Forum Replies Created
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- July 16, 2013 at 3:47 pm
Hello,
I haven't been back on this forum in years. I am a Stage IV survivor of the adoptive cell TIL therapy. I recieved my treatment in October 2006. It was difficult but successful. My lung tumors disappeared in the first six months and my adrenal gland tumor reduced in size over the first year. The tumor did not change from June 2007 until June 2010 where it reduced in half. In December 2010 it was gone. I was classified in the published paper (2008) as a partial responder.
I return on an annual basis and Dr Rosenberg's staff check in with me periodically. It seems there are quite a few of us returning for follow-up monitoring. I don't know the numbers. I live a normal life. I caution you about interpreting treatment success or lack of it from the prevalence of responses in this forum. Once you are well, life takes over and you don't participate as frequently as you did when you were in treatment.
Dr. Rosenberg is simply amazing and the program is top-notch.
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- July 16, 2013 at 3:47 pm
Hello,
I haven't been back on this forum in years. I am a Stage IV survivor of the adoptive cell TIL therapy. I recieved my treatment in October 2006. It was difficult but successful. My lung tumors disappeared in the first six months and my adrenal gland tumor reduced in size over the first year. The tumor did not change from June 2007 until June 2010 where it reduced in half. In December 2010 it was gone. I was classified in the published paper (2008) as a partial responder.
I return on an annual basis and Dr Rosenberg's staff check in with me periodically. It seems there are quite a few of us returning for follow-up monitoring. I don't know the numbers. I live a normal life. I caution you about interpreting treatment success or lack of it from the prevalence of responses in this forum. Once you are well, life takes over and you don't participate as frequently as you did when you were in treatment.
Dr. Rosenberg is simply amazing and the program is top-notch.
-
- July 16, 2013 at 3:47 pm
Hello,
I haven't been back on this forum in years. I am a Stage IV survivor of the adoptive cell TIL therapy. I recieved my treatment in October 2006. It was difficult but successful. My lung tumors disappeared in the first six months and my adrenal gland tumor reduced in size over the first year. The tumor did not change from June 2007 until June 2010 where it reduced in half. In December 2010 it was gone. I was classified in the published paper (2008) as a partial responder.
I return on an annual basis and Dr Rosenberg's staff check in with me periodically. It seems there are quite a few of us returning for follow-up monitoring. I don't know the numbers. I live a normal life. I caution you about interpreting treatment success or lack of it from the prevalence of responses in this forum. Once you are well, life takes over and you don't participate as frequently as you did when you were in treatment.
Dr. Rosenberg is simply amazing and the program is top-notch.
-
- September 9, 2011 at 12:46 am
Hi there,
I'm very sorry about your diagnosis. I am a Stage IV survivor diagnosed in 2005 and I'm NED as of Dec 2010. I had the TIL therapy at NIH in 2006. I want you to know that there is a melanoma patient support group here in Cincinnati and we are having a happy hour at the Blind Lemon in Mt. Adams tomorrow evening at 7:30pm. My name is Lisa Russell and if you choose to come, I will have a white baseball cap on.
I am a member of a local non-profit, Melanoma Know More. This is a very good discussion site but if you want to meet, visit our website melanomaknowmore.com and you will find ways to connect to the group in this area.
I hope to meet you tomorrow. Stay healthy!
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- September 9, 2011 at 12:46 am
Hi there,
I'm very sorry about your diagnosis. I am a Stage IV survivor diagnosed in 2005 and I'm NED as of Dec 2010. I had the TIL therapy at NIH in 2006. I want you to know that there is a melanoma patient support group here in Cincinnati and we are having a happy hour at the Blind Lemon in Mt. Adams tomorrow evening at 7:30pm. My name is Lisa Russell and if you choose to come, I will have a white baseball cap on.
I am a member of a local non-profit, Melanoma Know More. This is a very good discussion site but if you want to meet, visit our website melanomaknowmore.com and you will find ways to connect to the group in this area.
I hope to meet you tomorrow. Stay healthy!