KnowThyself

I am in southern maine. I do agree with what you're saying Janner, I know the reactor nodes can sometimes flare up, and may not ever go back down to their original size. so the nodes are prob the least of my worries… The most of the worries are the falling down and loss of balance. I am a very healthy young woman otherwise, non smoker, and I take care of my body… Ive always had good eyesight, that was a thought, maybe my eyes are going, causing the daily headaches, but I dont believe so… Some days are worse than others, but I get at least a mild one every day, taking ibuprophin at minimum every other day, at most numerous times per day… My coordination and/or center of balance is completely off…

Anyway, thank you all for your kind words and advice. I do think its time to see my PCP and maybe even get an MRI (i just qualified for freecare till Feb 2014 too, so thats good timing)….. Best case, its all in my head…. unfortunately thats the worst case too.

:-/

I am in southern maine. I do agree with what you're saying Janner, I know the reactor nodes can sometimes flare up, and may not ever go back down to their original size. so the nodes are prob the least of my worries… The most of the worries are the falling down and loss of balance. I am a very healthy young woman otherwise, non smoker, and I take care of my body… Ive always had good eyesight, that was a thought, maybe my eyes are going, causing the daily headaches, but I dont believe so… Some days are worse than others, but I get at least a mild one every day, taking ibuprophin at minimum every other day, at most numerous times per day… My coordination and/or center of balance is completely off…

Anyway, thank you all for your kind words and advice. I do think its time to see my PCP and maybe even get an MRI (i just qualified for freecare till Feb 2014 too, so thats good timing)….. Best case, its all in my head…. unfortunately thats the worst case too.

:-/

I am in southern maine. I do agree with what you're saying Janner, I know the reactor nodes can sometimes flare up, and may not ever go back down to their original size. so the nodes are prob the least of my worries… The most of the worries are the falling down and loss of balance. I am a very healthy young woman otherwise, non smoker, and I take care of my body… Ive always had good eyesight, that was a thought, maybe my eyes are going, causing the daily headaches, but I dont believe so… Some days are worse than others, but I get at least a mild one every day, taking ibuprophin at minimum every other day, at most numerous times per day… My coordination and/or center of balance is completely off…

Anyway, thank you all for your kind words and advice. I do think its time to see my PCP and maybe even get an MRI (i just qualified for freecare till Feb 2014 too, so thats good timing)….. Best case, its all in my head…. unfortunately thats the worst case too.

:-/

Thank you, if I have another day like today before my CT scan appointment, I just may do that…

Thank you, if I have another day like today before my CT scan appointment, I just may do that…

Thank you, if I have another day like today before my CT scan appointment, I just may do that…

Thank you for your reply. I just spoke to my primary about an hour ago, and he is making an appointment for a CT scan (which I had to insist upon).. So that's a good place to start.

He seemed very put-out, because I wasn't taking the meds he gave me, because i wanted to rule out anything REAL sinister before we start toying around with pills and month-out follow ups… in fact he was VERY rude "well, ms. ***, I need a decision, what do you want to do?"….. so I ask about alternative causes/solutions (since we didnt check my ears and such, could be something as simple as a massive ear infection, and what do I get for a response? "Well you can come down and I'll check your ears, or you can take the advice I left you with last time you were at the office"……. wow.

So if the CT scan doesn't come back clean and/or my problems persist, I will be seeking medical services elsewhere…  :'(

Thank you for your reply. I just spoke to my primary about an hour ago, and he is making an appointment for a CT scan (which I had to insist upon).. So that's a good place to start.

He seemed very put-out, because I wasn't taking the meds he gave me, because i wanted to rule out anything REAL sinister before we start toying around with pills and month-out follow ups… in fact he was VERY rude "well, ms. ***, I need a decision, what do you want to do?"….. so I ask about alternative causes/solutions (since we didnt check my ears and such, could be something as simple as a massive ear infection, and what do I get for a response? "Well you can come down and I'll check your ears, or you can take the advice I left you with last time you were at the office"……. wow.

So if the CT scan doesn't come back clean and/or my problems persist, I will be seeking medical services elsewhere…  :'(

Thank you for your reply. I just spoke to my primary about an hour ago, and he is making an appointment for a CT scan (which I had to insist upon).. So that's a good place to start.

He seemed very put-out, because I wasn't taking the meds he gave me, because i wanted to rule out anything REAL sinister before we start toying around with pills and month-out follow ups… in fact he was VERY rude "well, ms. ***, I need a decision, what do you want to do?"….. so I ask about alternative causes/solutions (since we didnt check my ears and such, could be something as simple as a massive ear infection, and what do I get for a response? "Well you can come down and I'll check your ears, or you can take the advice I left you with last time you were at the office"……. wow.

So if the CT scan doesn't come back clean and/or my problems persist, I will be seeking medical services elsewhere…  :'(

Thank you for your reply. I really dont believe I am depressed, I have the average stressors and things that go wrong on a day-to-day basis, but I certainly dont dwell on them any longer than necessary. And once I feel myself starting to get agitated, I can quickly correct it, but whats different for me is, I am getting annoyed at things that are just silly… Reflecting on them after I realize the silliness of it and work to simmer down going forward, but Ive never had a problem with feeling before thinking until now… This however is a minor detail of the big picture, it's the complete loss of coordination thats really trowing me off, depth perception, tripping going up stairs, walking into things, feeling like just falling over… The node is a minor thing too, but still on the list of worries because I know this is likely the first place it would spread, and though mine was relatively thin and 'cured' with surgery, I cant help but feel in my gut that something is lingering… And I have too much to live for, and i need to be here as long as possible, so if I get called paraniod a few times in the process, it's worth it to me 🙂  Good luck to you too, keep monitoring that node, and be your own advocate, you know your body better than anyone else.

Thank you for your reply. I really dont believe I am depressed, I have the average stressors and things that go wrong on a day-to-day basis, but I certainly dont dwell on them any longer than necessary. And once I feel myself starting to get agitated, I can quickly correct it, but whats different for me is, I am getting annoyed at things that are just silly… Reflecting on them after I realize the silliness of it and work to simmer down going forward, but Ive never had a problem with feeling before thinking until now… This however is a minor detail of the big picture, it's the complete loss of coordination thats really trowing me off, depth perception, tripping going up stairs, walking into things, feeling like just falling over… The node is a minor thing too, but still on the list of worries because I know this is likely the first place it would spread, and though mine was relatively thin and 'cured' with surgery, I cant help but feel in my gut that something is lingering… And I have too much to live for, and i need to be here as long as possible, so if I get called paraniod a few times in the process, it's worth it to me 🙂  Good luck to you too, keep monitoring that node, and be your own advocate, you know your body better than anyone else.

Thank you for your reply. I really dont believe I am depressed, I have the average stressors and things that go wrong on a day-to-day basis, but I certainly dont dwell on them any longer than necessary. And once I feel myself starting to get agitated, I can quickly correct it, but whats different for me is, I am getting annoyed at things that are just silly… Reflecting on them after I realize the silliness of it and work to simmer down going forward, but Ive never had a problem with feeling before thinking until now… This however is a minor detail of the big picture, it's the complete loss of coordination thats really trowing me off, depth perception, tripping going up stairs, walking into things, feeling like just falling over… The node is a minor thing too, but still on the list of worries because I know this is likely the first place it would spread, and though mine was relatively thin and 'cured' with surgery, I cant help but feel in my gut that something is lingering… And I have too much to live for, and i need to be here as long as possible, so if I get called paraniod a few times in the process, it's worth it to me 🙂  Good luck to you too, keep monitoring that node, and be your own advocate, you know your body better than anyone else.