Forum Replies Created
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- March 6, 2013 at 4:43 pm
Thank you all for the kind thoughts and prayers. Family has always been my source of life and happiness. Three children and 2 small g-kids ..What more can I say?
Josh I was currently seeing Dr Kaufmann at Rush because he was suppose to get the PD-1 trial which fell through but FYI Univ. of Chicago is accepting patients.
I never had a real snswer about being a K mutation but that they just don’t know because very few are researching it.
These Drs are just too busy IMO.Karin
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- March 6, 2013 at 4:43 pm
Thank you all for the kind thoughts and prayers. Family has always been my source of life and happiness. Three children and 2 small g-kids ..What more can I say?
Josh I was currently seeing Dr Kaufmann at Rush because he was suppose to get the PD-1 trial which fell through but FYI Univ. of Chicago is accepting patients.
I never had a real snswer about being a K mutation but that they just don’t know because very few are researching it.
These Drs are just too busy IMO.Karin
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- March 6, 2013 at 4:43 pm
Thank you all for the kind thoughts and prayers. Family has always been my source of life and happiness. Three children and 2 small g-kids ..What more can I say?
Josh I was currently seeing Dr Kaufmann at Rush because he was suppose to get the PD-1 trial which fell through but FYI Univ. of Chicago is accepting patients.
I never had a real snswer about being a K mutation but that they just don’t know because very few are researching it.
These Drs are just too busy IMO.Karin
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- September 30, 2012 at 7:15 pm
Congrats on being able to celebrate your daughter's success!
I have been having the worst time taking Z. When I first began, at day 6 I broke out in a chicken pox like rash starting at my head with progressio down my body. Also chills and very high fevers nonstop. Bloodshot eyes. I went off the drug for a few days and started back at 1 pill 2x a day for 3 days, then increased to 2 pills 2x a day and I did pretty well at that point. Mostly chills and fevers, painful nodules on my hands and feet, joint pain and some eye issues. I then progressed to 3 pills 2x a day and everything got worse. The one side affect in addition to those listed above was nausea. I take nausea pills and they don't work whatsoeve. I have no desire to eat and little taste of food. It's the weekend so I went ahead and dropped to 2 pills 2x a day. I have read that at that dose it doesn't even work! I have no idea. Side affects have started to lessen a little bit but not much. I am so discouraged right now.
Karin
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- September 30, 2012 at 7:15 pm
Congrats on being able to celebrate your daughter's success!
I have been having the worst time taking Z. When I first began, at day 6 I broke out in a chicken pox like rash starting at my head with progressio down my body. Also chills and very high fevers nonstop. Bloodshot eyes. I went off the drug for a few days and started back at 1 pill 2x a day for 3 days, then increased to 2 pills 2x a day and I did pretty well at that point. Mostly chills and fevers, painful nodules on my hands and feet, joint pain and some eye issues. I then progressed to 3 pills 2x a day and everything got worse. The one side affect in addition to those listed above was nausea. I take nausea pills and they don't work whatsoeve. I have no desire to eat and little taste of food. It's the weekend so I went ahead and dropped to 2 pills 2x a day. I have read that at that dose it doesn't even work! I have no idea. Side affects have started to lessen a little bit but not much. I am so discouraged right now.
Karin
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- September 30, 2012 at 7:15 pm
Congrats on being able to celebrate your daughter's success!
I have been having the worst time taking Z. When I first began, at day 6 I broke out in a chicken pox like rash starting at my head with progressio down my body. Also chills and very high fevers nonstop. Bloodshot eyes. I went off the drug for a few days and started back at 1 pill 2x a day for 3 days, then increased to 2 pills 2x a day and I did pretty well at that point. Mostly chills and fevers, painful nodules on my hands and feet, joint pain and some eye issues. I then progressed to 3 pills 2x a day and everything got worse. The one side affect in addition to those listed above was nausea. I take nausea pills and they don't work whatsoeve. I have no desire to eat and little taste of food. It's the weekend so I went ahead and dropped to 2 pills 2x a day. I have read that at that dose it doesn't even work! I have no idea. Side affects have started to lessen a little bit but not much. I am so discouraged right now.
Karin