of the primary should get the SNL biopsy I read.  This is an unbelievable new world isn't it?  I pray for the best with your recovery…Shaving SUCKS afterwards so I feel for you having to shave your face…Time for a beard for a while ๐Ÿ˜‰

      MissJenn
      Participant

      I know how you feel about not being so lucky…with a .93 and it having tested positive to lymph nodes.  Mine was .92 and they almost don't check your SNL with <1mm so I guess on the bright side, thank Heaven we didn't forego the SNL biopsy.  It's most likely mitotic rate that pushed your's to your lymph node…was it high?  Mine was 4…  anyone over .82 with a high mitotic rate of the primary should get the SNL biopsy I read.  This is an unbelievable new world isn't it?  I pray for the best with your recovery…Shaving SUCKS afterwards so I feel for you having to shave your face…Time for a beard for a while ๐Ÿ˜‰

      MissJenn
      Participant

      I know how you feel about not being so lucky…with a .93 and it having tested positive to lymph nodes.  Mine was .92 and they almost don't check your SNL with <1mm so I guess on the bright side, thank Heaven we didn't forego the SNL biopsy.  It's most likely mitotic rate that pushed your's to your lymph node…was it high?  Mine was 4…  anyone over .82 with a high mitotic rate of the primary should get the SNL biopsy I read.  This is an unbelievable new world isn't it?  I pray for the best with your recovery…Shaving SUCKS afterwards so I feel for you having to shave your face…Time for a beard for a while ๐Ÿ˜‰

      MissJenn
      Participant

      Mike,

      Here is the link to the abstract of the study…  My oncologist never discussed anything like this…  but, worth thinking about if looking at going in for the CLND… 

      http://annonc.oxfordjournals.org/content/early/2006/09/12/annonc.mdl176

      my two areas in the SNL positive were at .1 and .2…  they say to take the higher of the two if mulitiple areas found, but still is so close…  I never heard the term "ultra micro" but well, seems a bit fitting? 

      MissJenn
      Participant

      Mike,

      Here is the link to the abstract of the study…  My oncologist never discussed anything like this…  but, worth thinking about if looking at going in for the CLND… 

      http://annonc.oxfordjournals.org/content/early/2006/09/12/annonc.mdl176

      my two areas in the SNL positive were at .1 and .2…  they say to take the higher of the two if mulitiple areas found, but still is so close…  I never heard the term "ultra micro" but well, seems a bit fitting? 

      MissJenn
      Participant

      Mike,

      Here is the link to the abstract of the study…  My oncologist never discussed anything like this…  but, worth thinking about if looking at going in for the CLND… 

      http://annonc.oxfordjournals.org/content/early/2006/09/12/annonc.mdl176

      my two areas in the SNL positive were at .1 and .2…  they say to take the higher of the two if mulitiple areas found, but still is so close…  I never heard the term "ultra micro" but well, seems a bit fitting? 

Viewing 11 reply threads
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