@jsagraves
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- December 5, 2015 at 10:41 am
Been reading through the post on this forum about Ipi / Yervoy, as my doctor as given that to me as an option. I'm 3b and have had full node removal in my neck and under my arm 3 weeks ago. All these nodes came back negative, which gives me hope that we've gotten out in front of this disease.
Below is a link that gives some good information about the side effects of Yervoy and what percent of patients the side effects occure. Thought it might be helpful for those consider Yervoy.
http://chemocare.com/chemotherapy/drug-info/ipilimumab.aspx
I know we've all been through the process where we realize there is no 12-step program to being healed of this disease. There is no road map to be cured. There are options and each of us must decide which options are best for each of us, knowing full well those options may or may not be effective against this disease. We're all trying to throw as much as we feel necessary at our disease and hope for the best. I hope you all find peace in your decisions…making the best decision possible for you with the information you have available at that time. Hind sight will always bring "what ifs" if there is reoccurence. I pray we are all able to avoid the doubt of decisions past, should there be reoccurence. For me personally, I've ruled out interferon and am leaning away from Yervoy at this time. I'm leaning toward full observation, possibly with a clinical trial, if I come across one I qualify for.
Prayers with you all.
John
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- December 5, 2015 at 10:41 am
Been reading through the post on this forum about Ipi / Yervoy, as my doctor as given that to me as an option. I'm 3b and have had full node removal in my neck and under my arm 3 weeks ago. All these nodes came back negative, which gives me hope that we've gotten out in front of this disease.
Below is a link that gives some good information about the side effects of Yervoy and what percent of patients the side effects occure. Thought it might be helpful for those consider Yervoy.
http://chemocare.com/chemotherapy/drug-info/ipilimumab.aspx
I know we've all been through the process where we realize there is no 12-step program to being healed of this disease. There is no road map to be cured. There are options and each of us must decide which options are best for each of us, knowing full well those options may or may not be effective against this disease. We're all trying to throw as much as we feel necessary at our disease and hope for the best. I hope you all find peace in your decisions…making the best decision possible for you with the information you have available at that time. Hind sight will always bring "what ifs" if there is reoccurence. I pray we are all able to avoid the doubt of decisions past, should there be reoccurence. For me personally, I've ruled out interferon and am leaning away from Yervoy at this time. I'm leaning toward full observation, possibly with a clinical trial, if I come across one I qualify for.
Prayers with you all.
John
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- December 5, 2015 at 10:41 am
Been reading through the post on this forum about Ipi / Yervoy, as my doctor as given that to me as an option. I'm 3b and have had full node removal in my neck and under my arm 3 weeks ago. All these nodes came back negative, which gives me hope that we've gotten out in front of this disease.
Below is a link that gives some good information about the side effects of Yervoy and what percent of patients the side effects occure. Thought it might be helpful for those consider Yervoy.
http://chemocare.com/chemotherapy/drug-info/ipilimumab.aspx
I know we've all been through the process where we realize there is no 12-step program to being healed of this disease. There is no road map to be cured. There are options and each of us must decide which options are best for each of us, knowing full well those options may or may not be effective against this disease. We're all trying to throw as much as we feel necessary at our disease and hope for the best. I hope you all find peace in your decisions…making the best decision possible for you with the information you have available at that time. Hind sight will always bring "what ifs" if there is reoccurence. I pray we are all able to avoid the doubt of decisions past, should there be reoccurence. For me personally, I've ruled out interferon and am leaning away from Yervoy at this time. I'm leaning toward full observation, possibly with a clinical trial, if I come across one I qualify for.
Prayers with you all.
John
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- December 5, 2015 at 11:12 am
Hey Michele,
I've been reading through the post on this forum about Ipi / Yervoy, as my doctor as given that to me as an option. I'm 3b and have had full node removal in my neck and under my arm 3 weeks ago. All these nodes came back negative, which gives me hope that we've gotten out in front of this disease.
Your post about make the "wrong" decision jumped out to me. We've all been through the process where we realize there is no 12-step program to being healed of this disease. There is no road map to be cured. There are options and each of us must decide which options are best for each of us, knowing full well those options may or may not be effective against this disease. We're all trying to throw as much as we feel necessary at our disease and hope for the best. I hope you find peace in your decisions…making the best decision possible for you with the information you have available at that time. Hind sight will always bring "what ifs" if there is reoccurence. Personally, I don't believe there is just one "right" decision. There are multiple roads we can take to get us to our destination for healing. This takes off the pressure of making the "right" decision and avoiding the "wrong" one. I pray you're able to avoid the doubt of decisions past, should there be reoccurence. For me personally, I've ruled out interferon and am leaning away from Yervoy at this time, as I'm stage 3 and get the impression that Yervoy is just as effective if I were to advance to stage 4. I'm leaning toward full observation, possibly with a clinical trial, if I come across one I qualify for.
Prayers with you and your decision.
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- December 5, 2015 at 11:12 am
Hey Michele,
I've been reading through the post on this forum about Ipi / Yervoy, as my doctor as given that to me as an option. I'm 3b and have had full node removal in my neck and under my arm 3 weeks ago. All these nodes came back negative, which gives me hope that we've gotten out in front of this disease.
