karebear1905

Hi Matt! Sorry to hear about ur diagnosis. It stinks having this disease. I have been on this study and almost completed with the treatment phase. My treatment regiment was for 10mg of ippi which is something I would rather have personally. Interferon did not cut it with me especially the stats. During the induction phase where I received a injection every 3 weeks, I did get really sick by the 3rd treatment. I lost 30 lbs because I could not eat. I was put on steroids which helped greatly. For the maintainence phase, I have received 2 of 3 treatments. I had to skip one because of enlarged thyroid which again was treated with steroids. My last treatment is the 26 of this month. All this time, I have had clear scans and no reoccurence other than atypical mole. The doc at the cleveland clinic told me because of my symptoms he believes this treatment regiment will not cause any more reoccurence other than the skin level. I have been cancer free since April of 2012. If you also want some more info on my reactions with the study you could see my blog at themelanomadiaries.blogspot.com. Pray for the best for you.

Hi Matt! Sorry to hear about ur diagnosis. It stinks having this disease. I have been on this study and almost completed with the treatment phase. My treatment regiment was for 10mg of ippi which is something I would rather have personally. Interferon did not cut it with me especially the stats. During the induction phase where I received a injection every 3 weeks, I did get really sick by the 3rd treatment. I lost 30 lbs because I could not eat. I was put on steroids which helped greatly. For the maintainence phase, I have received 2 of 3 treatments. I had to skip one because of enlarged thyroid which again was treated with steroids. My last treatment is the 26 of this month. All this time, I have had clear scans and no reoccurence other than atypical mole. The doc at the cleveland clinic told me because of my symptoms he believes this treatment regiment will not cause any more reoccurence other than the skin level. I have been cancer free since April of 2012. If you also want some more info on my reactions with the study you could see my blog at themelanomadiaries.blogspot.com. Pray for the best for you.

Hi Matt! Sorry to hear about ur diagnosis. It stinks having this disease. I have been on this study and almost completed with the treatment phase. My treatment regiment was for 10mg of ippi which is something I would rather have personally. Interferon did not cut it with me especially the stats. During the induction phase where I received a injection every 3 weeks, I did get really sick by the 3rd treatment. I lost 30 lbs because I could not eat. I was put on steroids which helped greatly. For the maintainence phase, I have received 2 of 3 treatments. I had to skip one because of enlarged thyroid which again was treated with steroids. My last treatment is the 26 of this month. All this time, I have had clear scans and no reoccurence other than atypical mole. The doc at the cleveland clinic told me because of my symptoms he believes this treatment regiment will not cause any more reoccurence other than the skin level. I have been cancer free since April of 2012. If you also want some more info on my reactions with the study you could see my blog at themelanomadiaries.blogspot.com. Pray for the best for you.

Hi! I am so sorry to hear about your experiences. It down right sucks. I had my primary on my upper thigh with that I had Wbl and lymphorectory. 3 positive nodes which put me in a class of 3b. I am currently on the trial for interferon, 3 mg ippi and 10 mg ippi. I am receiving the amount of 10 mg which as you know is 3 x the amount approved by the FDA for non rescectable melanoma.

My experience has been in the infusion phase where I was given 10 mg of ippi every 3 weeks for 4 treatments was somewhat difficult. Initially for the first 2 infusions I handled it pretty well but the 3rd and 4th ones took a toll. I lost 30 pounds and could not get out of bed for about 2 weeks. Itching and nausea was a problem along with elevated liver enzymes. After the infusion I moved on to mainence phase where infusions were every 3 months along with scans. The first infusioni was fine but the second was not able to be done because of my thyroid was enlarged. I was put on prednisone to put it down. I had my third and my fourth and final one is coming up the 26th. All my scans had been good and I am happy that I have participated in the trial. Personally, I think it’s better than interferon. I have not had a reoccurence other than an abnormal mole. I feel blessed. If you need more info I did write a short blog about my experience called melanoma diaries.blogspot.com. Best of luck in the decision you make and i will keep you in my prayers

Hi! I am so sorry to hear about your experiences. It down right sucks. I had my primary on my upper thigh with that I had Wbl and lymphorectory. 3 positive nodes which put me in a class of 3b. I am currently on the trial for interferon, 3 mg ippi and 10 mg ippi. I am receiving the amount of 10 mg which as you know is 3 x the amount approved by the FDA for non rescectable melanoma.

My experience has been in the infusion phase where I was given 10 mg of ippi every 3 weeks for 4 treatments was somewhat difficult. Initially for the first 2 infusions I handled it pretty well but the 3rd and 4th ones took a toll. I lost 30 pounds and could not get out of bed for about 2 weeks. Itching and nausea was a problem along with elevated liver enzymes. After the infusion I moved on to mainence phase where infusions were every 3 months along with scans. The first infusioni was fine but the second was not able to be done because of my thyroid was enlarged. I was put on prednisone to put it down. I had my third and my fourth and final one is coming up the 26th. All my scans had been good and I am happy that I have participated in the trial. Personally, I think it’s better than interferon. I have not had a reoccurence other than an abnormal mole. I feel blessed. If you need more info I did write a short blog about my experience called melanoma diaries.blogspot.com. Best of luck in the decision you make and i will keep you in my prayers

Hi! I am so sorry to hear about your experiences. It down right sucks. I had my primary on my upper thigh with that I had Wbl and lymphorectory. 3 positive nodes which put me in a class of 3b. I am currently on the trial for interferon, 3 mg ippi and 10 mg ippi. I am receiving the amount of 10 mg which as you know is 3 x the amount approved by the FDA for non rescectable melanoma.

My experience has been in the infusion phase where I was given 10 mg of ippi every 3 weeks for 4 treatments was somewhat difficult. Initially for the first 2 infusions I handled it pretty well but the 3rd and 4th ones took a toll. I lost 30 pounds and could not get out of bed for about 2 weeks. Itching and nausea was a problem along with elevated liver enzymes. After the infusion I moved on to mainence phase where infusions were every 3 months along with scans. The first infusioni was fine but the second was not able to be done because of my thyroid was enlarged. I was put on prednisone to put it down. I had my third and my fourth and final one is coming up the 26th. All my scans had been good and I am happy that I have participated in the trial. Personally, I think it’s better than interferon. I have not had a reoccurence other than an abnormal mole. I feel blessed. If you need more info I did write a short blog about my experience called melanoma diaries.blogspot.com. Best of luck in the decision you make and i will keep you in my prayers