LB in Seattle

Just joined this forum. My primary was on my left labia minora; had a partial radical vulvectomy and clean sentinel nodes in January 2019, just had a recurrent in my lymph nodes a year and a half later, surgery to dissect them out three weeks ago.. About to start some kind of immune therapy- discussion with doc on 10/27, probably Opdivo. Was staged at 1B at time of initial diagnosis, and doc says that because this was considered a local recurrence rather than a met that my staging hasn’t changed- but the risk of a met has now gone up.

So it’s good to find other women who’ve had vulvar melanoma, given its rarity. My father died of this disease before there were immune therapies. Do any of you also have a parent who had melanoma? My doc thinks that mine must be genetic given the site, but I don’t test positive for any of the known genetic factors.