The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

MindyD

Forum Replies Created

Viewing 2 reply threads
  • Replies
      MindyD
      Participant

        Thank you both for your feedback!  This has really thrown me for a loop, as I expected to be somewhat back to normal ROM by now.  I just wish they would've informed me of this as a possible complication.  I hate surprises! Lol.   Thanks again, much appreciated!

        MindyD
        Participant

          Thank you both for your feedback!  This has really thrown me for a loop, as I expected to be somewhat back to normal ROM by now.  I just wish they would've informed me of this as a possible complication.  I hate surprises! Lol.   Thanks again, much appreciated!

          MindyD
          Participant

            Thank you both for your feedback!  This has really thrown me for a loop, as I expected to be somewhat back to normal ROM by now.  I just wish they would've informed me of this as a possible complication.  I hate surprises! Lol.   Thanks again, much appreciated!

            MindyD
            Participant

              Hi Cecilia,

              So sorry for the late reply!  I haven't logged in for awhile.  I heard back from my doc a few days after my last message… Said I was low risk!  Actually went further to say I was 95% likely to remain cancer free after 5 years. 🙂  

              Hopefully you will get results soon. I can tell you that my doc was planning to use the results (if high risk) to justify the necessity of further scans to check for mets.  Insurance is more likely to approve scans with proof of higher risk in stage 2 patients who would otherwise have no further treatment.  I'll never understand why full body scans are not an automatic for someone who has confirmed cancer in their body!  But who am I? 

              Hope you are well and here's hoping for similar results for you!  Let me know!  ðŸ™‚

               

               

              MindyD
              Participant

                Hi Cecilia,

                So sorry for the late reply!  I haven't logged in for awhile.  I heard back from my doc a few days after my last message… Said I was low risk!  Actually went further to say I was 95% likely to remain cancer free after 5 years. 🙂  

                Hopefully you will get results soon. I can tell you that my doc was planning to use the results (if high risk) to justify the necessity of further scans to check for mets.  Insurance is more likely to approve scans with proof of higher risk in stage 2 patients who would otherwise have no further treatment.  I'll never understand why full body scans are not an automatic for someone who has confirmed cancer in their body!  But who am I? 

                Hope you are well and here's hoping for similar results for you!  Let me know!  ðŸ™‚

                 

                 

                MindyD
                Participant

                  Hi Cecilia,

                  So sorry for the late reply!  I haven't logged in for awhile.  I heard back from my doc a few days after my last message… Said I was low risk!  Actually went further to say I was 95% likely to remain cancer free after 5 years. 🙂  

                  Hopefully you will get results soon. I can tell you that my doc was planning to use the results (if high risk) to justify the necessity of further scans to check for mets.  Insurance is more likely to approve scans with proof of higher risk in stage 2 patients who would otherwise have no further treatment.  I'll never understand why full body scans are not an automatic for someone who has confirmed cancer in their body!  But who am I? 

                  Hope you are well and here's hoping for similar results for you!  Let me know!  ðŸ™‚

                   

                   

                  MindyD
                  Participant

                    Hi Cecelia,

                    Sorry for the delayed response.  Not sure if the site offers any kind of notifications, but I have yet to find any settings for it.  I just happened to stumble on my own post when I googled info about the Decision Dx test!  lol

                    Unfortunately, I have heard nothing yet.  I had a follow-up appt with my onc surgeon 2 weeks ago and he said the results were not back yet and to call him back in a couple weeks.  I just called today and left a message for his nurse to call me.  Who knows how long it will take.  I'm approaching 2 months… Very frustrating! 

                    I did find a few articles in my research, which shows some stats.  They come right up when you google "Decision Dx Melanoma test" 

                    Sorry I can't be of more help!

                     

                     

                    MindyD
                    Participant

                      Hi Cecelia,

                      Sorry for the delayed response.  Not sure if the site offers any kind of notifications, but I have yet to find any settings for it.  I just happened to stumble on my own post when I googled info about the Decision Dx test!  lol

                      Unfortunately, I have heard nothing yet.  I had a follow-up appt with my onc surgeon 2 weeks ago and he said the results were not back yet and to call him back in a couple weeks.  I just called today and left a message for his nurse to call me.  Who knows how long it will take.  I'm approaching 2 months… Very frustrating! 

                      I did find a few articles in my research, which shows some stats.  They come right up when you google "Decision Dx Melanoma test" 

                      Sorry I can't be of more help!

                       

                       

                      MindyD
                      Participant

                        Hi Cecelia,

                        Sorry for the delayed response.  Not sure if the site offers any kind of notifications, but I have yet to find any settings for it.  I just happened to stumble on my own post when I googled info about the Decision Dx test!  lol

                        Unfortunately, I have heard nothing yet.  I had a follow-up appt with my onc surgeon 2 weeks ago and he said the results were not back yet and to call him back in a couple weeks.  I just called today and left a message for his nurse to call me.  Who knows how long it will take.  I'm approaching 2 months… Very frustrating! 

                        I did find a few articles in my research, which shows some stats.  They come right up when you google "Decision Dx Melanoma test" 

                        Sorry I can't be of more help!

                         

                         

                        MindyD
                        Participant

                          I hadn't even thought about the suture possibility!  It does appear to be shrinking and becoming less "angry" after scabbing over.  Still haven't seen anything like a suture, but as long as it's going away, I don't care.  🙂 

                          Thanks to all for the response and support! 

                           

                          MindyD
                          Participant

                            I hadn't even thought about the suture possibility!  It does appear to be shrinking and becoming less "angry" after scabbing over.  Still haven't seen anything like a suture, but as long as it's going away, I don't care.  🙂 

                            Thanks to all for the response and support! 

                             

                            MindyD
                            Participant

                              I hadn't even thought about the suture possibility!  It does appear to be shrinking and becoming less "angry" after scabbing over.  Still haven't seen anything like a suture, but as long as it's going away, I don't care.  🙂 

                              Thanks to all for the response and support! 

                               

                              MindyD
                              Participant

                                Thanks, Happy!

                                If you don't mind me asking, how did they find the micro met that was missed the first time?  Did the Castle test result cause them to go back and look again?  Seems scary to me that it can be missed that easily.

                                MindyD
                                Participant

                                  Thanks, Happy!

                                  If you don't mind me asking, how did they find the micro met that was missed the first time?  Did the Castle test result cause them to go back and look again?  Seems scary to me that it can be missed that easily.

                                  MindyD
                                  Participant

                                    Thanks, Happy!

                                    If you don't mind me asking, how did they find the micro met that was missed the first time?  Did the Castle test result cause them to go back and look again?  Seems scary to me that it can be missed that easily.

                                Viewing 2 reply threads