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Mamarose0403

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      Mamarose0403
      Participant

        I have a very similar diagnosis to yours and just had the WLE a few days ago. My surgeon strongly urged me not to do the SLNB. Said to wait for pathology because if the margins are clear my lymph nodes would be too. I wanted it all done at the same time but my surgeon was pretty adamant about not testing lymph nodes. At 38 years old he said the risks of complications from not having those lymph nodes was far greater than the risks of a second surgery to remove them if necessary.  I opted not to have them removed just yet and will find out tomorrow what the  pathology report has to say. FYI be prepared if you're not already , my WLE was much larger than expected. I thought the standard was 2cm for rumors <1mm but my surgeon went 5!!! My scar is the full length of my forearm for a thin melanoma the size of a quarter. Not to frighten you or anything but I was horrified when I removed my bandages. Recover has not been as easy as expected so I am very glad I don't have a second wound site to deal with as well. But that's just me. Good luck with your surgery. 

        Mamarose0403
        Participant

          I have a very similar diagnosis to yours and just had the WLE a few days ago. My surgeon strongly urged me not to do the SLNB. Said to wait for pathology because if the margins are clear my lymph nodes would be too. I wanted it all done at the same time but my surgeon was pretty adamant about not testing lymph nodes. At 38 years old he said the risks of complications from not having those lymph nodes was far greater than the risks of a second surgery to remove them if necessary.  I opted not to have them removed just yet and will find out tomorrow what the  pathology report has to say. FYI be prepared if you're not already , my WLE was much larger than expected. I thought the standard was 2cm for rumors <1mm but my surgeon went 5!!! My scar is the full length of my forearm for a thin melanoma the size of a quarter. Not to frighten you or anything but I was horrified when I removed my bandages. Recover has not been as easy as expected so I am very glad I don't have a second wound site to deal with as well. But that's just me. Good luck with your surgery. 

          Mamarose0403
          Participant

            I have a very similar diagnosis to yours and just had the WLE a few days ago. My surgeon strongly urged me not to do the SLNB. Said to wait for pathology because if the margins are clear my lymph nodes would be too. I wanted it all done at the same time but my surgeon was pretty adamant about not testing lymph nodes. At 38 years old he said the risks of complications from not having those lymph nodes was far greater than the risks of a second surgery to remove them if necessary.  I opted not to have them removed just yet and will find out tomorrow what the  pathology report has to say. FYI be prepared if you're not already , my WLE was much larger than expected. I thought the standard was 2cm for rumors <1mm but my surgeon went 5!!! My scar is the full length of my forearm for a thin melanoma the size of a quarter. Not to frighten you or anything but I was horrified when I removed my bandages. Recover has not been as easy as expected so I am very glad I don't have a second wound site to deal with as well. But that's just me. Good luck with your surgery. 

            Mamarose0403
            Participant

              Tumors not rumors!! Sorry. 

              Mamarose0403
              Participant

                Tumors not rumors!! Sorry. 

                Mamarose0403
                Participant

                  Tumors not rumors!! Sorry. 

                  Mamarose0403
                  Participant

                    Thank Kyle ,

                    yes I am stage 1a on both rumors. There were two separate ones in the same area. Glad to hear your doctors were open to the second opinions. 

                    I've read the pros and cons of the sentinel node biopsy but my surgeon felt it was better to cross that bridge only if necessary since I am still in my 30's and need my lymph nodes. Said the risks of being put under a second time were far less than the risks of removing lymph nodes. I will find out tomorrow if the margins were all clear on my excision and what the future holds for me. Thank you for taking the time to respond to me. 

                    Mamarose0403
                    Participant

                      Thank Kyle ,

                      yes I am stage 1a on both rumors. There were two separate ones in the same area. Glad to hear your doctors were open to the second opinions. 

                      I've read the pros and cons of the sentinel node biopsy but my surgeon felt it was better to cross that bridge only if necessary since I am still in my 30's and need my lymph nodes. Said the risks of being put under a second time were far less than the risks of removing lymph nodes. I will find out tomorrow if the margins were all clear on my excision and what the future holds for me. Thank you for taking the time to respond to me. 

                      Mamarose0403
                      Participant

                        Thank Kyle ,

                        yes I am stage 1a on both rumors. There were two separate ones in the same area. Glad to hear your doctors were open to the second opinions. 

                        I've read the pros and cons of the sentinel node biopsy but my surgeon felt it was better to cross that bridge only if necessary since I am still in my 30's and need my lymph nodes. Said the risks of being put under a second time were far less than the risks of removing lymph nodes. I will find out tomorrow if the margins were all clear on my excision and what the future holds for me. Thank you for taking the time to respond to me. 

                        Mamarose0403
                        Participant

                          Thank you Kathy. 

                          Here lies yet another issue. There are no melanoma specialists in my medical group nor are there any surgical oncologists.   I've pretty much been left to figure things out for myself. Which is why I am looking for answers here. Maybe it's just time to take out a loan and go out of network for care. Any thoughts?? 

                          Mamarose0403
                          Participant

                            Thank you Kathy. 

                            Here lies yet another issue. There are no melanoma specialists in my medical group nor are there any surgical oncologists.   I've pretty much been left to figure things out for myself. Which is why I am looking for answers here. Maybe it's just time to take out a loan and go out of network for care. Any thoughts?? 

                            Mamarose0403
                            Participant

                              Thank you Kathy. 

                              Here lies yet another issue. There are no melanoma specialists in my medical group nor are there any surgical oncologists.   I've pretty much been left to figure things out for myself. Which is why I am looking for answers here. Maybe it's just time to take out a loan and go out of network for care. Any thoughts?? 

                              Mamarose0403
                              Participant

                                Thank you Ellen. That does help. 

                                Mamarose0403
                                Participant

                                  Thank you Ellen. That does help. 

                                  Mamarose0403
                                  Participant

                                    Thank you Ellen. That does help. 

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