Leslie'sHusband

You two ladies have been through much more than I could even begin to imagine. Bubbles (Celeste?), I spent quite a bit of time reading your blog when Les was first diagnosed and I was searching for information. I was amazed at what you had gone through at that point, and I am happy to see that you are still here, continuing to pass along your knowledge and advice. Julie, I simply don’t know what to say. I can’t even begin to compare what you are going through to what Les has gone through. So far, she has not had to have any type of meds or chemo. A surgeon’s knife has taken care of hers so far. I’m thankful for that. I wish the best for you.
Les asked me last night why I was reading this forum again. At the time, I really didn’t have a good answer for her. Now, I think I know. I just needed a reminder about why I need to be thankful to have her with me. In a strange sort of way, having melanoma could have saved her life by allowing us to catch her lung cancer very early on, before she had any outward symptoms at all. We’ve both said that, several times. Strange times. She complains about the 3 hour drive to Duke to see Dr. Mosca for her melanoma, and now Dr. Klapper for her lungs, and says she wished we could find some place closer. I tell her that she’s worth that little drive, and much more to me every time we make that trip.
I guess I need to correct one thing about my post… Officially, she’s been 6 months NED for her lung cancer. She was due for her 2nd lung scan this month, which would make it 1 year when it comes back clear. It’s been scheduled locally this time because of the Covid mess going on, with the info being sent down to Duke. Both doctors will be reviewing the same scan. Personally, I would rather drive her down there to have the scan done.
Dave

Good news from the MRI!  The place on her liver that they were concerned about was the benign focal nodular hyperplasia, so no worries there.  They said that it was likely caused by the birth control pills she was on previously.  We're good till March and the next round of scans.

Good news from the MRI!  The place on her liver that they were concerned about was the benign focal nodular hyperplasia, so no worries there.  They said that it was likely caused by the birth control pills she was on previously.  We're good till March and the next round of scans.

Good news from the MRI!  The place on her liver that they were concerned about was the benign focal nodular hyperplasia, so no worries there.  They said that it was likely caused by the birth control pills she was on previously.  We're good till March and the next round of scans.

Thank you, Marianne.  We definitely have NOT given up hope.  She has not had any treatments except for the surgeries.  The only thing she "qualified" for was Interferon, and she chose to pass on that.  We are hoping to have the results back from the MRI on Monday.  Friday's trip to Duke was for the MRI only, no meeting with the doctor or his staff.  The waiting continues…

Thank you, Marianne.  We definitely have NOT given up hope.  She has not had any treatments except for the surgeries.  The only thing she "qualified" for was Interferon, and she chose to pass on that.  We are hoping to have the results back from the MRI on Monday.  Friday's trip to Duke was for the MRI only, no meeting with the doctor or his staff.  The waiting continues…

Thank you, Marianne.  We definitely have NOT given up hope.  She has not had any treatments except for the surgeries.  The only thing she "qualified" for was Interferon, and she chose to pass on that.  We are hoping to have the results back from the MRI on Monday.  Friday's trip to Duke was for the MRI only, no meeting with the doctor or his staff.  The waiting continues…

Thank you, Carole.  I definitely support Les in whatever decision she makes.  I tell her that I've got her back with whatever she choses to do.  Hopefully we will be able to discuss the results with the doctor tomorrow.

 

Thank you, Carole.  I definitely support Les in whatever decision she makes.  I tell her that I've got her back with whatever she choses to do.  Hopefully we will be able to discuss the results with the doctor tomorrow.

 

Thank you, Carole.  I definitely support Les in whatever decision she makes.  I tell her that I've got her back with whatever she choses to do.  Hopefully we will be able to discuss the results with the doctor tomorrow.

 

Les is having other weird sensations in her thigh, too, but they seem to be slacking off a little.  We knew about them, based on what the surgeon told us, so they were not unexpected.  He told her that there could be some permanent sensation nerve damage, but most things should return to normal. 

Anyway, the last incision to heal is the one where the drain was, which is the one with the issue right now.  The nurse told here that what she is experiencing is not unusual, and that time, exercise, and stretching should help.  It is essentially the scar tissue being stretched/compressed that is causing the sensation.  Since there is no (continuous) pain, swelling or redness we are not concerned about an infection.  Dr. Tyler and his staff will get a good look at it when we go back down for the PET/CT next month.  They will also take measurements of her leg as part of the clinical trial for the laproscopic surgery.

Thank you!

Dave

Les is having other weird sensations in her thigh, too, but they seem to be slacking off a little.  We knew about them, based on what the surgeon told us, so they were not unexpected.  He told her that there could be some permanent sensation nerve damage, but most things should return to normal. 

Anyway, the last incision to heal is the one where the drain was, which is the one with the issue right now.  The nurse told here that what she is experiencing is not unusual, and that time, exercise, and stretching should help.  It is essentially the scar tissue being stretched/compressed that is causing the sensation.  Since there is no (continuous) pain, swelling or redness we are not concerned about an infection.  Dr. Tyler and his staff will get a good look at it when we go back down for the PET/CT next month.  They will also take measurements of her leg as part of the clinical trial for the laproscopic surgery.

Thank you!

Dave