The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

mbaelaporte

Forum Replies Created

Viewing 1 reply thread
  • Replies
      mbaelaporte
      Participant

        Ms Snow White  ..you have landed in some of the best hands in the Melanoma World.  I was fortunate to be under the care of Dr. Margolin from 2010 to 2014 when she unfortunately  decided to leave her position as Co Director  of Melanoma at Seattle Cancer Care Alliance to be closer to her children.  She is and has been part of the Vanguard of melanoma care for a long time ( and I think started at City of Hope ).  Please say hello for me and give her a hug from Pechon – Pay  chOWN.  During my days with her  she was always available for consult / communication ;  answering her phone as she's boarding a plane or having her nurse return a call. You've arrived upon one at the top of the charts

        Cheers,  john

        mbaelaporte
        Participant

          Ms Snow White  ..you have landed in some of the best hands in the Melanoma World.  I was fortunate to be under the care of Dr. Margolin from 2010 to 2014 when she unfortunately  decided to leave her position as Co Director  of Melanoma at Seattle Cancer Care Alliance to be closer to her children.  She is and has been part of the Vanguard of melanoma care for a long time ( and I think started at City of Hope ).  Please say hello for me and give her a hug from Pechon – Pay  chOWN.  During my days with her  she was always available for consult / communication ;  answering her phone as she's boarding a plane or having her nurse return a call. You've arrived upon one at the top of the charts

          Cheers,  john

          mbaelaporte
          Participant

            Ms Snow White  ..you have landed in some of the best hands in the Melanoma World.  I was fortunate to be under the care of Dr. Margolin from 2010 to 2014 when she unfortunately  decided to leave her position as Co Director  of Melanoma at Seattle Cancer Care Alliance to be closer to her children.  She is and has been part of the Vanguard of melanoma care for a long time ( and I think started at City of Hope ).  Please say hello for me and give her a hug from Pechon – Pay  chOWN.  During my days with her  she was always available for consult / communication ;  answering her phone as she's boarding a plane or having her nurse return a call. You've arrived upon one at the top of the charts

            Cheers,  john

            mbaelaporte
            Participant

              all great recommendations above and another doctor offering hope & treatments; Dr. Hamid Los Angeles Clinic 310-231-2135,  310-294-0438.

              he made it all work for me – my physical ,  emotional & economical health

              my insurance would not participate in clinical trials –  he retained Merck to cover all aspects of treatment- metrics, labs, clinics, antiPd1  etc….

              I covered travel from Tacoma, Wa  /   there was even some reimbursement of lodging

              Best to you

              mbaelaporte
              Participant

                all great recommendations above and another doctor offering hope & treatments; Dr. Hamid Los Angeles Clinic 310-231-2135,  310-294-0438.

                he made it all work for me – my physical ,  emotional & economical health

                my insurance would not participate in clinical trials –  he retained Merck to cover all aspects of treatment- metrics, labs, clinics, antiPd1  etc….

                I covered travel from Tacoma, Wa  /   there was even some reimbursement of lodging

                Best to you

                mbaelaporte
                Participant

                  all great recommendations above and another doctor offering hope & treatments; Dr. Hamid Los Angeles Clinic 310-231-2135,  310-294-0438.

                  he made it all work for me – my physical ,  emotional & economical health

                  my insurance would not participate in clinical trials –  he retained Merck to cover all aspects of treatment- metrics, labs, clinics, antiPd1  etc….

                  I covered travel from Tacoma, Wa  /   there was even some reimbursement of lodging

                  Best to you

                  mbaelaporte
                  Participant

                    Hey MacMac

                    I look at this site as a place to be supportive & informative as we can in the face of a disease presenting a very difficult prognosis

                    and I have just short of 50" of surgical scars resulting from opening my axilla to an extended hockey stick from my left ear lobe from my initial 7 1/2 hr operation to a recent amputation – radical mastectomy of my left breast region and they are all  part of a story that had a forecasted ending of about three yrs ago so bring em on if that is what it takes

                    If that is you in picture w / your grandpa ( or dad ) you have won the lottery in the appearance category & a little scar on your shoulder will only add a little patina to what I hope will be a long & wonderful life

                    I have forgotten much of names /  pieces of treatments I've received but I had a skin graft in conjunction w / a mohs (?) surgery I had & the graft didn't really work ( performed by a fellow overseen by famous dermotologist )  but I healed nicely nevertheless.  So I'd ask him / her about efficacy of grafting, scars in that regard.

                    I'm no fan of tatoos but w / that element you would be the envy of many peers.

