Jenny

My sweet, wonderfull husband passed away last night.

I can’t understand how it could go so fast. He was only stage 4 for 5 months…

I just wish that we would have hade some more time.

Thank you all for your responses. Melanie, thank you for sharing your friends story. I’m glad she responded to chemo. I hope my husband will do as well. He has had the first round of temodar and for the next cycle, they will add carboplatin as well.
<p style=”text-align: left;”>We spoke to his oncologist again today. My husband had an MRI scan done recently of his brain and spine. It showed that there were some mets in his spine as well. He will have radiation for the spine mets, but not for the ones in his brain.</p>
I asked again about WBRT, but was told that the effect would be close to none and that side effects with memory loss was and cognitive impairment were likely to happen.

Fiona, I’m sorry to hear that you are facing the same thing as my husband. We are in Sweden, but I would gladly bounce some information.

// Jenny

Thank you, Celeste, I will look at those trials, and see if they can accept him.

Jenny

Hi Juan,

He only had one brain scan before, six monts ago. That one was clear. I beat myself up about not asking for a new brain scan earlier, but I thougt i could trust his onc.

It is good to hear that you had success with treating that many brain mets with srs. I hope that my husband will get srs too, and that he will be able to go back to the nivo treatment he was scheduled for.

Jenny

Hi Ted and Beth!

Thank you for your kind words!
I think that my husband doesn’t have the BRAF mutation, but we will ask about it when we meet his oncologist next week.

His oncologist is a melanoma specialist, so I feel that we can trust him. We might get a second opinion though, if we are the least uncertain about the sugested treatment.

 

Jenny