Your post about make the "wrong" decision jumped out to me. We've all been through the process where we realize there is no 12-step program to being healed of this disease. There is no road map to be cured. There are options and each of us must decide which options are best for each of us, knowing full well those options may or may not be effective against this disease. We're all trying to throw as much as we feel necessary at our disease and hope for the best. I hope you find peace in your decisions…making the best decision possible for you with the information you have available at that time. Hind sight will always bring "what ifs" if there is reoccurence. Personally, I don't believe there is just one "right" decision. There are multiple roads we can take to get us to our destination for healing. This takes off the pressure of making the "right" decision and avoiding the "wrong" one. I pray you're able to avoid the doubt of decisions past, should there be reoccurence. For me personally, I've ruled out interferon and am leaning away from Yervoy at this time, as I'm stage 3 and get the impression that Yervoy is just as effective if I were to advance to stage 4. I'm leaning toward full observation, possibly with a clinical trial, if I come across one I qualify for.
Prayers with you and your decision.
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- December 5, 2015 at 11:12 am
Hey Michele,
I've been reading through the post on this forum about Ipi / Yervoy, as my doctor as given that to me as an option. I'm 3b and have had full node removal in my neck and under my arm 3 weeks ago. All these nodes came back negative, which gives me hope that we've gotten out in front of this disease.
Your post about make the "wrong" decision jumped out to me. We've all been through the process where we realize there is no 12-step program to being healed of this disease. There is no road map to be cured. There are options and each of us must decide which options are best for each of us, knowing full well those options may or may not be effective against this disease. We're all trying to throw as much as we feel necessary at our disease and hope for the best. I hope you find peace in your decisions…making the best decision possible for you with the information you have available at that time. Hind sight will always bring "what ifs" if there is reoccurence. Personally, I don't believe there is just one "right" decision. There are multiple roads we can take to get us to our destination for healing. This takes off the pressure of making the "right" decision and avoiding the "wrong" one. I pray you're able to avoid the doubt of decisions past, should there be reoccurence. For me personally, I've ruled out interferon and am leaning away from Yervoy at this time, as I'm stage 3 and get the impression that Yervoy is just as effective if I were to advance to stage 4. I'm leaning toward full observation, possibly with a clinical trial, if I come across one I qualify for.
Prayers with you and your decision.
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- December 5, 2015 at 10:09 am
Tom, I was wondering about your nerve damage / loss of feeling under your arm. When did you have your CLND? I had CLND from under my right arm and also in my neck in Nov 2015 (just 3 weeks ago) and have a lot of numbness throughout those areas. Doctors say it can take 3 months to a year (sometimes more) for the nerves to regenerate and feeling to return. Of course some of the numbness can be permanent.
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- December 5, 2015 at 10:09 am
Tom, I was wondering about your nerve damage / loss of feeling under your arm. When did you have your CLND? I had CLND from under my right arm and also in my neck in Nov 2015 (just 3 weeks ago) and have a lot of numbness throughout those areas. Doctors say it can take 3 months to a year (sometimes more) for the nerves to regenerate and feeling to return. Of course some of the numbness can be permanent.
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- December 5, 2015 at 10:09 am
Tom, I was wondering about your nerve damage / loss of feeling under your arm. When did you have your CLND? I had CLND from under my right arm and also in my neck in Nov 2015 (just 3 weeks ago) and have a lot of numbness throughout those areas. Doctors say it can take 3 months to a year (sometimes more) for the nerves to regenerate and feeling to return. Of course some of the numbness can be permanent.
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- November 25, 2015 at 12:52 pm
Compression sleeve: Was that a precautionary measure or did you get swelling in your arm? How soon did that start? Is that something that will be permanent for you or do they expect it to get better and be able to do away with the compression sleeve?
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- November 25, 2015 at 12:52 pm
Compression sleeve: Was that a precautionary measure or did you get swelling in your arm? How soon did that start? Is that something that will be permanent for you or do they expect it to get better and be able to do away with the compression sleeve?
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- November 25, 2015 at 12:52 pm
Compression sleeve: Was that a precautionary measure or did you get swelling in your arm? How soon did that start? Is that something that will be permanent for you or do they expect it to get better and be able to do away with the compression sleeve?
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- November 24, 2015 at 11:47 pm
Melissa, it sounds like your a month ahead of me as far as the lymph node removal goes. Have seen any improvement in the numbness since the surgery was done? Do you have full range of motion back? I still don't have all my stitches out, but trying to work my arm as much as possible. I don't mind the drain tube, as it keeps the swelling down, but it is beginning to wear out it's welcome too.
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- November 24, 2015 at 11:47 pm
Melissa, it sounds like your a month ahead of me as far as the lymph node removal goes. Have seen any improvement in the numbness since the surgery was done? Do you have full range of motion back? I still don't have all my stitches out, but trying to work my arm as much as possible. I don't mind the drain tube, as it keeps the swelling down, but it is beginning to wear out it's welcome too.
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- November 24, 2015 at 11:47 pm
Melissa, it sounds like your a month ahead of me as far as the lymph node removal goes. Have seen any improvement in the numbness since the surgery was done? Do you have full range of motion back? I still don't have all my stitches out, but trying to work my arm as much as possible. I don't mind the drain tube, as it keeps the swelling down, but it is beginning to wear out it's welcome too.
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