                    Stretching, vit e oil, flaxseed oil, massage all part of your maintenance, recovery in between glasses of water.  You GO girl…all the best,  john

                    mbaelaporte
                    Participant

                      Hey MacMac

                      I look at this site as a place to be supportive & informative as we can in the face of a disease presenting a very difficult prognosis

                      and I have just short of 50" of surgical scars resulting from opening my axilla to an extended hockey stick from my left ear lobe from my initial 7 1/2 hr operation to a recent amputation – radical mastectomy of my left breast region and they are all  part of a story that had a forecasted ending of about three yrs ago so bring em on if that is what it takes

                      If that is you in picture w / your grandpa ( or dad ) you have won the lottery in the appearance category & a little scar on your shoulder will only add a little patina to what I hope will be a long & wonderful life

                      I have forgotten much of names /  pieces of treatments I've received but I had a skin graft in conjunction w / a mohs (?) surgery I had & the graft didn't really work ( performed by a fellow overseen by famous dermotologist )  but I healed nicely nevertheless.  So I'd ask him / her about efficacy of grafting, scars in that regard.

                      I'm no fan of tatoos but w / that element you would be the envy of many peers.

                      Stretching, vit e oil, flaxseed oil, massage all part of your maintenance, recovery in between glasses of water.  You GO girl…all the best,  john

                      mbaelaporte
                      Participant

                        Hey MacMac

                        I look at this site as a place to be supportive & informative as we can in the face of a disease presenting a very difficult prognosis

                        and I have just short of 50" of surgical scars resulting from opening my axilla to an extended hockey stick from my left ear lobe from my initial 7 1/2 hr operation to a recent amputation – radical mastectomy of my left breast region and they are all  part of a story that had a forecasted ending of about three yrs ago so bring em on if that is what it takes

                        If that is you in picture w / your grandpa ( or dad ) you have won the lottery in the appearance category & a little scar on your shoulder will only add a little patina to what I hope will be a long & wonderful life

                        I have forgotten much of names /  pieces of treatments I've received but I had a skin graft in conjunction w / a mohs (?) surgery I had & the graft didn't really work ( performed by a fellow overseen by famous dermotologist )  but I healed nicely nevertheless.  So I'd ask him / her about efficacy of grafting, scars in that regard.

                        I'm no fan of tatoos but w / that element you would be the envy of many peers.

                        Stretching, vit e oil, flaxseed oil, massage all part of your maintenance, recovery in between glasses of water.  You GO girl…all the best,  john

                        mbaelaporte
                        Participant

                          if you go SSDisability –  I went to SS office and was given a number to call – the operator suggested the disability route and scheduled an appointment and the facilitator got me on the rolls within six weeks and I received a lump sum payment for app. 12 months since I had been dignosed.

                          Hopefully no need for attorney

                          mbaelaporte
                          Participant

                            if you go SSDisability –  I went to SS office and was given a number to call – the operator suggested the disability route and scheduled an appointment and the facilitator got me on the rolls within six weeks and I received a lump sum payment for app. 12 months since I had been dignosed.

                            Hopefully no need for attorney

                            mbaelaporte
                            Participant

                              if you go SSDisability –  I went to SS office and was given a number to call – the operator suggested the disability route and scheduled an appointment and the facilitator got me on the rolls within six weeks and I received a lump sum payment for app. 12 months since I had been dignosed.

                              Hopefully no need for attorney

                              mbaelaporte
                              Participant

                                Dear Adriana, Rob & Swanee

                                I'm another fan / patient of Dr. Margolin and yes Swanee about the same duration as you.

                                I told her I didn't think there was enough oxygen in the same town for her & Condi.

                                Considering all Adriana , your direction & appreciation of the calculus is sophisticated & on the vanguard of melanoma care – congratulations.

                                Off to Swanee's email to try for " live " contact

                                all the best, john

                                better known w/ Dr. Margolin as Pechon or pechoncito ( nowadays )

                                mbaelaporte
                                Participant

                                  Dear Adriana, Rob & Swanee

                                  I'm another fan / patient of Dr. Margolin and yes Swanee about the same duration as you.

                                  I told her I didn't think there was enough oxygen in the same town for her & Condi.

                                  Considering all Adriana , your direction & appreciation of the calculus is sophisticated & on the vanguard of melanoma care – congratulations.

                                  Off to Swanee's email to try for " live " contact

                                  all the best, john

                                  better known w/ Dr. Margolin as Pechon or pechoncito ( nowadays )

                                  mbaelaporte
                                  Participant

                                    Dear Adriana, Rob & Swanee

                                    I'm another fan / patient of Dr. Margolin and yes Swanee about the same duration as you.

                                    I told her I didn't think there was enough oxygen in the same town for her & Condi.

                                    Considering all Adriana , your direction & appreciation of the calculus is sophisticated & on the vanguard of melanoma care – congratulations.

                                    Off to Swanee's email to try for " live " contact

                                    all the best, john

                                    better known w/ Dr. Margolin as Pechon or pechoncito ( nowadays )

                                Viewing 1 reply thread